Eeeek is it really that long!

Submitted by Andesine on Fri, 2009-02-27 19:16

How embarassed am I? I just realised how long it's been since I was on here. Yikes.

I've been feeling so well and I've been so busy that time has just flown by, or is that the brain fog getting worse?

Well updates I suppose. One year on from diagnosis and I haven't had any relapses. I thought I was having one at Christmas but it turned out to be some ghastly virus as the OH got it as well.

My balance is pretty reasonable as long as I'm not trying to do anything dodgy on one leg whilst not concentrating. The painful finger splits have completely gone. I'm not forgetting things as much as I used to. No more Nystagmus unless I'm really tired. The only thing that's really still there in full force is the Tinnitus but that may have nothing to do with the MS, just my predilection as a teenager for loud Discos.

Onwards and onwards.

 

It's really good to hear from you! What a good report to be giving us after a long space of time. How are your reactions to meds and pulses currently?

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Hi Jim,

I'm getting no odd reactions to anything. It's all perfectly normal.

When I got the disgusting virus at Christmas which was, according to Doc not Flu and not Norovirus but some sort of mixture, I was unable to take my pills as they just came straight back, as did anything else I swallowed. Once that subsided and I was back on the abx again I felt so much better it was amazing.

All the weight I had put on that I was really bothered about has now dropped off and I'm back down to 9 stone and in my size 10s which is great, it's like having a whole new wardrobe of old friends.

All in all I feel really good, so much so I keep wondering if I actually feel bad but have just got used to it. Image removed.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

I hope you get better and better, and look back and realize you felt bad today and just didn't have anything better to compare it to.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Thank you, you too. Image removed.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

"I'm not forgetting things as much as I used to. "

Apart from asking for a new scrip when you should, obviously.  As for doing dodgy things on one leg, the mind boggles..............Sarah

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

No, that's not forgetting things. That's just assuming there were still several packs left then finding out they were something else entirely just with the same colour pack. Image removed.

Come to think of it, the day I sent David the repeat request I have a feeling was the day Google lost all their mail servers so maybe it vanished into the great trash can in the sky.

 

One legged dodgy things:

trying to reach stuff on high shelves

trying to open fanlight windows without steps

trying to rush down stairs

heading in one direction then remembering you left something behind and spinning round without remembering you're halfway up/down the stairs

 

Sorry to disappoint you Image removed.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

Nice to hear you're doing well (wondered where you were). PS I can do the occasional dodgy thing on one leg too now?Image removed.  and I went to see my neuro a week or two ago and Mr. W. didn't seem interested in my apparent improvement, but Ho - Hum.

 It starts to get difficult to tell just what is/was bad/better doesn't it?

 Hey, I thought it was just me getting the painful split finger thing, which has now gone by the way.

Be Healthy and Lucky.

Sarcoidosis 10yrs. before dx.SPMS-2003 that's it. Research - Don't Believe Them.

CAP 16/04/2008-05/10/09 -  Now Daily: 10kIU D3, Vit.C 1g, Calcium, Ginkgo Biloba, Pro-biotic yog, L-Arginine 1gx6, Magnesium Glycinate 220mgx6.

Ahhh yes Mr W. He of the no interest whatsoever. How come you even got to see him. After he told me to go away and come back when I got worse I've heard neither hide nor hair. Not been near my GP or him since Feb 4th 2008.

Finger splits. How painful are those and it's the speed they open up and then close again that got me. I saw 2 skin specialists who gave me Aqueous Cream which just made it worse. Couldn't believe it when the abx cleared it up.

We're in good company though. David W got them on his feet. Ouch.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April