Trying to sort out what reactions might be due to for Daisy's husband in a recent thread made me think: "We've never gathered any data for reactions from time of dosing."So I threw together a quick survey to see if we get any patterns.Click on the Reactions By Hour survey. It asks that you have observed for two days, so take a look at what's being asked but don't fill out the survey until you have your 2 days of observations! Yes, yes, I know that there will be things wrong with it, and some questions missing, etc., etc.. Just do it to the best of your ability.
Questions and comments about treatment, what helps, what happens.
As we have more people on the CAP protocols longer, our community is accruing clincal priceless experience with the different medications used and course of improvement and diffficulties on the CAP. One of these areas for observation and discussion has been use of Tinidazole versus Flagyl, and it's effect on treatment and course of recovery. There has been another thread discussing these, but I thought it was time to restart the discussion now that a number of people have experienced switching back and forth between these meds. So my own comments (posted on Rica's blog also) below.Tini vs Flagyl-- interesting questions.I have to say, after doing Tini since pulse 3 and then trying Flagyl again for my last pulse (pulse 16) they do have different effects. Not just different side effects. It is possible, as our clinical experience accumulates, that there could even be good reason to do courses of both, or alternate them for pulses.
I am almost about to complete 3 months of the protocol, time for me to start my 1st pulse of metro. I have many questions but I look forward to your help and support:
1. I am currently taking roxy and doxy together in the morning; how should I add metro to this regimen? One dose along with the other two abx or shall I take this completely separate? Do I need to alter my regime in any other way? Shall I be taking a probiotic 2 hours after each dose of abx?
I was recently diagnosed with CPN. For the past year I have had trouble with my tonsils. I started Strattons protocol and can only take 1 NAC so far. When I take it my tonsils burn. White stuff has been coming out of both tonsils now. If I eat it makes it worse. Sometimes they feel so full it is harder to breathe and makes me anxious. Anyone else have this problem while taking NAC?
after a lot of 'study' on cpn and some external problem with my health (I also have an herniated disc, maybe to be cured surgically), I decided to buy the abx to start the protocol, I think, in september, to limit problems with the sun, though my skin is not so light.
I tried to put an order on the indian site I was kindly told about by Sarah, but my bank blocked the payment considered suspicious and blocked my credit card (I'm now waiting for a new one).
Can you send me, in PM, some links to other online pharmacies? I live in Italy.
Has anyone had any luck trying taurine and/or the other supplements that Dr. Stratton recommends for cpn?
It's been a long time since I've posted on this site, but I wanted to circle back to tell you all that my problem has FINALLY been diagnosed correctly and now I'm much, MUCH better. I travelled to the National Jewish Health hospital in Denver, Colorado (the #1 respiratory hospital in the US) back in October of 2018 and again in February of 2019. After many tests there, they discovered my problem to be Acid Reflux, a weak trachea and a hiatus hernia. The acid in my stomach was traveling up form my stomach into my airways.
Sorry before: I had to delete all paragraphs, because only the first was visible. Is this a known forum problem?
Edit: Seems to work now in the following post.
A quick update.
When I did the full protocol, I did it for years. Considering it gave me back my life, I didn't care if I had to do them for the rest of my life. (After all, the neurologist told me I'd have to shoot myself up with MS drugs every day, forever.)
I started the buhner herb protocol at the beginning of last month and started on a very small dose. I began herxing soon after and it’s getting worse. I’m still only at a fifth of the intended dosage! So I’m not looking forward to that 😧 I guess herxing is a positive thing as it means something’s happening