Since my last entry, which seems ages ago, it's been a rather rocky path. I had one good week with an all round decrease in symptoms and then things went downhill. The next week I started a bout of shingles, this made me take a big step backwards. I spent the next week recovering only to be hit by a nasty cold. So after this all my symptoms reverted to almost the state before the CAPi. The only things I held onto were better flexibility in my left foot and occasionaly better vision.
The recovery from the cold took two weeks but left me back down at the bottom of the ladder. However my tale of woe doesn't end here, the next blow was a stomach bug which laid me out yet again, luckily I could still manage the CAP. This unhappy set of circumstances has accounted for more than two months and I just haven't wanted to join in with anything, so I've not posted, sat by the fire and concentrated on getting better.
At the beginning of Dec, I felt that it was about time to try the first pulse, so I took 1x400mg tab with breakfast on the 9th. I felt a little spaced for about an hour but that passed. For the rest of the day I felt slightly more flexible than usual and more mentally positive (I think that was perhaps just hope). I also had a little more energy and remained active for longer.
Bearing in mind all the advice about not pushing it, I left a day and because I had felt no negative reaction I took two tabs on the third day, one morning and one evening. I then left another days space and took the full three tabs. Pulse 1 done.
So far there doesn't seem to be any improvements but neither are there any negative reactions, I'm just crossing my fingers and hoping!
Onward and upward
Robert
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Robert - MSi for 16yrs. CAPi since Jul 07, NACi 2400mg, Doxyii 200mg daily, Azith 250 mg MWF, Flagylii 10th pulse.
Robert, Not to sound like a
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Hi Robert, Nice to meet you,
Hi Robert,
Nice to meet you, I myself just wandered back to cpnhelp. Course going on the strong stuff refocuses us into what we are doing doesnt it lol. Ah well, hang in there and know, youre not alone, theres many of us sitting by the fire with you. In my case the heater :).
CAPi- zithro, flagyli, plaquenil - CPN +, fibromyalgiai, endometriosis, b12 deficiency
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CAPi- zithro, flagyli, plaquenil - CPNi +, fibromyalgiai, endometriosis, b12 deficiency
Hello Robert, long time no
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Hi Robert I have to agree
Hi Robert
I have to agree with MacK about the stomach thing. Pulses affect me in a delayed fashion so far. My stomach has been bothering me & I thought virus, for about 10 secs. & then thought, CPni again, we are not done in the gut just yet!
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpn, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 1.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 12-3-07 4th pulse 1 X 375 mg 3day
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08Hello Sarah, I've got to
Hello Sarah, I've got to admit that my reaction to the metroi surprised the **** outa me. They felt more like uppers than downers! So far it's the other two abxi that don't play nice with my head.
Robert - MSi for 16yrs. CAPi since Jul 07, NACi 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, 1st pulse metro 9.12.07.
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Robert - MSi for 16yrs. CAPi since Jul 07, NACi 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, Flagyli 10th pulse.
Hi Ruth, I'm fairly certain
Hi Ruth, I'm fairly certain that both you and Mack are right but thanks a bundle for wishing a bad stomach on me-lol. I had more than a suspicion that I would have issues with my stomach function as it has been a problem for many years.
Robert - MSi for 16yrs. CAPi since Jul 07, NACi 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, 1st pulse metroi 9.12.07.
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Robert - MSi for 16yrs. CAPi since Jul 07, NACi 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, Flagyli 10th pulse.
Robert- I had energy
Robert- I had energy rushes like that from the first couple doses of flagyli, and then tinii, especially the first year or so. I attributed it to the kill making ATP more available to me rather than the bug, but there could be some other stimulant effect (MAIO inhibitor affects have been attributed to flagyl). It seemed to be a phenomenon for the first couple days only, and once past that point the energy rush passed also.
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tini 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Robert, sorry to hear that
Robert, sorry to hear that you have been in the wars, but the shingles and cold symptoms seem to happen to lots of people when they start the CAPi. I hope you don't have any surprise reactions to flagyl but as Jim says they do not always happen when you expect them.Michele (UK) GFAi: Wheldon CAP 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006