22 Nov 2020
Author
sara_in_sydney
Title

How many people have eradicated their CPN via the CAP protocol and how long did it take?

Body

Hi,

Coming up to 2 years now on the CAP.  I was a bit premature in thinking it might have gone a year ago.  Progress is so slow, it is hard to measure, but I think I am able to do more than a year ago (when not affected by a virus, which is a frequent occurrence).

How many people have had success getting rid of CPN using the CAP?  And how long did it take you?

Comments

My Dr (who is a specialist in CFS) is of the opinion that if the antibiotics were going to work, they should have worked by now, although so far he is supporting me as I want to continue with them.  I fear if I stop now, I may get worse again and undo the hard work of the last 2 years.  On the other hand, I don't plan to be on antibiotics forever.  My liver AST and ALT appear continuously elevated, but not by too much.  My understanding is that this is common on the protocol.  

Any more thoughts on this?  Thanks for taking the time to read.

Sara

Not cured, but 2 years in with continuous improvement - so your doctor would be incorrect if he was my doctor... 

Mild, asymptomatic liver ezyme elevations are defined as less than five times the upper limit of normal - for perspective.

TomF - 50 yrs old, diagnosed CFS Jan.2000, CPN IGA 1:32 IGG 1:128 feb 2017

 

TomF, I think that there are lots of people on this site who would agree with you and would feel very miffed if they were told that two years was enough to get better.
Like Sara, I wouldn't have wanted to carry on with abx forever but after three and a half to four years I was confident enough to finish. And guess what? I could once more work as a fine-artist producing maybe better paintings than before.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Everyone's situation differs, I have CFS. Every Metronidazole pulse make my tissues burn and causes what I would describe as an injury. 

 

TomF - 50 yrs old, diagnosed CFS Jan.2000, CPN IGA 1:32 IGG 1:128 feb 2017

 

Dear Sarah

How have you been? Any news on whether David's death could be caused by a post Covid medical situation? The news of his passing is so difficult to digest. From your posts both of you were doing fine post Covid and there was nothing you wrote that suggested David could fall ill so seriously.

How have you been coping? It must be so very hard I cannot even begin to imagine.

My thoughts with you. Take care. Hope your walking has come back to what it was before your loss.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.