Don't know if cap is helping or not

Submitted by Lynnp on Wed, 2009-11-11 16:21

I am usually taking 5 - 6 grams of Vita c a day.  I up it to 10,000 if I feel a cold coming on.  The only thing I can tell from taking thyroid meds is my feet and hands are not like ice anymore.  I still feel bad most of the time.  Lately the neck and back pain are really bad.  Almost screaming bad at times.  I really can't tell if the cap is helping or not.  I know my neck and shoulder pain has gotten worse since starting cap.  I am swollen a lot more.  I had the pophyria symtoms before cap.  Fibro since 1995.  I know I have multiple infections from 20 years of constant antibiotics for constant sinus infections.  Many iv antibiotics for 6 and 8 weeks at a time.  So probably fungal and bacterial loads of stuff.  I am still on cap and will stay on it as long as the doc will let me in hopes of feeling better one day.  It's been a year since I started.

Lynn

My response to this is decidedly monotonous:  this is seemingly forever.  I remember so many aches, so much pain, so much increase of symptoms.  Every day I again realized that if this didn't work, I had only one other choice.  I have been at it for five years and soon three months.  I have another monotonous thing:  it has been so worth it.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Thanks for the encouragement.  How long did it take you to start having some good days?

FMS/CFS 1995. tinnitus, ibs, sinusitis, EBV, NAC 2400mg, valtrex, cortef, armour, doxy, biaxin, tini, vita c 5 - 10,000 daily 

Pretty fuzzy about that, but I think it was about a year and a half. That I when I began to get "whispers" and wrote that I would feel better for about five minutes, then it was time to do another pulse. For years here, we talked frequently about the tiny step forward and two back.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am