Enough is Enough.
Further to the previous nightmare and for the record.
2 days ago it all went wrong. I have been sliding down the exhaustion scale for weeks and at the point where staying conscious was becoming a full time job. Just not coping really, what with losing my left side and numbing down on the other too, having to move and to be honest just feeling like i'm on a fast track to vegetable-world. But still you try and keep going, not let much of it show. Well, the result was meltdown, my body just collapsed and that is an experience I really don't want to go through again, even for a few hours. I know i'm still skating on the edge of it.
Thank you Mac for being a superstar that day and Rica et al who offer invaluable advice. I've spoken to my doc and Sarah and Dr W kindly gave their thoughts too. My doc wants me to keep going with 1 x 200mg doxyi/day and normal Azith. I tried to keep going on just a single 200mg doxy yesterday but I think I just have to stop tbh.
I do not know what is going on and I do not know if the loss of the parts of my body that have slipped away over the last few months will return but I know I have to let my body try and recover anything it can. I also know i'm spending 24/7 right now in so much discomfort, inability and upset that it's draining me dry. So disappointed but i'm on a break to assess damage and try and get my body back to a position where it might be capable of dealing with the protocol. Any advice is always welcomed and appreciated xoxo
Notes for future ref: Symptoms: 09/05/12
Loss sensation left side from top of head to shoulder, arm/hand complete, there but less strong in leg/foot. Right hand less sensation, fingers numb. Mild vertigo constant. Pressure in head immense. Periods losing consciousness if pushed. "Seeing red" on any movement/exercise. Neck glands feel swollen but don't look it, sore throat, extremely itchy scalp/neck/shoulder. Nothing eases itching. Nausea. Heart sporadic, not feeling as if getting enough air. Vision patchy and variable. Constant minor headaches, with a few migraines thrown in. Extreme exhaustion, yawning 24/7, extreme weakness. Spatial awareness bad, bumping into things when walking, constantly hurting self because of lack of fine motor control or awareness where body parts are. Recurrent moments of muscle control loss in face/body - more like the 'giving up' for 10-15mins but do come back if I completely rest. L'hermittes constant. Lower back starting to ache and numb up (doesn't bode well for legs :/) Side of head with cerebral pain of last few weeks less bad, not making me tic so much. Groggy, exhausted, numb, swollen and itchy all in one. [Cut to 1x200mg Doxy 08/05/12, stopped all 09/05/12[