MediTest
27 Apr 2018
Author
hwebb
Title

Dr Paul Thibault - current position on the role of CPn in CCSVI and MS

Body

From CCSVI / CCSVO specialist Dr Paul Thibault :The concern I have is that people (medical doctors, patients, and the general public) will become disillusioned by the many studies (including Zamboni et al), which refute the use of venoplasty to achieve a "cure" for MS. Zamboni has highlighted the connection between MS and a chronic venous disease, which I appreciate.

Comments

From Singularity Hub, 2009."My own skepticism about CCSVI is partially augmented by a remarkable coincidence around Zamboni’s discoveries. First, his wife Elena Ravalli began to suffer from MS in 1995. This inspired Zamboni to research the disease. Zamboni  is a vascular surgeon and he just so happens to discover that MS is a vascular condition with a surgical cure. I ask myself, if an orthopedic surgeon had a spouse who developed MS, would the cure for MS magically be a bone graft?"https://singularityhub.com/2009/12/02/cautious-optimism-in-response-to-cure-for-multiple-sclerosis/Well, I guess that many people can and do say that about David and his use of the Vanderbilt treatment for his wife.  The fact that Elena Ravalli does not spend any time taking about her CCSVI treatment on the internet, does not mean that her treatment is now stopping to work.  It is just her choice.  Mine was to talk about my treatment to make it more well known.  Since we are nearly the same age and were noticeably ill for about the same time, although my then RRMS started much earlier, I do hope her treatment is still working.As Thibault says, Zamboni highlighted the connection between MS and chronic (venous) disease, which must be applauded.........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I have no medical background, whatsoever.  I can understand the premise behind CCSVI,  although neither my current or previous consultants can understand how it could benefit MS. My husband, naturally,  would sell everything we have, to rid my MS, fortunately I had a small windfall in 2011. I had CCSVI, in  Warsaw, Poland,and, as with all 'miracles', I Shall never know if it made a difference. At the time my sight was the most affected and my colour perception immediately improved. Things have degraded since, but, who knows how I would be now? After all these years my condition could be mch worse, it could be better, but it was worth the money, if only, because it made my hsband feel so much more involved, and there are two of us in this relationship, dealing with this disease, which has, also, been true for David and Sarah and Mr and Mrs Zamboni. I can't think of a better incentive than love!

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Hi there, I too tried CCSVI.  Once in India and once in the US.  I noticed no improvements, but I too am glad I tried it!  First because I may have progressed faster without it????? and secondly because I don't sit around wondering if it could have worked for me ...If I understand Paul Thibault correctly it may be that I went for CCSVI too soon.  Maybe you need to be on CAP for enough time to get rid of the infection before you try CCSVI?

Paul Thibault is saying you could have avoided the surgery and treated the microbe contributing to your vascular disease using antibiotic.

---------------------------------------------------------------------------------------------------------------Doing Thibault protocol (NAC/mino/roxi/tini/nattokinase)...but considering morphing to Stratton protocol

Sounds like you are saying you treated your vascular disease (CCSVI) using angioplasty? The vascular disease CCSVI is treated with antibiotics these days.

---------------------------------------------------------------------------------------------------------------Doing Thibault protocol (NAC/mino/roxi/tini/nattokinase)...but considering morphing to Stratton protocol

D W

Jane, I’m glad that Sarah didn’t get hitched to her erstwhile admirer, an accountant. Love has a lot to answer for.

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

No chance of that, David: he came to meet me fom a Friends of the Earth meeting in his ridiculously expensive new car and he would have dumped me as soon as my hand gave out for the fiirst time.........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

It's nice to hear that so many of you have supportive spouses. I can't say the same about myself. My own husband (or better ex husband) slowly but stedily deprived us of moral, physical, emotional and finiancial resourses leaving me and our two year old daughter  fend for ourselves. Anyway, he would have done the same even if I was the healthiest person on earth. That's just the way he is.Sorry, I don't mean to highjack this post nor to cry overmyself. I just needed to vent.

- Long time sufferer of Chronic Fatigue Syndrome since late 1980's -
-Recent exams confirmed:
-Chronic Fatigue Syndrome, Environmental Hypersensitivity Syndrome likely related to MSIDS (multiple system infectious disease syndrome);
-Laboratory confirmed chronic Lyme (Borreliosis), Bartonella, Rickettsial infection and Babesiosis;
-Environmental toxicity is suspected with potential chemicals;
-Chronic pelvic infections (yeast/mycoplasma/enterococcus) likely related to long term immune suppression from Lyme.
I am on long term antibiotic therapy and supplements since April 2018.

Vent if you want to: hopefully it will make you feel better. It is never good to hide things inside.......................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I agree with Sarah! Vent to us if it helps! We can’t do much, but, we will give you our support!

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro