9 Apr 2012 11:54 pm
27 Apr 2018
Title
Confused about which tests to have and what is available in my country
Body
H all ..I have had joint pain, chest pain.. Feels like pleurisy .. And psoriasis and a low O2 sats... I have had every test done known to man and have had chlamidia in the chest before ...the best I have ever felt was after a long term dose of antibiotics but soon it returned .. I Never get as Much as a cold or flu....I have been sick for six years .. Slowly getting much worse with organs now showing signs of damage... Even with the damage the doctors just don't like to listen to patients in my country.. They are very very arrogant ...
Comments
10 Apr 2012 12:49 am
I pray I do.... Almost had
I pray I do.... Almost had enough of all this.. Thanks for your help
10 Apr 2012 07:29 pm
Anybody?
Anybody?
Zouk, Many members only check
Zouk, Many members only check in here once a week, or so. Less, if they're on vacation or busy getting back to their lives after they start improving on treatment. Many only check in on the weekend.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
10 Apr 2012 08:20 pm
ZoukPlease hang on a while
ZoukPlease hang on a while longer. As Mac said, we have some really neat Australians here - one is sugarglider - your fascinating flying squirrel's name. But she and BeezNeez are not here every day. I believe one is in Melbourne; not sure about the other.Rica
3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan In for the duration.&am
11 Apr 2012 02:43 am
Hi there Zouk First off,
Hi there Zouk First off, which State do you reside? That will help track down someone for treatment. Just be aware that we do not have any Labs in Australia that will confirm Cpn infection. Australia is very short on Labs that do any REAL tests actually.You can always start on NAC straight up that may give you an indication of your infection. From my 30 year history, I'm sure we have multiple species of infection and this protocol eventually works through most of them.I've been on antibiotic protocols since June 2005 and have regained a large portion of my life. The one important thing I've gained is STABILITY. Meaning I don't have any crashes any more and that's a wonderful thing let me assure you.I'm 65 and a half now and I'm not expecting a'cure', Stability has given me more certainty of staying upright and maintaining some relationships and regular volunteer work and these have certaily improved my quality of life.Look forward to hearing from you
CFS 32years/FM 14 years/ CRPS 5 years/. Previously MP 5 years. Off everything since 01/12/2012.
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25 May 2012 05:11 am
Thanks for that - what
Thanks for that - what exactly is NAT, and how do I start, I am now coughing up blood and have noises when bretahing, the doctors just wont do anything - they all just want to CT me all the time.. but I have had more exposure my mSv than the people of hiroshima over 7 ct's and 10 xrays - I just want to get this sorted but I dont know where to start, doctors are just not approachable... I am scared confused and realy worried.. I am sliding downhill fast..please tell me what the first step is?I am in Queensland Brisbane
ZoukIt is NAC -
ZoukIt is NAC - N-Acetyl-Cysteine , an amino acid that fights this bug and protects our liver whle we are doing this. We take 2400 mg every day. Look at David Wheldon's list of supplements and get on them as soon as you can. Have you had your Vit D3 checked? Get your number - it should be at least in the sixties.Rica
3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan In for the duration.&am
9 Apr 2012
Aussie members, please
Aussie members, please help?Zouk, We have a few Australian members who are getting proper abx treatment in your country, so someone should be able to help you out. It isn't as awful as you think!Watch your private messages, as most doctor and personal info can't be posted on the public board. But, you'll likely see a response or two here soon. Good luck!
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi