27 Apr 2018
Author
Red
Title

Cpn & Rosacea - Your help/comments please

Body

Hi All,Newbie here, and could use some help.   What a great site.

Comments

 Red- These are some great inter-connections you've made. You might email this to Dr. Stratton and see what he says. You can find his email at the Vanderbilt University website. Cpn certainly would seem to be a possible contributing agent because of it's highly inflammatory, TH2 nature. It certainly would be worth being tested at the least, along with the list of other infections you've found.

On Wheldon/Stratton protocol for Cpn in CFS/FMS since December 2004.

Red

Jim,

 Thanks so much for your quick reply.   I've actually sent the above email to both Dr Wheldon and Dr Stratton.  Dr Wheldon replied that he tends to treat MS patients, and suggested I try this site.    I didn't hear anything back from Dr Stratton.   It could have been lost in his e-mail so I'll give it another try.    Are there any other researchers that work with him at Vanderbilt that I might have better luck contacting?

Again, great site.   Thanks again so much...

Red 

 

 

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Gee, Red, you are at the cutting edge of something here. I don't know of other researchers. You might scan some of the literature and find out some of the main authors in Cpn and rosacea and give them a try. 

From what you are finding on this site, does it look like the combination abx protocol might be worth and empirical course for you? Your might find out a lot just by your reactions to treatment. 

On Wheldon/Stratton protocol for Cpn in CFS/FMS since December 2004.

Red

I sure hope so Jim as it would be nice to find a course of treatment that actually might "cure" this disease rather than just treats some of the symptoms.   I'll keep trying to reach/interest researchers in the area...

Interesting that many of the antibiotics used in the Wheldon and Strattford protocols(doxycycline, azithromycin, and metronidazole) have all been used in treating rosacea symptoms, although individually and often in lower doses.  Topical metronidazole is the gold standard for treating rosacea, although oral metronidazole has been used as well.   Doxy has been used for years, but more and more are moving to Periostat (submicrobial dose of doxy) for long-term treatment.   I'm afraid that the anti-inflammatory effects of this dosage may lead to a worsening of infection (similar to the way 5-LOX inhibitors seem to lead to a worsening of infection), and I've seen a couple of posts on the acne boards which suggest that some find that Periostat stops working after a period of time.   I'm wondering if this implies that an infection may have worsened while they were on it.   Azithromycin has also been used effectively at 250mg 3x per week and seems to be gaining a lot of interest in rosacea too.

 Unfortunately, I fear without some further research, getting a Derm to prescribe the Wheldon or Strattford protocols for rosacea will be almost impossible though.  Those rosaceans who also have Asthma, CFS or FMS symptoms might have a better chance of getting on the protocols...

Red 

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

 Your comment "Periostat stops working after a period of time." is likely due to the monotherapy creating resistance in the organism. The importance of the dual abx is to prevent just this, as well as the higher doses. I have the same worry with all these low-dose antibiotic protocols like low dose minocycline for arthritus.

On Wheldon/Stratton protocol for Cpn in CFS/FMS since December 2004.

Red, you may want to try adding more essential fatty acids such as evening primrose oil. And removing sugars and simple starches from your diet and adding more cold water fish such as salmon.
I have had a patch of eczema on my elbow and if I am taking evening primrose, borgage and fish oils, it disappears.
See if this helps and let us know,
Raven

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath

Here's my anecdotal comment.....I started Doxy/Azithro/Ampicillin/Flagyl, along with all of the supplements and NAC.  I have mild rosacea but have continued to get acne in my 40's which I don't think is common.  Anyway, I noticed after starting that my skin looked better than ever.  Then after 3 weeks I stopped the Flagyl for a break and the last 2 days my face has broken out.  Probably a coincidence but?

Red