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Crohn's Disease -- CAP success?Submitted by macorn on Fri, 2008-11-14 20:57. I have a dear friend with a son-in-law with Chrohn's disease.
I will suggest this site but it'd be nice to hear about experiences from those with Crohn before I do so. She knows I'm on CAPi for my MSi and she knows I'm having a tough time without any improvement YET. Thanks ___________________________________________________________ Mary Ann SPMSii. Dx 1991. EDSSii 6.5. Weldon CAPi; 3/08 NAC 2400, Doxy & Azith. 7th metroii pulse 12/08 »
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Mary Ann,before I started
Mary Ann,
before I started the CAPi, I was getting excruciating abdominal pain, I thought I was dying. The pain was much worse than a 36 hour child birth & I thought that was bad enough.
We know the CPni can go anywhere in our bodies. Is it a coincidence that we are experiencing huge numbers of "immunei" illnesses. I don't think so.
If I had Crohns, colitis, heart problems, or any other problem of an organ I would go after the CPn. It can do more harm than we know at this time.
Why take the chance of having to face horrific surgery where they take your intestines out as they are damaged.
I am getting better & even a small improvement, like halting progression, is welcome & significant imhoi.
peace
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 daysMy friend met a women with
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On Wheldon protocol for MSi since April, 2006. doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma
Widdy, I'm pretty sure that
Widdy, I'm pretty sure that I agree with you. As I continue to struggle, I can report that i have two kids - one is 26 and the other 24. The older one was diagnosed at age 8 with ulcerative colitis.Prednisone and numerous drugs were ofered and the cure was remove the colon and get a bag. I said NO. I searched everywhere until I found an american doctor who treated her with antis. ove a 2 day period bringing her colon back to level of newborn. There's more involved but she was cured - hopefully forever - is not I'd have her do it again.All"under the table" and it still is. That was 1992. My son got the same years later and was treated with same protocol and so far remains well.
This seems to be why I believe that we are all infected- me with diagnosed lyme, mycoplasma, bartonella, MS, them with IBD. I'll never know for sure.
Wiggy, I believe you're on the right track. I do wish I knew for sure!!!!!
Ruthless, I agree totally with you also. You'll get there!!!!!!!!!!!!d
Always,
Loulou
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diagnosed MSi Jan.2000 , chronic neurological lyme disease Nov.2002.
doxyi 100 mg. 1BID. roxyi.150 mg.? BID,adding rifampin soon, pulsed tinii. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to