20 Dec 2021
Author
marvel
Title

depression from CAP

Body

hi,

since 12/9/21 im having depressive symptoms. i guess its coming from the CAP. im currently on doxy 100mg and azi 250mg mwf. ive had worse depression in my life before this. yet this is not very nice. i have no motivation to do anything. if i do something i have no joy doing it. i feel numb emotionally. i read here on the forum its a quite common thing while being on cap. 

ssri is not an option. ive read that sam-e might help (omg another supplement? i have no motivation to try anything new tbh).

Comments

hi,

since 12/9/21 im having depressive symptoms. i guess its coming from the CAP. im currently on doxy 100mg and azi 250mg mwf. ive had worse depression in my life before this. yet this is not very nice. i have no motivation to do anything. if i do something i have no joy doing it. i feel numb emotionally. i read here on the forum its a quite common thing while being on cap. 

ssri is not an option. ive read that sam-e might help (omg another supplement? i have no motivation to try anything new tbh).

anyone has an idea what i can do? i think its coming from inflammation/die off in my brain. sometimes i can really feel it in my brain that there is something like inflammation happening.

i use chlorella, q10, grape seed extract, vitamin e, vitamin b, l carnitine, nac, sod, pimrose.. like a lot of the recommende things already. 

anybody has any tip what i can do? just take more antioxidants? im reluctant popping another ibuprofen because i dont want to cause another problem for my body with this medication longterm. 

any input is appreciated.

 

chlamydia pneumoniae and mycoplasma pneumoniae since 2015 (antibodies tested positive 09/21, no test done before); 

Marvel you are sensible in not wanting to take an ssri, but the question I would like to ask is why you feel depressed in the first place. Has it just started since you began treatment or were you prone to it before? I became profoundly depressed after I was first diagnosed with profound secondary progressive multiple sclerosis, but a few days later David came home with a packet of doxycycline and told me to take the full day's dose together. So after a bit of arguing, I took 200mg of doxycyline all in one go. The result of this was that it gave me the runs, so the next day, I divided the dose into two amounts of two lots of 100mg. A couple of weeks later I started taking 300mg of roxithromycin, again divided into two and was starting to improve even before I started to take metronidazole. Depression vanished.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

i became depressed with having cpn right from the beginning. its one of the symptoms for me. but i did not become depressed when i became sick with cpn because i had bad thoughts about it or something. its just one of the cpn symptoms caused by inflammation or whatever. but usually only in winter in europe. 

funny thing is last time i was treated with minocycline i had my normal winter depression from cpn and my despression went away within some days. this time its the other way round. after some weeks i get the depression. 

i discontinued venlafaxine almost 10 months ago. to this day the side effect of blurry vision very close to my eye like 15cm did not disappear. https://rxisk.org/keeping-an-eye-on-the-ball-visual-problems-on-ssris/

i will only take an anti depressent again when i really have no other choice. they are bad drugs from my experience. i will even call them evil drugs because in the prescription leaflet it says side effects will disappear after some weeks. withdrawal is a total nightmare too and tapering off is definitely not making sure you get no withdrawal symptoms. im lucky at least my sexual problems (side effect) disappeared again. if you are unlucky you can also have a post ssri sexual dysfunction. hurray. oh man i really hate ssris and of course my "doctor" did not tell me ANY of this when he put me on it. 

i thought that the 5mg prednisone worked great for me on the first day. on the 2nd day i did not feel much from 5mg so i added another 3mg. still no improvement for my depression on the 2nd day. im not sure i will try it again. suppressing my immune system while having an infection does not sound like the best idea to me. 5mg is a low dose but i still feel uncomfortable taking it... 

oh well seems like i just have to wait this out. 

chlamydia pneumoniae and mycoplasma pneumoniae since 2015 (antibodies tested positive 09/21, no test done before); 

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chlamydia pneumoniae and mycoplasma pneumoniae since 2015 (antibodies tested positive 09/21, no test done before); 

Marvel, which actually came first, the depression or the Cpn? I am asking because real depression has never really been part of my life apart from the few days when I was told by my neurologist that my painting days were over. Then I sat in my studio and cried and cried whilst David was at work. But luckily it didn't last for long because before the weekend David came home with my first pack of doxycyline and he told me to take the whole day's dose of 200mg in one go. With me things started happening that very night.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

sorry for late reply

cpn came first. 100%

im still experiencing depression. im only on azi 250mg mwf and nac daily 1200mgx2. i cant take more right now. depression has definitely become better. ita still frustrating though. i wake up every day with the thought i dont want to live anymore. it goes away quickly after getting up. but this is where im at right now.

i might just order some sam-e

it feels like this will last forever. im on cap since november but still havent been able to introduce more than 1 antibiotic. im impatient. im afraid im going too slow and wasting my time. on the other hand if i add doxy it will give me more depression.

any other tips are welcome.

 

chlamydia pneumoniae and mycoplasma pneumoniae since 2015 (antibodies tested positive 09/21, no test done before); 

Marvel, when did your depression first start? When you took your first doxycycline or sometime after? I wish that I could help you but the only time that I have really suffered from depression was after my MS turned progressive and I realised what was happening.

David was astonished at what was happening to me and spent a few days of solid research. He discovered the research that was going on at Vanderbilt University Medical Unit, came home and started the treatment with a pack of doxycycline.  I had only taken antibiotics once before, for five days but I started to feel some improvement so quickly that my depression vanished.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Are you sure that it wasn't building up before and then afterwards CAP became the obvious reason to you?

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

the depressions are finally gone. they went away i think after around 4-6 months being on azi and doxy

i started my first metro pulse 9th of june 4 days of metro 400mg per day only. 

then i had food poisoning which is unrelated to the cap and i took a break from metro to give my microbiome a rest. 

took second pulse of metro starting 25th of july 5 days 3x400mg which was too much but i was getting so frustrated and impatient i wanted to do it. now im regretting ot of course. 

im still suffering from the fall out which is not depression but rahter pain. today i took a prednisone 5mg to see if it helps because today my headache is too much. a finger of my hand has a pain for some days now too. my left eye was light sensitive after the pulse. my right i gave me shooting pain which fortunately only lasted for some seconds when it appeared.

sometimes i think this disease can never be beaten even with abx. also its a long and painful process being on the abx. the results are there though and the abx are working. i have no choice i have to keep on taking them. 

doing some sauna once in a while to help with the treatment if i feel i can take it. 

 

im open for further suggestions which could help me with in any way. im not sure yet if a mycoplasma infection plays a role in my case too. the antibodies are positive. treatment is basically the same though. 

 

the doctors are still not very helpful in the whole process because theyve never done something like this. 

chlamydia pneumoniae and mycoplasma pneumoniae since 2015 (antibodies tested positive 09/21, no test done before); 

Sounds as though things are progressing well, Marvel. Slow and steady is the way to go. Yes, I think many of us can relate to overdoing it with the pulses, letting determination and impatience get the better over common sense.

I’ve always found increasing the detox - drinking lemon water and having Epsom salt baths or footbaths - helps reduce the inflammation from pulses. Sauna is good - but not too much too soon,  or that can make us feel worse too.

As you say, the results are there. Always a good sign.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)

ill order some epsom salt. did you take it orally too or just for bathing? i read you can take it orally too though im not sure what the purpose is. ive read its good for fasting but im not looking for a laxative

 

are you still on cap? i read some of your blog but the post where you were still taking abx was from 2016

chlamydia pneumoniae and mycoplasma pneumoniae since 2015 (antibodies tested positive 09/21, no test done before); 

I've only ever used the epsom salts in the bath.  Some people find they need to work up to it gradually, so footbaths can work well for that.  Don't try too much too quickly or it can stir up too many toxins.  I've always benefitted well from it though.

You made me realise it was probably time for an update here, as my last was 2016, so I've just done a blog post.  Hope you can find it.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)