Current Affairs - Housekeeping

I'm going to offer a bit of an apology and explanation, as a member here has pointed out he feels I've been overly critical.  (I'm wearing my editor hat right now, not my cpni-patient hat.)

In the past week or two, I've become highly sensitized to the blanket statements and rampant postings of a couple of prolific posters here on the site.  Of late, we're seeing too many posts unrelated to cpn treatment, too many blanket statements of so-called 'facts' that aren't facts at all and a few pointless posts that belong on someone's personal blog or facebook page, but not here.  I've been editing and querying and commenting to an extent that hasn't been necessary in a long time.

So, yes, I AM tending to zero in on comments that seem contradictory to our purpose here or posts that will lead new members to become confused or worse, be misdirected in how they undertake this protocol.  I probably AM being overly cautious and I'm sorry it seems heavy-handed. 

The credibility of this site is critical.  Nonsense speculations and having to wade through confusing, contradictory information is off-putting to new members and brain-fogged patients.

We have members here who know a lot about a little and members who know nothing at all and a handful who are professionals or who have become HIGHLY educated patients or caregivers.  I'm going to ask those with knowledge and some standing in this group to please be mindful of what you say and how your posts will be received by the uninitiated patients and physicians and helpers who come to this site for knowledge and direction.  That will help me to do my housekeeping job here.

 

Well said Mac!! We all were brain fogged once............Sarah 

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Well said Mac, I hope you will say if I ever make unhelpful posts, I can take it! Honest!

MSi symptoms began in 2001 DXi RRMSi in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow

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