For the Potbelly Syndrome and other Cpn related gfa conditions.<br />

How to find a doctor

Submitted by needadoc on Sat, 2018-07-07 17:39

I'm lost folks. I live in Maine and it impossible to find any doctor who is even slightly open to chronic/persistent CPN infection. Even the doctor who uncovered my CPN infection in 2008 (Lahey Clinic in MA) said it can't be the problem, since I took the usual short course of antibiotics. I'll go anywhere and do anything to find medical assistance.

Eosinophilic asthma and reducing prednisone

Submitted by Denny 54 on Mon, 2018-04-16 11:03

 I have been fighting adult asthma now for over 20 yrs. Came down with this in a matter of days after a sinus surgery to remove polyps. Prednisone has been the only thing that keeps me from being disabled. Have been to more doctors and clinics than I can now count. I am trying the antibiotics for Cpn but still have not been able to reduce the prednisone. Recently learned of Eosinophilic Asthma, and a medication called Mepolizumab that helps asthma where prednisone dosage can be reduced. Anyone have any experiance with being treated for this Eosinophilic Asthma?


Submitted by supaguy on Mon, 2017-12-25 20:45

Today, it is Monday - Christmas Day. Last Monday, I joined lots of friends at the MS Therapy Centre Christmas lunch here in Swansea. I sat on the table with many of my old friends that I used to hyperbaric dive with. Two of the people on that table were CAPers. Well, to be exact, one of them is now an ex-CAPer. Her screen name here on this site is Moggie. She walks normally with no stick (cane). She proudly lifted her leg from under the table and showed me that she was wearing big red heels. Regardless of MS, I really don't know how women walk in those things anyway. She was certainly doing great. Leigh (the other CAPer there) made the comment "She just doesn't look like there's anything wrong with her at all!"


Submitted by JaneK on Sat, 2017-06-10 07:07

maybe it's just cap depression but having, done some research for my, significantly, older half-sister, who seems to carry ALL the same genes as me, I realised that, although she doesn't have MS, we have several similar symptoms and both of us (along with Dad and Grandma)  have always had auto-immune disease (coeliac's, eczema, psoriasis, anaemia, both iron deficiency and pernicious) although we have all been raised to  work hard and not to moan. But I suddenly worried that my immune system might be faulty, with or without this infection! Any thoughts? 

Jury Duty

Submitted by Homina on Wed, 2016-11-16 15:13

Hello AllI have been called for Jury Duty and I know I don't have the stamina for itI asked my Doc to write me a letter and he wants 50 dollars to do itAny other way I can get out of it?Thanks

mouth and GI issues

Submitted by andersonjolie on Sun, 2015-11-01 01:43

Hi, I'm new to all this and I'm very ill, with body wide symptoms, but I'm not sure how many of my symptoms are due to CP. I was bit by a tick and have tested positive for Lyme, Mycoplasma and CP. I have been being treated with Doxcy which helped with headaches and joint pain but never touched some of my other symptoms. The most life altering symptoms right now are severe mouth pain ( burning and tenderness) as well as swelling of the tongue, lips and gums. My mouth is also very dry. My throat is chronically sore and red and my entire GI system has inflammation ( dx by scopes and biopsies) but it they cannot figure out what is causing it. Crohns and UC as well as other typical infections have been ruled out, so no one knows what to do for me.


Submitted by velia on Mon, 2015-02-02 05:29

Hello to all,  im 37 years old and im currently having two kids, age 5,5 and 2,5 years old.During the birth of my first one,while been on the surgical table , having a caesarean, after an epidural, i hear and sense the doctors above me, being quite troubled by what they were seeing. as it turned out, they were looking at full scale chlamydia, being all over the area, uterus, everywhere, having formed sth like spider webs. They told me that me and the kid were quite lucky,not to have any   complications.