This is a very confusing and bewildering treatment. I am having all sorts of problems and have now stopped taking mino. I'm very close to packing it in. I have been off mino for a week now and my headache and heartbeat noise/sense in the back of my head has diminished, but not gone completely. I was scared that I was developing pseudotumor cerebri. I don't really know where to go from here. I am finding it is so hard to know what drug is doing what and whether the myriad reactions are MS exacerbations, side-effects of the drugs, a return of nerve function, or caused by some other problem altogether.
I have a family history of migraine and stroke which makes anything weird going on in my head even scarier.
I suspect I am also perimenopausal which can cause migraines and formication (that's an M not an N, lol), the weird creepy feeling that I am having all over me but especially on my face and scalp.
It is so hard to know what to put down to treatment and ignore and when to get medical advice. I hate going to the doctor, I feel like a vacuum cleaner salesman, I'm almost apologetic with doctors, then I come away feeling resentful that I feel this way. I am not the kind of person who goes to the doctor at every sneeze. But some things just can't be ignored.
I have only managed 1 tini pulse of 1 day, which put me into an emotional meltdown and landed me on trycyclic antidepressants which are awful. I have reduced the dosage of these but can't just stop taking them without risking a serious relapse of depression.
I am even finding the supplements so confusing, I can't take NAC and even Vit D seems to cause me all sorts of problems.
I feel different from one week to the next. My energy levels are so unpredictable that I can't plan anything and find myself constantly apologising for letting people down. I'm sure people think I am neurotic or malingering and this gets me down. I know I shouldn't care but I do. :(