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Yes I agree.  Based on my experience, the Flagylⁱ was my biggest problem as far as die-off.  Take one pill today and maybe one tomorrow if you don't react.  Then wait a couple of weeks to make sure you don't have a delayed reaction. 

Lynda- ME/CFSⁱ, Fibro, IBSⁱ, Hypothyroid, Lyme, Cpnⁱ, Diabetus Insipidus(DI).  Stratton Protocol 8-06; Daily: NAC 2250mg, Doxy 200mg, Flagyl pulses   500 mg- 5days, Azith 250 mg MWF,LDNⁱ,Armour Thyroid, Klonopin, Desmopressin, Zetia, suppleme

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Lynda- ME/CFSⁱ, Fibro, IBSⁱ, Hypothyroid, Lyme, Cpnⁱ, Diabetus Insipidus(DI).  Stratton Protocol 8-06; Daily: NAC 2250mg, Doxy 200mg, Flagylⁱ pulses   1500mg- 5days-every 3 weeks, Azith 250 mg MWF,Armour Thyroid, Klonopin, Desmopressin, suppl

I took my first one (Metroⁱ) last Thursday and only one tablet and felt awful until today, I don't feel wonderful now, but better than I did. All my MSⁱ symptoms came back to bite me and things that I hadn't realised were part of this infection. Even an old surgery incision from when I was 14 joined in by itching tremendously.

My walking and balance were really bad - and I did try to keep walking on the Air Walker machine (thanks for the tip Sarah) but it was very hard.

I am waiting the full three weeks now before I try to increase the dose and I work from home - if I didn't I would not have been able to work. 

Carol, Mucho Groucho

New Forest, UK. Progressive MSi dxⁱ 12/06 LDNⁱ 3/07 CAPⁱ 6/07: Wheldon

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Progressive MSⁱ dx2006. LDNⁱ & CAPⁱ: Wheldon version. All supps. Doxyⁱ 200mg. Zithⁱ 250mg. Metroⁱ 400mg.Pulses #23...I can because I think I can.

Well so far so good, have taken 2 tabs so far and no adverse reaction. 

Malcolm

Doxyⁱ 200mg since 13 Sep 07 (100mg since 26 July 07), Nacⁱ 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSⁱ Aug 06.

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Malcolm

Wheldon Protocol since July 07. Doxyⁱ 200mg July 07, Nacⁱ 1200mg July 07, Azi 250mg 3xweek Aug 07, Flagylⁱ pulses Oct 07, diagnosed MSⁱ Aug 06. Intermittent Aug 08

Carol, Glad to hear you are feeling a bit better.  Just wanted to know how long after that one tablet did you begin to feel the start of feeling awful? 

 Also I search for the Air Walker Machine.  Looks like a good compromise the full oliptical versions are very big.  The Brookstone one that I found was able to fold flat.  Looks like something I could push myself on but not have to worry about balance in a big way. Thanks for mentioning it.  I could see how keeping the nerves firing during the process could have advantages. 

Louise

Louise, USA, Northern New England. CPnⁱ, Bb(Borrelia B., Lyme,) CFS.     Started CAPⁱ 6/24/07 Doxy400, NAC1200.  Currently 9/24/07, Doxy 200 mg, NAC 1200 mg.

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CFSⁱ/FMSⁱ 20+yrs/ CPn pos Bb pos/CAPstart 6-21-07/Doxi,Clarithro,Tiniⁱ/11-22-07 Cholestyramine HS PRNx7days for porphyrin reduction/ 5-08 BHRT/ Progressed to HD D3-10,000IU /Iodoral 25mg/ 2-4-09 Intermittent CAP At20MonthsWheldonCAP/2-17-09 LDN4.5mgForCFS

Well done Newbies....

proceed with respect & caution.  I just did 2 days, 1 375 mg pill Sept 30/Oct 1 & I had some porphyriaⁱ, gas, kind of like you are dying from the inside out is the only comparison I can imagine.  Lots of glucose & charcoal taken.  I am cloudy, headache, very sore low back & I have not left the property since Sunday. 

Tomorrow though, going to see Rain (beatles) so I will rest up for that.

Malcolm, you are blessed to be able to function doing aerobic exercise for 20 minutes.  Many of us can only do small bouts of anaerobic.  I hope that I will be back to my formerly fit self in 2008 or 2009, however long it takes.  I am going to persist.

Blessings All

Ruth

CFIDSⁱ/ME 25yrs, FMSⁱ, IBSⁱ, EBVⁱ, Cpnⁱ, (insomnia - melatoninⁱ, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACⁱ 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8-21-07 1st pulse 1 X 250 mg Metroⁱ

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CFIDSⁱ/ME 32 yrs, FMSⁱ, IBSⁱ, EBVⁱ, CMV, Cpnⁱ, H1, chronic insomnia, Lyme, HME, Babesia, Natural HRT peri-M, NAC 3 gm,Full CAP 6-2-07, all supplementsⁱ+Sea Kelp, Inositol, Chitosan, L lysine Pulse#18 3-29-09 1gm Flagylⁱ/day-4 days.

I felt really good for about a few hours after taking it in the evening, but that may have been the LDNⁱ. The next day I was slammed...I am just hoping that there won't be any delayed reaction in the next 3 weeks.

I got the Carl Lewis walker from Amazon and yes it is pretty big, however it is very stable which is what I like about it. I have it in the living room for the time being - until we have unpacked all the boxes from moving in last year.

I have to say it is great when there is a boring programme on TV, well something I find boring anyway I can just switch off mentally and walk  off the die-off.

New Forest, UK. Progressive MSi dxⁱ 12/06 LDN 3/07 CAPⁱ 6/07: Wheldon

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Progressive MSⁱ dx2006. LDNⁱ & CAPⁱ: Wheldon version. All supps. Doxyⁱ 200mg. Zithⁱ 250mg. Metroⁱ 400mg.Pulses #23...I can because I think I can.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I have completed my first day and didn't notice anything until this morning when I was overcome by fatigue an hour after getting up, I slept for 90 minutes and feel fine. I do have an ache in my right shoulder, which is where I had a problem from before I was diagnosed with MSⁱ. At the time I though it was repetitive strain injury as I work at a computer.

Last weekend I had similar fatigue, it starts with me getting grumpy and irritable, then I just have to get into bed where I fall into a deep sleep for upto 2 hours. It happened last Sunday and again on Monday, after which I felt great (this was before Flagylⁱ).

I have been exercising regularly for ages and when I was dxⁱ with MS I was spurred on to exercise more, I used it as a measure of my ability. Since my first episode my main physical problem has been that I can't walk or run after about 20 minutes, I start to stagger and limp. Also my balance and hand eye coordination have been affected (one tennis opponent thought I was drunk!). I have also had periods of fairly intense brain fog and dizziness and various other symptoms, but to the casual observer I appear normal.

So I am hoping that I am tackling this issue early and that I am not going to have huge problems taking these abxⁱ. It occurred to me yesterday that maybe the biggest thing I will have to deal with is these bouts of fatigue. I hope so anyway because sleeping is rather pleasant!

Malcolm

Doxyⁱ 200mg since 13 Sep 07 (100mg since 26 July 07), Nacⁱ 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MS Aug 06.

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Malcolm

Wheldon Protocol since July 07. Doxyⁱ 200mg July 07, Nacⁱ 1200mg July 07, Azi 250mg 3xweek Aug 07, Flagylⁱ pulses Oct 07, diagnosed MSⁱ Aug 06. Intermittent Aug 08