Submitted by Nessabear on Thu, 2006-06-01 21:26

I want to write down a few of the positive things that I've gained from ms so that whenever I'm feeling down about it I can read over this and hopefully change my perspective.A slower paceIt's taken me a while to find the positives in being forced to slow down but I've done it! Prior to ms, I was a very active person, much happier doing things and being busy than not. Rest was something I did after everything else was finished. And of course, there was always something else to do, so rest wasn't a common thing. I got a lot of satisfaction from working hard in the garden and around the house. In fact, I was probably a little obsessed with keeping our home neat and tidy. Now I am unable to do all the gardening, cleaning and tidying I would like to, but I have come to regard that as a good thing.Rather than stopping to smell the roses of my own volition, ms has forced me to stop moving and shoved those roses right up my nose and I am glad. If I didn't have ms, I think that I would still be moving at breakneck speed through all the household chores, putting our son off while I scrubbed and polished. Having been forced to slow down has meant that I have the very special privilege of spending a lot of quality time with our son doing things such as reading books, writing, drawing, watching TV, playing board and computer games, and playing stationary games such as 'shops'. This is undoubtedly one of the most positive things that I have gained from ms. An appreciation of nowI really try hard not to take anything for granted any more. At the moment, I appreciate the fact that I can stand up in the morning, that I can do a few things around the house, that I can get myself ready for the day, that I can spend time with my husband and my son. No one wants this rotten disease to progress, but I accept that it is a possibility, so rather than dwelling on the things I've lost, I try to appreciate what I have now, knowing that this could change at any time. I recently listened to an interview with a man who has ms and he is now paralysed from the neck down. I think it would be easy to be very negative in that situation, but he appreciates the fact that he can use his mind to think and enjoy music and reading. I hope that like him, I will always be able to find something to appreciate in the 'now'. Greater empathyI think before I had ms, I was a fairly kind and understanding person, but there is nothing like personal experience of something to really develop empathy. I can truly empathise with the elderly, other disabled people and those battling chronic illness. In practical terms, this doesn't really mean much I suppose, but in the greater scheme of things surely all empathy and understanding must somehow contribute to a global balance of positive energy and a better world. An unexpected moveWhen I was diagnosed, my husband and I were in the final stages of building our house on my parents' property. The intention was to live close to my parents and his parents (just five minutes drive away) and at the same time have the freedom to lock up our little house and travel for months at a time. Of course, ms affected a lot of things, including our ability to live in our chosen area. It was just too steep for me to manage with our young son and ms. I couldn't even get up and down the stairs inside the house, let alone up and down the steep driveway. As a result, we moved about three hours away to a single-storey home in a very flat area. While we miss our parents very much (we are about three hours drive away now) the community is wonderful and the area is beautiful. My husband works from home most days thanks to a very supportive company and we have a very good quality of life. In all honesty, I don't think that we would have had the impetus to make this move if it wasn't for ms, so that is another positive thing I want to keep in mind whenever I'm feeling low. Kindness from othersThe capacity for kindness in others has been highlighted for me in many ways because of the ms. There are many people in my life who show me so much love and understanding and give me so much help. Family and close friends are always doing their best to help out where they can and even strangers do little things to make life a bit easier if they see me struggling. The people in the forums in thisisms and cpnhelp all deserve a mention here too!

Suggestion, Vanessa - Jim and I have been discussing how best to manage blogs (such as making them a topic with no responses allowed) and something struck me about yours...  maybe it's because you are actually logging in when the mood strikes, as opposed to intermittent entries spaced out over many days or weeks.  It's occurred to me that, if bloggers simply title the blog with their name and a bit of info, then hit 'EDIT' every time they want to add a new post, just putting in the current date at the beginning of the new addition, we would actually have a running blog, as they were meant to be.

Love reading this, by the way.  It's exactly the way I keep my journal.  'Did the laundry, stepped over the cat...'

  The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

 Mack  Relieved that it was "over the cat".  "On" can be big trouble.

Rica        EDSS 6.7 at beginning - now 2
Ignorance is voluntary bad luck.  Lauritz S.   A true Viking
If you come to a fork in the road, take it. Yogi Berra

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Following Mac's suggestion, it has also crossed my mind that I would like a place where I can keep a running blog.   But being slightly perverse?... I also rely a lot on the responses to my blogs as encouragement and support.   Not sure what the solution to this is.

Michele:  on Wheldon protocol since 1st May 2006 for a variety of long standing ailments, also spokesperson for Ella started Wheldon protocol 17th March 2006 for RRMS

Sussex, UK

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Michele - You would still get responses!  Weeks ago, Jim said making blogs 'no response possible' really wasn't an option with the software.  But, you would be adding to the blog whenever you wanted to; the responses would appear beneath your blog.  So, to see responses, you would just scroll to the end.  If you wanted to make sure everyone saw your latest addition, you could just type a 'response' to your blog, like "New post added 03 June 2006" and that would bring your blog into the current list of topics.  This is much less confusing than it sounds!  Hi, Vanessa; we promise not to hijack your thread permanently.

  The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Rica, Now we have to get Vanessa 'over the cat'.  Sorry, Vanessa, but I don't WANT you to have to learn how to use hand controls on the car.  I want you to never NEED hand controls for the car.  I want you to be able to clear the sewer drain, too.  I did exactly that yesterday at the house I am about to move into.  Feels good.  You will, too.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi all,

I was going to ask if there was a way to re-order the blog topics so that they are in sequential order as I am already a bit out of whack and I have quite a few ideas for other topics that don't really fit in to my day-to-day descriptions. So Mack, I like your suggestion of putting everything in one topic, then I could keep all the diary-type entries in one place and just add random blog topics separately. Does it matter how long a blog topic becomes? (I can be a bit wordy at times!).

Also, thank you for the good wishes regarding the hand controls etc. Obviously I don't want to have to use them either, but at this point I need them (mind you, I have had only one lesson so far and I need another nine or so and then I have to pass a test!). I am hopeful that I will be able to abandon them along with all the other paraphernalia sometime in the future.  When I next get a chance, I'll do some blog editing!

Vanessa :o) On Wheldon protocol since July 2006 for SPMS (EDSS=6 to 6.5).