27 Apr 2018
Author
jchatagnier1
Title

Correct treatment for cpn??

Body

I have been taking azithromycin 250mg once daily x 4 days then off 3 days and repeat for about 6 months. My doctor just added rifampin 300mg once a day to my regimen. He said I should be on this treatment plan for another 9 months minimum. He told me this is the new protocol for cpn. Should I trust this or find a new doctor?? Help! I just want to get better quick!!

Comments

We take azithromycin every monday, wednesday and friday, to keep a fairly even level of it in our bodies at all times.  However, if your doctor's name is Sriram, Stratton or Powell, then go with what they tell you.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thanks for your reply!! I'm still not sure if i'm taking it correctly but my dr. seems to think it will work. I live in Louisiana and i just don't think there is another dr. in the area that knows anything about cpn. I've searched everywhere and they all have to research cpn on the internet to find out what it even is. So, I guess i'm gonna stay on this plan.

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements. 

Maybe you can explain to your doctor that the reason two antibiotics are used simultaneously is to eliminate the possibility of the cpn developing resistance to a single medication.  I have a feeling your doctor thinks they're doing you a favor by giving you a 'break' from azithromycin each week, but this type of treatment could be promoting resistance.  If you go to Dr. David Wheldon's website, even though it says treatment plan for MS, it outlines the treatment plan for CPn infection.  There, you will see the rationale for the medications and supplements on this protocol.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Ok, I will definitely do that!! It all kinda confuses me because There seems to be a few different treatment plans and I'm not sure why. But I know my dr told me that they just came out with this new plan he put me on but I just don't understand how it works. Thanks so much for the reply!!

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements. 

JC - Just for the heck of it, why don't you ask your dr who the 'they' is that devised this new plan and what their rationale is for doing it that way.  It always pays to be an educated patient.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

 JChat let us know if you find out from you doc who advised your plan.   It sound a bit like a Lyme plan to me with the days off but who knows????   Hope you can find out.Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
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Thanks so much guys!! Yeah, i definitely need to find out more. It's just everytime i speak to him its really quick and brief. I'm going to call today and ask where he got the plan. He told me last time that there are doctors doing studies in Boston?? and somewhere else but my brain just doesn't function like it used to. I will let yall know as soon as I find out more!! Thanks again!!

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements. 

Ok guys!! I finally spoke with my dr and he told me that the protocol he is using is from like 18 years ago. Great. But I did make another appt with him so we can sit down and discuss another treatment because this one is not working. I think it's more along the lines of the Sririam plan, but I probably need to add Metronidazole and the calcium/sodium pyruvate. It's just SO HARD to find a dr close in the area that knows exactly what cpni is and how to treat it. If ya'll know of a dr. in the Louisiana area please let me know!! Thanks so much!! 

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements. 

What you need to do is to take the treatment described by Mackintosh above.  That is what she did, I did and most people here did!  You eventually add metronidazole or tinidazole but you don’t need calcium pyruvate.  Take this pdf to show your doctor because it explains it all and has many references:  http://www.davidwheldon.co.uk/ms-treatment.pdf  ......................SarahA Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks Sarah! Yes, I'm going to bring all the info to him and hopefully he will understand it a little more. He told me that he had me on this plan because he didn't want to put me on more pills than I needed. He said that the rifampin and azithromycin should kill it. But obviously not. Since i'm already taking these 2, do you think I should just try adding the metronidazole or should I just stop this plan all together and start the wheldon plan??

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements. 

My original protocol was Rifampin and Doxy, then added flagyl after four months, A few nonths after that I added Azith.  It definitely works. Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Thanks so much Rica!! That makes me feel a lil better:) It looks like the amount you're taking is 2-3x more than what my doc has me on so I might need to increase my mg. I also will be asking him to add the flagyl to my plan. 

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements. 

JC, I fully agree with your doctor that he doesn’t want toput you on too many pills, however rifampicin is a very  toxic drug which many people find too hard to handle.  You say yourself that what you are on at the moment is not working, therefore you would probably do better by taking doxycycline, azithromycin and pulses of metronidazole (flagyl.)  That is the most common protocol here.  Take David’s pdf to show your doctor: it is for many more things than MS: http://www.davidwheldon.co.uk/ms-treatment.pdf  ......................SarahA Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Good advice! Thanks so much:) i'm going to take all the info from this site and give it to my doc at our next appt. Hopefully he will agree:)

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements. 

JC, personally I think that to take ALL the information available from this site to how your doctor will not have the right effect: he will be totally overwhelmed and end up doing what most doctors do, which is just to throw the lot away.  If you take just David’s pdf file, which is neat and short, you will stand more chance of getting him to read it.  Then work out from there: gain his attention and then give more information as requested.  You can easily explain that the title “ms treatment” means a lot more than just one disease............................SarahA Journey through Light and Shadow  

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Yeah, you're probably right. I didn't think about it that way:) Thank you!! Hopefully he will understand, if not i guess i'll be looking for a new doc.

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements. 

Ok guys, I finally got my dr. to treat me via the Wheldon protocol!!! yay!! i went back for an appt because I was starting to feel really terrible again and i asked him to test my igg and iga levels again (thank God) he did. My levels were HIGHER than when i was first tested with cpn!!!!!! Thankfully I had printed out the info ya'll told me to and brought it to him. He called back 3 weeks later and told me to stop the rifampin and only take the azith mwf and just use the wheldon protocol. My mom helped me buy some of the supplements (she's my hero:D) and so today i start my new treatment plan. Finally. After 4 years of trying to find someone to believe that something is wrong with me and help me get healthy, hopefully this is it. It's starting to get impossible to take care of my 14 month old. So, I'm really praying this works. 

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements. 

Congratulations!   Having a supporting doctor is a huge asset.  We will be here to cheer you on.Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Thanks so much Rica!! I'm actually excited about starting it! Lol.

Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements.