Just wanted to post up an update.
Diagnosed with MSi Jan 2010 at age 23 after 2 relapses lasting 3 months each. Symptoms: Chronic fatigue (couldnt work), weakness on right (foot drop/hold anything in hand), daily migraines (ddebilitating), vision disturbances, non-resolved tingling on right, chronic nerve pain in right Great toe etc.
I have been on Doxyi/roxyi & NACi combination since November 2011 and introduced Flagyli in January. I am about to start my 4th pulse (not looking forward to it) HOWEVER, I just want to report that I have been feeling very energetic for a while now. I have had some flair of MS symptoms that may be due to extreme heat (loving hot showers after work), or they seem to crop up about 2 weeks after the last flagyl dose. Its a trend.
I have been having the CCSVI angioplasties since october 2010. Despite its ability to reverse all my symptoms, they have never been able to hold for very long. A common trend observed is that I would feel great for < 3 months, then I would schedule surgery again in month #4. Well, since starting this treatment I have had 1 surgery (December) and I am already in month #4 and I have zero symptom return :) Infact, I usually decline very quickly without the treatment - however If anything, I am experiencing increased energy, zero weakness, zero fatigue, I work 40hours a week and study from 5pm (after work) until 9pm daily with no decline in site! Let me tell you - the vascular system isnt easy study either!!
I am so happy ! I want everyone reading this to find some sort of motivation and keep marching ! THank you so much Sarah and Dr. Wheldon. Your stories and websites have inspired me - and I have spent all my time spreading the word of CPni implication in MS. There are a few of us that are on this treatment - it makes for a great support group. I also set up a CPn faceboook page, it makes it easier to communicate. I want this to be recognised as a treatment - because it works !
THank you so much. Thank you.