It's hard to believe but I am on 13th month of CAP treatment. I started on January 02, 2008, twicked my protocol a little for a couple of months. Since March'08 I settled on Doxy 200 mg/day and Rifampin 600 mg/day. In Nov'08 Bactrim was added twice a day. 2 weeks ago I switched from Doxy to Minocycline. So, right now I am on Mino + Rif + Bactrim.
I am kicking myself for one thing that I have not started Flagyl pulses yet. I find every excuse under the sun - too sick, too busy, got to go to work, have social obligation that I can't jeopardise, you name it. But the truth is, I 've been afraid to have my old die-off reactions back. However, on my last appt with my LLMD, he gave me (once again) rx for 2 weeks of Flagyl 500 mg x 2/day. That his new protocol now. He tells it won't be effective if taken less then 2 weeks. So I have to start it sometime this week so I have something to report to him on my appt in Feb.
During entire year on CAP I never had any problems with antibiotics (abx) in regards of developing yeast/candida issues, diarrhea or constipations although they are considered common problems of abx overuse. I'd say it's not overuse that brings them on but incorrect use, especially without probiotic. I took at least 35 bln 14-strain probiotic a day diligently. Some abx interfere with my absorbtion of Synthroid, I battle this issue daily, keep seeing my endocrinologist often and adjust my doses. It's worth it.
My improvements since start of CAP:
COMPLAINTS THAT ARE GONE ( and would've been forgotten if I didn't write them down in my notes):
Dermatitis of eye lids.
Ear pain and blockage.
Feeling that my head is stuffed with cotton, swelled and woozy. I am not talking about brain fog here, this was something worse.
Chronic unproductive mild cough.
Muscle pain. Disclaimer: this one disappearred completely very recently (2-3 weeks?), so I am holding fingers crossed it won't be back.
Restless legs syndrome. These past 2-3 months I sleep pretty much undisturbed except for occasional aggravations.
Fatigue and brain fog. Unless my hypothyroidism acting out and that happen often. Sometimes it's hard to differentiate really. But even then it's greatly improved because it used to be there ALWAYS.
Joint pain/tendonitis. Oh boy, can I brag here! ALL my joint pain is gone except some very residual feeling of tendonitis in my hips and that after serious GYM work-out and I still have a big deal of plantar fasciitis in the right foot. The right foot is just driving me crazy. It often feels better for a few days and all of the sudden worse. However, that's the only area of joint pain that is still bothering me and it's not swollen anymore like it used to be and I have more good days with my r.foot than bad ones. Occasionally I also have some reasidual "nerve" feeling in my right elbow where I used to have bursitis but I can't call it a pain really.
Sinusitis - 60-70% improvement, I guess. During the day I don't feel my used to be constant post-nasal drip anymore. However, I still get up in the morning slightly stuffed up on right side and blow nose in the morning for up to a couple of hrs.
Pelvic pain improved in first few months of CAP about 50% but stalled since.
NO MEANINGFUL IMPROVEMENT:
Hypertension - actually it's probably improved because it used to be uncontrollable and now it's under control of meds and occasionally I have to skip meds for days and weeks due to sudden normalization period.
Bladder - I used to get inflammations and UTIs since childhood. Right now I'd call it overactive bladder and it doesn't seem to get better.
I wanted to write some more but I have to stop now because it's taking so long. I'll have to continue later in a new blog...