Eye focussing issues on Metro

Hi all,

I have had a problem with my eyes which has become quite bad. On the last metronidazolei pulse i had quite a bad eye ache/strain on 1 side only. i had real trouble focussing driving to work & reading the computer. It didnt matter how far away i held a piece of paper, i still couldnt focus on it. A few days later my eyes were back to "normal". I went to the optometrist the day after the funny business & she did some pretty comprehensive tests to tell me that all was fine.

If she had given me some spectacles they would probably be fine 1 day but the incorrect script during an episode like the above. I have seen that with CPNi you can get cornea infectionsi. i am not sure if this is what i was experiencing or some kind of eye herx?

any ideas welcome!

all the best!

Mark

You are not on plaquenil, right?

Hi mlandstra,

it sounds like a herx to me, have you anyhistory of optic neuritis?

i am partially sighted, so maybe not the person you’d like to hear from! During a pulse, i don’t get pain, although i have had, in the past, which was from my optic neuritis, but my sight always gers worse. I put this down to die-off, as my optic nerve was affected, initially, but, my feeling is that you are experiencing a temporary reaction and it will improve. Are you taking high dose biotin? It definitely helps part of my sight and hugely helped David and Sarah.

my advice is to not panic, althoughthat’s hard, but take the abxi, biotin and the other supplementsi, only drive when you’re safe to do so, and bide your time!

Jane

MSi symptoms from 2001, DXi RRMSi in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Mark - I've had loads of difficulties with focusing and variable eye sight, just in the way you describe.  My optician seems to have concluded I'm a crazy one, as my prescription can change by the day.  What appears to be the 'perfect' prescription one week, is completely wrong the next.  The optician commented on the fact that my eye muscles were working too hard and never relaxed, but I've no idea whether that was the case.  All I know is that it does all seem to have gradually resolved with treatment.

Neuroi symptoms & many health problems from 1989. NACi+all supps(04/11) CAPi(05/11)

Consider going to an ophthalmologist - he/she is and M.D.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hi Mark,

this is really good advice, go to an opthalmologist and tell them your concerns!

Good luck,

Jane

MSi symptoms from 2001, DXi RRMSi in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

When I was on the protocol, my optometrist said doxyi affects the blood vessels and alters vision, so he would never do vision tests on me while I was on doxy.  (I simply didn't bring it up to him when I went for new glasses, since I knew I'd be on doxy for several years.)

I do know my vision was 'better' on doxy than without.  After awhile, the protocol affected my vision in a good way and I no longer needed as strong a prescription as I used to.  That held up well for many years.

Now, I take biotin and its effect on my vision is dramatic.  When I'm taking biotin religiously, I ONLY need reading glasses.  When I forget or don't have access to biotin, my vision slides a bit after two days of no biotin.   I never, ever take a long driving trip without ensuring I've taken biotin in the days before I leave. 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

No not on plaquenil - thanks Penny!

Thanks everyone!! I will see an opthalmologist. Hopefully that allays any concerns. I thought it was funny that my vision is getting effected now, 3 years into the CAPi? Perhaps now that the abxi have sorted out CPNi in other parts of my body there is enough "free abxi" to sort out CPN in my eyes/optic nerve.

I appreciate all your help Tongue Out

Mark

Hi Mac, 

What dose of bio 10? My bottle says 8 mg and I’ve only been taking one a day but how much are people taking? I noticed I’ve been having vision issues too. But I am not on the metroi yet.

Thank you!

Trish

I'm currently taking 10,000 to 15,000 mcg daily.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Ok so 8 mg is 8000 mcg. I will take 2 a day and see if it helps.

Thank you!

Trish

Mark and Trish, at the moment I am taking 200-300mg of biotin a day, which means 20 or 30 tablets, which because they are small, is no problem, taken in two amounts.  Most people who take that amount buy biotin powder and make up the capsules themselves, but I can't be bothered.  I don't have any eye problems, but then I never did apart from some slight dimming of colour vision in my left eye before I became progressive.  What I do find though, is that my muscles are becoming much stronger, which makes walking upstairs easier.  Read my blog about biotin: it does help many people with eye problems.

In the French trials, some people were taking up to 600mg a day.  If I was doing that, I probably would prefer to make up capsules!...................Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thank you Sarah! I read it. I just turned 50 and have needed reading glasses since 40. Looking forward to ”seeing” what happens when I up my biotin! Is high dose biotin an option? I found Natural Creations high dose pure biotin 100 mg on Amazon.

Trish

Hi Trish,

I also take very large doses, like Sarah, and on David’s advice! It makes a huge difference, especially to colour perception and, of course, to the myelini sheath, as reported on cpnhelp.org, by Sarah!

Jane

MSi symptoms from 2001, DXi RRMSi in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Trish, I looked up Amazon.com for you, rather than our British one and fourth line down I found these:

https://www.amazon.com/NOW-Biotin-000-mcg-Capsules/dp/B00CYA4RIK/ref=sr_1_12_s_it?s=hpc&ie=UTF8&qid=1521304714&sr=1-12&keywords=biotin< and 

https://www.amazon.com/Nutricost-Biotin-Vitamin-000mcg-Capsules/dp/B01AMJCHB8/ref=sr_1_11_s_it?s=hpc&ie=UTF8&qid=1521304959&sr=1-11&keywords=biotin&th=1<

They are the same dose in each tablet as I use and it only contains biotin and a filler, so there is no danger of overdosing with anything else.  Depending what benefit you are hoping for, it might not have an instant effect.  It took me well over a year before I started seeing benefits with my strength, but actually not quite as long before I was able to see tiny print in evening light..................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thank you Sara! I bought the Nutricost one.  Also thank you for the heads up on how long it might take. I am patient :-) 

Trish

Sarah, Do you take them all at once? Or do you take half in the morning and half late afternoon?

Thank you, Trish

Thank you Jane!

Trish, I split them up: no matter how mall, thirty tablets all at once would make me gag!  Make sure you wash them down with plenty of water, otherwise you might be better to fill your own capsules.  The bigger the capsule you can swalow in one go the better!......................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thank you Sarah! Will do!

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