Diplopia, Nystagmus and Heart Problems (and many more)
After reading the forum for quite some type I decided to make my first post, first of all I want to thank you for all the information that you provide, I also want to apologize for my poor English.
I will start by giving a quick description of my health deterioration in the last few years. Although the last 5+ years I could sense that something was wrong with me, it started to get really ungly at December 2013 when I become ill, it was like flu or a cold but this time I was feeling REALLY sick, I didn't pay too much attention at this time but some days or weeks later I started to have some scary faintings, a few times I was waking up at 04:00 or 05:00 in the morning just to faint, at times I also had a strange sensation that I wasn't able to get much air through my lungs although I was breathing normally.
The next days I visited a pathologist but he cound not find anything wrong with me, at that time I also had some minor pains in different parts of the body like near my ribs or back or in muscle groups, but nothing to make me to seriusly worry about.
Some more days passed and then the first signs of Diplopia apeared, at first I tried to ignore it and hoped to resolve by it's own, but the scary faintings returned, so after having diplopia for 3 days I decided to visit an ophthalmologist and he then send me to an neulologist, The morning I was going to my second appointent with the neurologist I was feeling so sick and faint that I visited the Hospital ER, while my brother was driving me there, I was in the back sits feeling faint for 60minutes.
I stayed in the hospital for 3 days, after 2 MRI's, 1 CT scan, lumbar puncture and lots of other tests the doctors could not find anything wrong, every test was normal, the only abnormal test was that lymphocytes(both absolute number and percentage value) were below reference values. At that time I learned that I also had nystagmus and also my right face was really weak and I could not raire my right eyebrown or smile normaly. After 3 days X 1g methylpredisone I was able to leave the hospital with some signs of improvement in my diplopia, later I recieved test results that showed that I had oligoclonal bands, both in serum and spine fluid and it was supposed to be something good.
Next days and weeks diplopia slowly started to go away but faintings and some other new weird symptoms remained. Waking up one morning I could not close my fists, my grip was non existant in both my hands, another visit to the neuro, but nerve conduction test was normal, the strange thing was that if I started slowly jogging there was a noticable improvement in my grip.
At about that time my heart also started beating somewhat strange, initially nothing to worry about but later I was feeling pressure, like someone had griped my heart and squezed it, burning pain in the area and sometimes cutting/tearing pain, lately I could feel like the area was somewhat swollen, most recently I also have missed beats, the heart issues is something that really worries me. even though my cardiologist says "all is fine"
Almost 2,5 years passed since my admission to the hospital, and after many more long lasting fainting episodes and numerous other symptoms(tinnitus, tendons pain, yawing when trying to jog, nausea fainting in the morning) I visited a total of 8 different doctors and no one could help me.
I finally saw the video in youtube about C. Pneumoniae Sarah and Dr Wheldon, I learned about this site and Dr Wheldon's page so I did a C. Pnemoniae IgG,IgM test. Results was IgM Negative IgG 512 and a small memo saying "Titers equal or greater to 512 is indicative of an accute infection" Btw I left the best part for the end, about 12 years ago I had a severe case of walking pneumoniae I was coughting non stop all the time(no blood in cought but it was a terible experience) and the cought never went away, I saw a major improvement in cought only after I started CAP about 3 months ago.
Althought its prety obvious that cpn is involved I would like to hear your opinions too, before I close this large post I would like to mention that after fainting there were two times that I had blood test drawn within 8 hours and the results in both cases showed that lymphocytes absolute number and percentage number was below reference values(-8% -25%), a third test done 24 hours after another fainting returned marginal normal results, is there any possible explanation for this? I think I read somewhere that cpn infects some white cells but I can't remember if it had anything to do with accute low lymphocyte drop.
Sorry for this stupidly long post and thanks in advance for any replies.
If anyone knows any doctor in Greece I could contact please send me a message.