Could Medicine be catching up? Make it so!

I haven't looked at the eMedicine definition of Chronic Fatigue Syndrome for a while. Low and behold, they actually said this in the first definitional paragraph:

Chronic fatigue syndrome (CFS) is a disorder of unknown etiology, which probably has an infectious basis.

 Really! Go see for yourself. They even mention Chlamydia pneumoniae in the article. As one of the potential causes for CFS. I just about fell out of my computer chair. eMedicine is considered a "standard of care" reference, so this is a big deal. Their lit review on the immune and other abnormalities in CFS is also quite good. 

interesting they mention CPn, unfortunately the treatment is 3 weeks of doxy & all better!  I also wondered about their philosophy that FMS & CFS are "rarely" seen together.  That means I am a rare bird!!

They have moved over to the right direction.  The times they are a changing Martha!

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 2-6-08 7th pulse 2 X 375 mg 2day+

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

From your computer to God's ear, Captain Picard.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I thought this was excellent description/medical defintion and thank you for posting it.  It is good to see a proper definition/description, as they are often very vague mumbles about tiredness - or else very abstract medical jargonese.   Thanks.

Blackfoot

M.E./CFS 20 years, intermittent.  Wheldon Protocol - Started NAC and supplements Sept 2007. Doxy and Roxy full dose by Dec '07.  First Flagyl pulse January 2008.

M.E./CFS 20 years, intermittent.  Wheldon Protocol - Started NAC and supplements Sept 2007. Doxy and Roxy full dose by Dec '07.  First Flagyl pulse January 2008.  Changed to Tini in December 2008.  Stopped CAP in February 2009 at pulse 16.

It really is pretty good. I like the fact that post-exertional malaise is mentioned.

 

I hope the 'double cardiac capacity' test catches on. It could provide a good way to measure the impact of the disease. Not wonderful for the testee, but pretty conclusive. 

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Currently: doxy & zith -- continuous; metronidazole -- 5 days on, 9 days off.

Get the research results you paid for: support Open Access

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

Finally!!  This is well written/defined.  But they have a way to go with regard to how to treat CPN.  Also interesting the author, Burke A Cunha, MD, MACP, is a board member of the Infectious Diseases Society of America... think it'll help??? Hope so. 

 

Jeanneroz ~CPN 4/2007; HHV6, EBV, CFIDS/FM- diagnosed: 6/07; IBS, prior kidney infections, food allergies, hypothyroid (RAI for Graves in 1998), Adrenal issues; prior bronchitis/sinus problems. 200 mg/doxy daily & 250 mg AZITH M/W/F, supplmnts

JeanneRoz ~ DX'd w/ CPN 4/2007; 6/07 -"officially" dx'd w/CFIDS/FM; also: HHV6, EBV, IBS-C, 100 Doxy:BID; 500 mg Biaxin BID; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni