11 Feb 2020
Author
MacKintosh
Title

Posting for Elizabeth Anne...

Body

Morning, everybody!

Hello,
It was another good weekend, in terms of mobility improvement. I think I've mentioned before that the earlier in the day, the weaker my walking? I noticed on Saturday morning that even though I was dragging my leg after a bit, for the first 50m it was very good, no limping.
Climbing the stairs when I got home was fine. The recovery took much less time as well.
Then this morning, walking to work (which has been hard) was much easier. I feel great!
Is it the Amino Acids?
xx
Lizzie
Elizabeth Anne

Comments

Hi Lizzie and Kiki and all, especially Chris

How is everybody doing with the medical issues as well as lockdown? Sonal has finished her 11th pulse a short while ago. Not any better mobility wise but otherwise feeling ok.

Such terrible times really. Loss of jobs and income plus the threat of corona added to existing medical issues.

Take care everybody and drop a line tolet all know how you are faring.

Neena

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Everyone,

I'm leaving for Auckland from London on Tuesday 26th in time, I hope, to see my very ill father. My suitcase will have lots of Doxy and Azith and Metro so I hope it doesn't get confiscated. I'm getting assistance in the airports -- so VAST with deadly marble floors.

I'm feeling in good health, though I've finally admitted to myself that alcohol is bad for me and I'm going to stop drinking it completely. A pity -- I love cider, but good walking (a remaining symptom is foot drop)  is better. 

I'll contact you again from New Zealand, Aotearoa. This is a huge move for me; I've been here for 25 years! But it's the right thing to do.

Keep healthy and safe. I'll be on local radio and I'll talk about the wonderful Dr Wheldon, his fabulous wife the artist Sarah Longlands, CPNHelp, and getting my life back. By the way -- they think I talk posh like a Brit, but we know different!

Best wishes and love to you all, and Neena, very best to Sonal. Sarah, Jan, Kiki -- bye for now.

Lizzie xx

 

Elizabeth Anne

Best of journey Elisabeth!!

You have an awesome leader running the country so you're probably best there anyhows. Hope you and your dad get super lovely time together! We'll still be able to chat on here and support one another. Let us know you and cargo made it fine! NZ is one of my fav places so do enjoy the home coming! Tons of hugs trooper!

Kiki💖

Safe journey home.  I look forward to hearing from you soon!

Cheers,

Jan

 

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Oh Lizzie, what a sad time to be going home, and after all this time!.

Do take care. Very wise to arrange assistance for when you arrive, with all those acres of lethal marble floors. I hope that you thought to buy compression socks for the long journey. 

Sarah xx

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Dear Everyone,

Perfect timing from the CPn gods. In my last message I said I had decided to stop drinking any alcohol because it affected me. This morning I worked out, as I couldn’t brush my hair with my right hand, that in fact, I’m having a relapse. I restarted the Weldon Protocol immediately. 
I have a small supply of Docycycline, likewise Azith  and Metro. About 7 weeks. It was going to be enough for intermittent for ages. 
 

But here is the problem. I leave for NZ next Tuesday 26th. In Nz it is virtually impossible to get the meds. They are right on anti antibiotics there. 
Does anyone here in the UK know how I can get an urgent supply? I’ll take them in my suitcase. 
Perhaps some nice doctors? 
Or my husband who is staying here for now would post them to me.

Thanks. If there is anyone who can help I’ll love you forever. 🥰

 

best wishes,

Lizzie

Elizabeth Anne

Hi Lizzie, What a mess! I guess if you are having a relapse it will be due to worry about your father.

Right, at the moment supplies are rather difficult from anywhere, with virtually the whole world being in liockdown for some reason. For this reason I would like to ask if anyone has received supplies in the last  few weeks will you please give both Lizzie and I the address of the suppliers: me for the next person who is bound to ask. Also I can send things on to Lizzie`s husband, who will then forward to her.

PS: Best remove your number from here, or you might regret it. Let me have it though, together with your address and your husband's name. 

Sarah 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Lizzie, your suppliers are closed until June but I think this might be an annual holiday. They had one last year and opened on time. What I will do is give an order to your husband, telling him which page to go to.  It will save time if he does the ordering, also they will know the address. I can give him the right pages to go to but do let us both know how much to order. You shouldn't run out because they send promptly, but if you take a load of biotin with you, you will have an alternative.

Have you been taking biotin? This might account for your plentiful hair which I read about!

It will seem strange going home after all this time but I hope you arrive in time. 

Sarah xx

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah, thank you very much. I presume you received my email with my husband’s details - he’ll be waiting. 
As well as being kind to me you’ve been supportive and practical. Thanks again. Just what’s needed. 
 

Everybody (incl. Chris, Jan, Kiki, Neena etc etc) : I really appreciate your thoughtful and warm comments. It’s a pretty grim time and it’s really nice of you. 
 

Bye for now,

Lizzie xx
 

Elizabeth Anne

Hi Sarah,

Kia Ora From NZ! In quarantine...

I was just rereading your message. Is Biotin a good alternative for Doxy? I do have some here with me. I was thinking I could reduce the doxy dosage to one pill per day until my new supply arrives.  And increase the Biotin at the same time? 
 

Many thanks,

Lizzie

Elizabeth Anne

Hi Sarah, 

Further to our previous correspondence, are you able yet to tell me if the supplier is up and running? I’m nervously watching my supply diminishing !
Thank you so much. 
Best wishes,

Lizzie 

Elizabeth Anne

Lizzie, Sarah was having some technical difficulties on her end and might not be able to respond immediately. I can try posting your question to DW and ask him to relay it to Sarah, if you'd like?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hello everyone! I have got over my technical difficulties but unfortunately the place where many people have been buying antibiotics has still not opened. I don't know whether this is caused by an interference by the authorities or not but everything should right itself within a few weeks as per usual.

My next reply about this will be in private. 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thank you very much, MacKintosh. It looks like Sarah’s tech problems might be resolved? If not, I’ll definitely take you up on your kind offer. 
Day 13 of quarantine! I’m almost home. 
Best wishes to you all. 
xx

Lizzie

Elizabeth Anne

Hello Lizzie, my problems are resolved. David says that you are better to take the full dose of anything rather than just half. How much do you have left?

I will let your husband know as soon as I find a new address but in the meantime, if you run out start high dose biotin: 30 microgram tablets a day.

Look up my two blogs here on the subject.

Sarah xx

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Lizzie, how is your arm now?

When I was hospitalized with rhabdonyolysis a couple of months ago, my right arm seemed to give up again but once the drips were withdrawn,.my very puffy arm returned to normal. I was given some exercise to do by the physio one Friday but didn't bother because I could feel everything coming back, which by the Monday it had. 

The physio thought that MS had far more to do with anything than rhabdomyolysis, despite my mri showing it was yet again non active: I dont think he liked the wave I gave him! 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah,

My arm and hand are much better, thanks. I’m taking 200k mig of biotin again. God knows - I don’t - why I’d reduced that to 10k. I thought my hair was too thick and I hadn’t been able to get it cut. Crikey. Also my walking is much improved. I really don’t understand myself. Things were going so well, and thus I decided I didn’t need all the supplements. Blush... 

All’s interesting here in NZ, but no riots yet. I feel like it’s a phoney war and that problems will come. Hope not. 

Best wishes everyone,
Lizzie
 

Elizabeth Anne

Lizzie, I'm glad that your arm and hand are on the mend: I thought that might be the case!. I will let your husband know as soon as I can find out anything about reordering. 

The phoney war here seems to have started in Bristol, my home town, where people are now ultra concerned about the slave trading past. I have always known about it, but to me it was well in the past and so nothing to feel guilty about.

Sarah 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Dear Lizzie,

you must be home in that wonderful beautiful country NZ. Hope your father is better. Even if minor relapses are you feeling much better than when you started the protocol? How much better? Maybe you need to do it full time for another year.

Do let us know if all well at home. How long do you plan to stay in NZ? Keep us posted. Sonal has started her twelfth pulse yesterday. She f eels better generally but no improvement in mobility alas. Maybe she started the meds when she was in very bad shape. Hoping that means she will take much much longer. Only if she were to improve just a bit. Enough to walk with the support of a person as she used to about three years ago, before the wheelchair was bought.

Take care. The urgency nowadays is to keep safe from Covid. NZ should be safe from that perspective and hopefully by the time you return Covid would have passed its peak in UK, where currently things look pretty bad. India too cases are rising fast. Love

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Neena,

Thanks for your kind wishes. It’s an awful trip to make but it’s just life. 
I am much better, vastly better than when I started. The foot drop has stayed but till recently it was much improved. My mistake had been thinking I was cured before I was. I had had no relapses since I started. After a year I stopped and went on to intermittent. That was Jan this year. Since then my walking has deteriorated but I put it down to other things: adverse reactions to amino acids, cider, etc. On Monday this week I realised that in fact I was having a full blown relapse and straight away downed some doxy!  A pulse will start next week. 
Im cross because I only have a limited supply of the meds. It will be hard to get more j in n NZ. You’ve all seen Jacinda  the PM.  a lovely person but typical Kiwi; Government Knows Best. And antibiotics are bad. 
 

I had a full blood test the other day and the doctor said everything was in very good shape. Cholesterol, blood pressure, liver, kidney etc    
Before I started the Wheldon protocol I had high BP, dangerous levels of cholesterol and I had bald patches in my hair.  I now have hair like Mel Gibson in Braveheart! Not beautiful, but lots of it!

Neena, it’s been life changing  and I know I will get mobile-er again. Thank you for all you have done for me. When I get to Spain eventually, the invitation still stands!

xxx

Lizzie

 

Elizabeth Anne

I was wondering whether a kind doctor to whom you can explain the protocol will give you a prescription if only for a few months. You could show the Wheldon website and the protocol to him/her. Maybe it will work. worth a try.

How long are you in NZ and how is your father doing now? and your mother? In this lockdown how did you manage to travel? Here all international flights have been grounded.

Do get well, better soon. You were/ are  an inspiration to all others still struggling and Kiki who started the protocol same time as you. Love

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Neena, Kiki, Sarah, Jan, Chris etc!

I've been here a week now, in quarantine. There are 400 of us in a nice hotel in Central Auckland  From here I can see 5 little extinct volcanoes. Auckland's a nice place, but we're completely restricted, obviously. My meds were not confiscated, i'll be needing a new source of lovely Doxy soon. 

In fact, it's time now for my supervised daily exercise, so better go!

Bye for now

xx

Lizzie

 

Elizabeth Anne

Hi Neena, Kiki, Sarah, Jan, Chris etc!

I've been here a week now, in quarantine. There are 400 of us in a nice hotel in Central Auckland  From here I can see 5 little extinct volcanoes. Auckland's a nice place, but we're completely restricted, obviously. My meds were not confiscated, i'll be needing a new source of lovely Doxy soon. 

In fact, it's time now for my supervised daily exercise, so better go!

Bye for now

xx

Lizzie

 

Elizabeth Anne

Hi Lizzie!

Hopefully the food is great!  Where do you go after quarantine?  

Glad your meds are still with you.  

How's the weather in Auckland?

Cheers,

Jan

 

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

...and hello to everyone!

I finished my 8th pulse last Friday and like Sonal, Neena, I am still fighting the same issue with practically no mobility but I'm glad to hear that she is feeling okay. I thought I had enough abx for 6 more pulses but it turns out I have only have enough for 4.

Thanks Lizzie & Jan, for the info on magnesium and potassium. I have been taking magnesium for quite a few years but not potassium. I was able to get some potassium supplements about 2 weeks ago and I'm taking both of them together (night & day) which seems to help.

With so much uncertainty, confusion and fear that surrounds the whole world these strange days, our biggest challenges are still in front of us.

Be well,

Christopher

 

I am a retired guitar repair/restorer after 35 years. I live in Colorado and am wanting to now restore my health!

Hi Chris,

may I ask how much magnesium and potassium you are taking? I will find out from Sonal if she is also taking. She has basically stuck to the supplements recommended by Dr Wheldon. Nothing more nothing less.

AND HOW HAS THE POTASSIUM MAGNESIUM HELPED. DO DROP A LINE WHEN YOU CAN. SONAL HAS STARTED HER NEXT PULSE YESTERDAY. I THINK IT IS THE TWELFTH.

Sorry the caps button got locked and hence the previous para. Take care, Keep well.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

All caps/(CAP)...Maybe your computer had a Freudian Slip! :)

As far as the Magnesium and Potassium amounts, I take 2-3 Magnesium (400mg per capsule) usually 1-3 times during the day then if needed (probably) maybe 4 caps during the night. I also take 2-3 (99mg) Potassium supplements at the same time as the Magnesium. (adding Bananas too if I have them). Also, I have been adding Calcium supplements (500mg) to the mix and also drinking Kefir smoothies. All three of these minerals seem to be helping (but not eliminating) the painful, dreadful evening and nighttime muscle spasms! I'm still trying to find the best amounts for my body to take but I seem to be tolerating them all so far. Maybe some of that info will help Sonal.

Like Lizzie, I start my next pulse this Monday (#9 for me). Also Lizzie, my best wishes to your Father and I hope you (and your abx) have very safe trip to NZ.

As Sarah has already stated with the worldwide pandemic, getting resupplied with abx is highly problematic. I'm hoping somebody has some good info and sources concerning this!

Until next time... Be well Sarah, David, Neena, Sonal, Jan, Kiki, Lizzie and everybody else!

Chris

I am a retired guitar repair/restorer after 35 years. I live in Colorado and am wanting to now restore my health!