Finally....a Real Breakthrough!

Submitted by kitkat2 on Tue, 2007-11-13 19:08
Posting now after increasing my Amox and adding LDN to my regime...I have successfully gotten past the LDN-related "cement legs" and yet the improvements just keep coming. The Amox. has definitely reduced knee swelling and related pain. My left knee is now about the same temp as my right--a first. I can stretch further which feels almost strange--imagine muscles as tight as thick rubber bands able to be coaxed beyond previous comfort limitations. The LDN has taken some getting used to[initial increased spasticity], but am sleeping way better than before AND my initiative to conquer daily 'chores' has drastically improved. So I could just say that my energy is better, but it's the desire to accomplish things that I have noticed. Not perfect mind you, but I am guardedly pleased. That's good. kk2 :)

CONGRATULATIONS!!!! That is great news>>... 

Mphs, TN. CFS, hypoT, weak adrenals, 37 w/hormones of 80 yo. 6/26/07- CPN Titer 1:256 (normal 1:16); 6/27/07- NAC; 7/2/07- doxy 100, 2xday; 7/19/07-9/7/07- Biaxin. 9/8/07-azith 250 mg m/w/f. 10/18/07-1st flagyl pulse

Mphs, TN. CFS, hypoT (Hashi), adrenal fatigue, hormonal inbalance. right arm neuropathy-getting better. cpn, myco, EBV, CMV, HHV-6. Cap began in 6/07. NAC 2400mg, mino 100mg bid, biaxin 500mg bid. cytomel, flagyl bid continuously.

KK2, I am dancing for joy! What a very long time and what perseverance you have shown. When this happens, not an hour goes by, I think, that doesn't have a test or retest. That is still very true for me. I am so happy for you.

 

Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 47 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

This is me, squealing happily! SO happy to hear this, so, so, so happy! I'll pm you later.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

KK2, so pleased to hear that you have seen some marked improvement, you have certainly been waiting patiently for long enough.

Michele (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

KK2, I am so happy for you!!!!!!!!!!!What a relief after months of hitting the bugs. I am glad the LDN is working for you. I remember I had not slept well for about 5 years and than started LDN and the problem went away. Sleep is so important. Cheers to more improvements coming your way just in time for the holidays. On Wheldon protocol for MS since April, 2006.  doxy 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyl Pulses start end Sept., LDN 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Wow, KK2, just in time for Thanksgiving day!  I am so pleased.........Sarah       An Itinerary in Light and Shadow   Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I am very pleased to hear about the improvement. Barbara. Used to have multiple sclerosis, on the intermittent Wheldon protocol since March 2006, EDSS 0 for over 4 years

Cured of multiple sclerosis, stopped the Wheldon's protocol in Nov,2008. Use only LDN.

KK2,  After the ration of ____ you've had, you had this coming to you.  Congratulations on finally moving forward.  How are the arm and your mouth/teeth feeling?

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, antivirals, heavy metals chelation, LDN, Lunesta, GF/CF diet, Lauricidin, oral IgG/lactoferrin/IGF-1 booster, astaxanthin, gamma oryzanol.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

kk2 Yeah! Keep trucking sister. I think I remember you saying you were allergic to pcn. How is it going with the amoxicillin? The ldn also really improved my quality of sleep as well. How much are you on? kc dx ms 1996. started cap 10/05. Started with tini pulses switched to flagyl pulses. Now almost on continous 500mg flagyl but do need breaks. On doxy 200mg/day azith 250 mwf and NAC only 600mg. No vitamin d now since the combo makes me go beserk. Comi
dx ms 1996. started cap 10/05. Started with tini pulses switched to flagyl pulses. Now almost on continous 500mg flagyl but do need breaks. On mino 100mg/day biaxin 1000mg day and NAC 600mg. ldn 2.0mg.

kc, Luckily I am only allergic to Sulfa. I am taking 4.5mg LDN qhs. joyce, my teeth and arm/shoulder are holding up nicely,thanks. It is fun to have good news to share. kk2

 

On Wheldon regime [Doxy, Azith, and Flagyl]  for rrms since October '05.&nbsp Added Amoxicillin 1gm twice daily and LDN 4.5mg October '07; EDSS was 6.5, now 5.5.  United States.

Wheldon Protocol for rrms since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGG's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

And it's nice to find really good news here!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi