27 Apr 2018
Author
Wendy
Title

Communicating chronic CPN, Mycoplasma, & co-infections with doctors & specialists

Body

Obviously, these bugs we have come with a series of multiple health complications and diseases/disorders that we inevidably are sent to specialists/emergency rooms, sometimes walk in clinics etc. for.In my experience so far it has been all three. Most recently, in early September my GP (thank god for her) sent me to the emergency room for a ct scan because I was having severe chest wall pain. I chose Vanderbilt instead of my local hospital because I'm lucky enough to live roughly 40 minutes away. It's a better hospital and has done quite a lot of research on CPN. etc...

Comments

WendyFour years ago I had a bilateral mastectomy.  There are several to many of us here who have been where you are.  I never missed a dose of my abx and supplements.  I keep my Vit D level in the upper 80s to 100 and eat very, very well.  From what I understand, that is the very best defence we have for fighting cancer.  Please keep us posted.  Best of luck.Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

There are hundreds or thousands of people working in medicine at Vanderbilt.  Only a handful of them work with Stratton.  So don't equate "Vanderbilt" with having full awareness of Cpn.

Rita, thank you. I have a really positive outlook on things as far as the cancer goes. I was told to remain off of my treatments for the moment to give my body a break and wait for test results to come back.I do eat healthy, I have to. aside from the fact that my allergies help keep my diet in check I'm miserable if I cheat. I keep my D levels high and still suppliment with B vitamins because I'm exhausted if I don't.As my Grandmother would put it, I'm keeping my tail up. Norman, I realize that.I really just wanted to know how you guys explain to other doctors. My questions are: Should I have explaned? Does it matter for the surgery? Do my infections make it possible for the cancer to act differently in my body than someone without them? How do you relay this to an educated individual without sounding condescending? I am a graphic artist for goodness sake, not a doctor.How do you guys deal with this? If there are any physicians on here and if so what do you suggest?

One answer: as I was about to have gallbladder surgery, I told my surgeon I was on the protocol and told him which abx I was taking.  Since they put you on abx anyway  (to forestall post-surgical infection), he was more than happy for me to stay on my protocol. It was a non-issue. 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi