Falls in MS, before and during treatment

D W

I've added a brief page to my site about falls in MS before and during treatment - link here - and have taken the liberty of copying it here.

Falls in Multiple Sclerosis, before and during treatment.

 

Falls are very common in Multiple Sclerosis; they are likely to be multifactorial [Cattaneo D, De Nuzzo C et al., (2002) Risks of falls in subjects with multiple sclerosis. Arch Phys Med Rehabil. 83 (6): 864-7.] They may result from weakness, from loss of sensation and proprioception, from vertigo. A prolonged reaction time may make the fall awkward. and prevent a controlled landing. And, until it is corrected, relative Vitamin D deficiency and osteoporosis may increase the risk of fracture.

People with MS who are making good progress on treatment also remain susceptible to falls; paradoxically the reduced reaction time and the increasing strength and improving mobility may lead to risk-taking. Not all modalities return at the same rate, and during this period of subtle change falls through inadvertence are frequent. Also, some persons may well have C. pneumoniae infection in the inner ear; destruction of the organism may release endotoxin, which, until it is removed, may be expected to cause vertigo. (This is speculative, but it seems reasonable: endotoxic inner ear damage can occur after Gram negative meningitis.) The pattern is that of labyrinthitis; sudden turning of the head, particularly on looking up, results in rotational vertigo, which can result in a fall.

Don't rush, even if late. Use handrails. Stairs are the most dangerous things in the house. Don't let yourself be distracted while climbing or descending them.

Thanks for this useful cautionary and addition to our understanding. Your comments on Cpn infection of the inner ear and vertigo really got me thinking. Quite a number of years ago I noticed that I could no longer tolerate any kind of spinning. Somersaults in martial arts class, part of safe falling instruction, would leave me with a severe vertigo for 30-40 seconds after the turn. I used to love amusement park rides, then could not tolerate the motions any more. I attributed this to "aging," but I have noticed recently some improvements in this. I don't get as severe a vertigo as I used to... and I'm obviously older not younger! It never occurred to me that I could have Cpn in my inner ear, even though you have mentioned this before, and azith and then Tini pulses for a long time would bring on "stuffed up" ears (ie pressure). I attributed this to sinuses. Very, very interesting, David. Thanks.

Combined Antibiotic Protocol for Chlamydia pneumonia in Chronic Fatigue Syndrome & Fibromyalgia- Currently: 150mg INH, Doxycycline/Zithromycin, Tinidazole pulses. Northern Ohio, USA

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Jim, when I was younger I never used to get car sick, I could even sit and read the whole journey in the back seat, but by 2001 I couldn't even look down for a second without feeling very sick.  We were driving down to Cornwall that year and had to stop after less than twenty miles to buy me some travel sickness pills, which worked but made me so drowsy I was falling asleep all the rest of the journey.  Now, though, I am very much better with this: there is one friend whose driving is so erratic that I have to make sure I am sitting in the front, looking straight ahead, but anyone else I can cope with.  As well as the treatment, I think my balance disc helps with this: trying to keep my balance on it whilst keeping my eyes on the same spot on the wall.......SarahAn Itinerary in Light and Shadow  Berger.

Started the Wheldon regime in August 2003, due to very aggressive SPMS.  Moved to intermittent therapy after one year.  In 2006 still take this, two weeks every two months.  EDSS was about 7, now less than 2

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

David, I was thinking of this very thing while literally racing down twelve flights of stairs this morning due to elevator malaise.  As I skimmed my hand along the rail, I realized I could never grasp it in time had I fallen.  I am now so accustomed to 'feeling good', I forget I am not back to where I was before this infection hit so hard.  Now, everyone repeat after me, "I will pay attention to what I'm doing".  We are no good to anyone if we don't do our part to outlive the cpn infection, for heaven's sake!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

MacK, where did you sneak up from!  Yes, like I didn't last weekend when photographing my grapes.......Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I also fell down during my previous pulse and it was during the time I was feeling most foggy, even when I do not have MS. I even could not remember how to get to our post, where I have been going for twenty years. I felt how endotoxins fulfilled my head completely. My ear, which splited during fall is still not ok.

Prague, The Czech Republic, On Wheldon protocol for Cpn and Mycoplasma since 02/18/2006.

Stratton/Wheldon protocol 02/2006 - 10/11 for CFS and many problems 30 years

I started taking 4000 IU of vitamin D about five years ago.  It clearly helped my stability and steadiness while walking and is part of what gave me a improvement in my condition at the time, and one of the reasons I still continue the course of treatment I did then and find it to be highly synergistic and complimentary to the CAP. 

Up until five years ago, I was only distantly aware of the importance of vitamin D in the diet.  I had been working indoors for a long time and had almost no sunlight exposure and very little dietary intake of it.  As a result, I believe I had osteomalacia (adult ricketts), albeit a mild case. 

I was twisting my right ankle regularly, spraining it.  Of course, I would fall each time, quite painfully and be unable to stand on my right foot or walk on it.  I bought an ankle stirrup that I began wearing under my clothes to prevent a new sprain.  I would continue to wear it for 2 or 3 months at a time until I felt confident enough to take it off.  It wouldn't be long until another sprain would occur.  That viscious cycle continued up until about two years ago, gradually declining in frequency.  I've now not had a sprain since early in 2005.

To date, I've twisted/sprained my right ankle approximately 35 times over the last 5 or 6 years.  It's much stronger now but will never be what it once was, regardless of if the CAP is fully effective or not.  I don't know that I'll ever run again, but one day I will begin working towards doing so.

To this day, I'm still meticulous about grasping the handrails on the stairs when I go down or up.  I was in a large auditorium two years ago and had the unfortunate need to decend the steps on its lower level where there are no handrails and the steps are very widely spaced.  It was quite harrowing, but I somehow made it down, slowly.  I don't know how I would do now, but I suspect n ot much better, yet.

all my best

John

RRMS/EDSS 4.5 on Wheldon Protocol (doxycycline, azithromycin, metronidazole) since 04/12/2006

best, John

RRMS/EDSS was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
nac 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazole 3x400mg/day then 3x500mg/day