Creepy Crawlies

Submitted by Andesine on Tue, 2008-07-22 07:20

OK, we're now well into this and the pill taking is becoming very tiresome. I have to admit to lapsing with some of the less important supplements, mainly because I just couldn't face taking another pill which is maybe why I'm currently driven mad with what feels like ants running around under the skin of my left leg.

I have to keep checking to make sure nothing is running around on the outside of my leg, and there isn't, or, if there is then I have eye problems instead.

If this normal? Or is it me being odd again?

 

Hm, Andesine, normal, odd, neither I think, yet expected.    I enjoy your colorfully described blogs.   I might say neurosignals that are distorted may be expected events particularly with neurological involvement in the process of reversal on a CAP?  Will be interesting to see how many folks notice this.   I will say that with this past pulse I think I may have had the wisper of the "restless Leg" phenomena.  Thankfully it passed quickly for me.

Hoping for a quick resolution for you,

Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

I too get the crawlies & especially from the flagyl.  Sometimes it is the strangest thing, down the flagyl & then I can feel it start to course through my veins!

I have more RLS this time around as well, so I am...."antsy"  Last night I was a mm. from tossing my supper from the nausea so the beast is still living happily in my gut!

SLAY THE BEAST, take the supplements, choke them down.  I know how you feel about days where, ACCCKKKKK TOO EEEE, choke them aaaahhhhh down.

Up the moppers & expect the unexpected!

 

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

My pet theory about this, no not internal pets (horrors!), is that those tiny EB's get lodged in small vessels in the subdermal layers, and killing various cells in these regions gives the creepy crawlies. I got this originally more from NAC than from flagyl or the other abx, hence my connecting it solely with the EB's. Just speculation, but I'm sticking to it. Er, well I guess it's sticking to me!

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Much better today, I think the ant colony moved out overnight thank Heavens. That was driving me loopy.

Interestingly I started my second pulse last night. Wonder if the Metro drove them out?

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

I believe the crawly feeling is common to MSers and is just one of those things that you hardly noticed before you were told that you had MS. I remember being convinced that there were fleas in my bed at times, even though the cats were well protected against them. I'd strip the bed and go on a hunt for any evidence of creepy crawlies. Now I know that it's just an MS thing and the abx are stirring things up so I down more Vit C which seems to help.

speedbird

Ooooh poor cats. I've been drowning them in flea powder! LOL. Ollie is most unimpressed.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

Andesine, This happened to me for the first time last week - I told my husband I feel like a butterfly is stuck in my right calf - went on for a few days. About four days later I felt it on left calf. Creepy

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Mine has gone now. As soon as I started this pulse it eased up, I had a couple of short episodes and then it was gone completely. Not has any problem there since.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

Thanks for the recommendation. I'm going to add a bit more to my morning supplements. It will be great to stop rubbing at my cheeks and nose in public...

Corinna | GFA. Wheldon Protocol: 4–8/08. Can't kill the yeast.

I had to go back and pull this one up, when last 3 nights hubby has jiggled me from the bed with ?RLS which he hasnt had in long while severe RLS which started after about 10th day of doxy......

I did talk to his doctor about this theory of infection and he didnt tell me I was crazy...he did say hubbys' symptoms seemed systemic? and put him back on Doxy. 100mg twice daily for 30 days...he said if this seems to help we will consider what to do next....its a start...

At hospital I talked with neurologist and another doctor who just couldnt even consider the posibility of this....I think they didnt even hear another thing I said after I ask about possibility of antibiotics...when off on this long spill about statistics,  and the FDA... blah, blah, blah....

I thought to myself what a sad life if you cant have hope and faith....

I admit I was surprised at their response....and realized this may be harder than I thought finding a doctor to get totally on board with this...

 Mono 1984, samonella 1985,Hives? flu like symptoms 2003 relapsing, Boarder line erichilosis 2004, discoid lupus 2004, chronic catscratch disease 2005, relapsing polychondritis 2007, HTN, Anxiety, Depression, pain issues, Mother has MS. Chronic rash, seve