I know it's been way too long since I've checked in here. I just want everyone to know that I'm still at it. I've completed 15 Flagyl pulses now, although only 4 of them have been at the full 5-day doses. The first full pulse was in November and went very well, but in December I had a harder time and cut back to two doses on two of the days. It was Christmas time, and that's always rough on my ME/CFS. I then got in full pulses in January, February, and March, but the one in April I had to cut short at 4 days. It seems to get a bit worse each pulse, mainly with the headache, fatigue, and digestive problems. After the 4 day pulse two weeks ago, I could really notice the Flagyl taste in my mouth for a full week after I was done. Every day that I'm doing the pulse, I feel like I just can't take that next Flagyl, but then the time comes, and I do.
My health has been up and down through all this. I do think I'm noticing some subtle improvements, but then I still have some really bad periods of time. My migraines have been brutal, with them coming nocturnally practically every single morning over the past few weeks. Today is blessedly headache free.
I haven't been reading much of the posts here - just now and then. I know I'm behind in what's been going on with everybody, and I'm sorry.
I really do want to let everyone I've talked with in the past know that I'm still here, still working at it. I'm continuing to work full-time while I do this, so sometimes computers are not my friends!
That's about all my brain can muster for now.
Take Care All,