Cpnhelp.org

 None in NYC?

Nancy

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PPMSⁱ-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPⁱ 3/2/07 - Now (1/10) doing 100 doxyⁱ; 125

Did you not get my pm?

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Michèle (UK) GFAⁱ: Wheldon CAPⁱ 1st May 2006. Daily Doxyⁱ, Azi MWF, metroⁱ pulse.

Yes, thank you. I'm sorry, I thought I had pm'ed you back. (Hey look, I've got an excuse -- msⁱ + broken ankle.)  I passed all the info on to my friend. I simply thought that I remembered a doctor in Manhattan. She would be travelling up from Maryland and the bus, of course, drops her in Manhattan. Being in the UK you may not realize that all of these doctors, except the one in the upstate NY city of Rhinebeck, are in outer suburbs of the city. But really, the info was VERY much appreciated. Thank you Michele.

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PPMSⁱ-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPⁱ 3/2/07 - Now (1/10) doing 100 doxyⁱ; 125

You're welcome.

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Michèle (UK) GFAⁱ: Wheldon CAPⁱ 1st May 2006. Daily Doxyⁱ, Azi MWF, metroⁱ pulse.

Why not travel to Tennessee to Dr. Sriram or someone else at Vanderbilt. Looks about the same distance. Linda

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If there is no wind..............row New Hampshire USA on CAPⁱ since 2-4-2006. Stopped 6/2009. diagnosed MSⁱ 1988. Diagnosed Bb 2/09. LLMD 6/09 Was on mepron 750 mg 2x day. was on following til 6/09 Then on 500mg bactrum 2x day, 1000 mg biaxin til 11/11/

There is an inexpensive bus that you can take to Philly and commuter lines out to the suburbs. From D.C. to Vanderbilt is FAR and expensive for air + hotel. She has friends in NYC that she can stay with. Her best option would be a Maryland doctor that took Medicaid but that doesn't seem likely. If only there were someone at Johns Hopkins, but the neurology dept. there threw me out. BTW, she doesn't own a car.

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PPMSⁱ-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPⁱ 3/2/07 - Now (1/10) doing 100 doxyⁱ; 125