Every day (or night) is not good

Submitted by hdwhit on Tue, 2013-01-22 00:37

I don't know about others, but "pseudoexacerbations" seem to be a part of my life.  For those who don't have M.S., a "pseudoexacerbation" is a temporary worsening of an existing symptom which had previously gotten better.  This is distinguished from an "exacerbation" which is a new symptom. 

It took me nearly five years, but all of my problems with walking had pretty much resolved in the last year or so (see my prior posts on the subject).  I could - and did - literally walk down stairs faster than my co-workers could take an elevator.

On January 19, about 1:00 a.m., I knelt down next to a chair to pet one of my cats.  When I was done, I could not stand back up.  Rather than call for help from my wife who was by now fast asleep, I just reached for the blanket that was on the arm of the chair and wiggled into the center of the living room, pulled the blanket over me and went to sleep on the floor.  It's times like these that I regret replacing our carpet with laminate flooring.  Around 3:00 a.m., my wife had noticed I was not in bed and came out to look for me.  By that time, my legs were working well enough that I could get off the hard floor and go get in bed.  

My take-away from this experience was that:

  • Even if the antibiotics work for your particular condition, you can't escape the fact that before you started the CAP, your nerves were damaged and the repairs made to those nerves may not make them "good as new", and
  • Temporary worsening of symptoms - at least in my experience - only last a few hours so that what is required is patience, not resignation.

I am still going to work on Tuesday (in the United States, Monday was a Holiday) because I have a team that requires me to approve their work before they can close their case.  If I didn't have people depending on me, I would take an extra day or two off and if you are in a psition where you can take time off following and exacerbation or pseudoexacerabation, I would urge you to do so.



So true: your nerves are damaged and new pathways will never work perfectly or they would have been used in the first place.  If I get really stressed about something I find that I can become very useless but after a short time I recover and it was as though it never happened............Sarah

A Journey through Light and Shadow


Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.