29 Sep 2020
Author
Jan Figtree2019
Title

Intermittent CAP + Tini Pulse #1 Completed

Body

Intermittent CAP + Tini Pulse #1 Completed

I finished my first Intermittent CAP + Tini pulse on Sunday, September 27th, 2020.

This is a 14-day Intermittent CAP including a full 5-day pulse of Tinidazole sandwiched in the middle.

It looked like this:  

September 14th through September 18th:  Roxi + Doxy

September 19th through September 22nd:  Roxi + Doxy + Tinidazole

September 23rd through September 27th:  Roxi + Doxy

I want to note that I stay on all recommended vitamins + supplements all the time.  No breaks.

Comments

Dear Jan,

truly amazing your journey and hopefully you have entered the final lap! Hurrah! So good to know you are doing well.

And you have been so good about giving detailed description of how the protocol worked for you and how you responded to the meds. Great. Dont stop writing on this site! Take care

Neena

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Comment by a patient taking NAG. I think it was on WEb MD:

I had severe progressive neuropathy which was diagnosed as guillain barre syndrome. Since NAG has been found to have positive effects in MS, I thought it was worth a try. I am basically symptom free now, and have been for 5 years, but the dosage I found to work is much higher than what I see people here taking. For the first 6 months, I took 12 capsules of 750mg twice a day, for a total of 18 grams per day. I started seeing significant results after about 3 months, although symptom progression stopped soon after I got up to that dosage. Now, I am on a maintenance dose of 7 capsules of 700mg twice a day, almost 10 grams. I find that I can reduce it to 6 capsules twice a day for a few weeks, but after that symptoms start to return. So 7 it is. If you have tried this supplement for auto-immune issues and it hasn't worked for you, try increasing the dosage as I did if you can, and see if you get better results.

 

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Thanks Neena for posting this about remyelination with n-acetyl glucosamine. This has been shown to work in the trusty old mouse model. Mice were used for testing thalidomide which my mother was offered for morning sickness when expecting me. I'm glad she refused it or I might have ended up with deformed or missing arms.

Now, we know that biotin can be safely taken in very high doses. The problem is, it takes rather a long time to work.  N-acetyl glucosamine should work quicker, but it can have side effects, especially in large doses and these side effects, including nausea and diahorroea you don't want when taking abx.

There are no reports here of how much of the stuff people with MS were given: the lady here has a different disease.

So try it if you want to, but I would suggest that although it might help in some way, the lady with guillain barré had her neuropathy return if she lowered the dose too much.

Sarah.

 

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Dear Sarah'

thanks for posting above on NAG. Havent yet ordered it for Sonal. A post above on comment by someone taking NAg said he/she took it for Guillain Barr after reading of its positive effects on MS. Very heavy dose -- some 12 capsules of 700 mg twice a day for three months and then reduced to 7 capsules of 700 mg twice a day. Thats a heavy dose. The patient didnt say anything on diarrhoea or nausea. But others who tried and gave up did.

I am horriofied that tahlidomide had shown to do well on mice models but had such disastrous effcts on humans. I only felt that NAG was a or sounded like a harmless sugar found in the shell of shellfish of various kinds so perhaps worth a try. But maybe not yet. I want to see get back on track with a few TINi pulses before adding something else. Will keep you posted. Does David have a thought on this NAG since he must be familiar with this molecule?

Hope you and David are out of the post Covid effects. Take care.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Neena, you must keep in mind that the combined antibiotic protocol itself remyelinates. How else would I have been able to go from a person with rapidly developing progressive MS, who found herself whilst still only 47 unable to do hardly anything and whose husband was advised to find a nursing home for  to live out her her remaining days, to someone who was able in just a few years, to be producing some of her best work?

In 2004 the aptly named Fat Face had told me that my painting days were over. We proved him wrong.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Dear Sarah Chris and all

Yes you are absolutely right. Sonal has now completed two TINI pulses (apart from the 13 or so of flagyl till March this year when she took a break from pulsing but continued the other two antibiotics plus supplements).

During the second pulse too she felt very weak and exhausted, perhaps a sign that the abx was working, maybe producing debris toxics that her system couldnt get rid off that quickly. In fact I told her maybe she should do just three days pulse. Do you think that is a good idea?

Her mobility remains very compromised. So one is hoping that at least with full support she is able to walk better. She has a lot of spasticity, which also causes huge problems. I am definitely hoping for better days ahead. She started the abx at a much later stage of the disease than you perhaps, so naturally the healing process will take that much longer. Perhaps the same true of Chris.

Haven't recently seen any news of Kiki and Elizabeth. This covid has also set things back -- more daily stress, children everyone working from home etc.

It seems one has to be daily thankful for keeping Covid at bay. Both you and david managed to beat it after what must have seemed a horrifying long stay in hospital. Are you back function wise where you were Sarah? Take care.

Neena

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Neena, it is true that both Sonal and Chris started the treatment later in the course of their diseases than me. Although I had the disease since my mid twenties, it didn't start to turn progressive until I was in my forties, bout two years before I started treatment.

Neena, if it was Covid we had, and it seems very likely judging by our symptoms, I got over the respiratory bit even before I was hospitalised. It was the delirium that got me in hospital!

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.