Forums › Related Discussions › Co-Conditions and Co-Factors

For the MS'ers - Tysarbi linked to Liver problems

Submitted by Daisy on Thu, 2008-02-28 08:26

Here is a link to a Reuters news story indicating that Tysarbi ( a new wonder drug treatment for MSi) is receiving a new FDA label indicating that it can cause severe liver problems.  Severe liver usually means transplant or death. 

‹ ILADS Slide presentation 2007 Open Database Lyme Info ›
Submitted by katman on Thu, 2008-02-28 10:03.
Last summer when I went to an MSi dinner and talk (pep rally for Tysabri), this is the only disclaimer the speakers made (one of whom was the neuroi who sent me away 2 years ago when it was obvious the abxi were working), saying that only about 1 in 1000 get into trouble with Tysabri, but when you get this bad, what is 1 in 1000?

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 49 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.

Submitted by wiggy on Thu, 2008-02-28 10:41.
Daisy, Thanks for posting as this is what they wanted me to go on if last MRI was not stable. I am so thankful my last MRI looked better than ever! On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.

User login

(If you're a human, don't change the following field)
Your first name.

Navigation

Book navigation

Donations allow us to avoid advertising to keep the site clearly member and mission focused. and are used to pay for site maintenance. Any additional balance is held in trust for future needs or will be donated for research. We are not non-profit so it's not tax deductible. Donations and expenditures overseen by a committee of members.
Write your own amount to give
Amount $

Syndicate

Syndicate content