7 Mar 2020
Author
Jan Figtree2019
Title

14th Pulse Completed

Body

I finished my 14th Pulse yesterday, Friday, March 6th, 2020.  Again, a 5-day pulse with no problems except some fatigue the first day again.   This is weird. Up to the last few pulses, the “pulse fatigue” was usually the last couple of days.  I have no thoughts about why it has switched up.

No pain for a few weeks now.  Nice. My rebounder continues to help strengthen muscles and keep lymph flowing (as well as the herbal tinctures I take for thinning lymph fluid:  Red Root (Ceanothus americanus), Cleavers, and Prickly Ash (Zanthoxylum clava-herculis)).

 

Comments

Hi all,

Sonal finished her tenth pulse a couple of days ago. Slightly delayed because of the shingles she had, which last more than a couple of weeks. Not much to report. Manageable fatigue nothing exceptional.

Her children home and working online. Husband home so all well on that front. India in a more or less complete lockdown, no train services, curtailed bus services, no taxis, hardly any cars on the roads. People have disappeared into their homes in cities and villages. Remarkable, but millions will suffer because of lack of income.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Congratulations on Sonal finishing her 10th pulse!  And glad you all are well.  

Cheers,

Jan

 

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Hi Jan

yes and she is feeling better after this pulse, but no improved motor movement, general feeling of well being.

Thanks, and what news of you and your symptoms. Any improvement? Take care

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Doing well.  I am having quite a bit of morning stiffness that is alleviated upon moving (walking and rebounding).  I had been taking Ibuprofen and a baby aspirin at night for quite a while now, but NSAIDS are said to be contraindicated for coronavirus, so I stopped for the duration.  I do take acetaminophen if the stiffness/soreness impedes sleep.

I start my 15th pulse tomorrow (Monday)... I am helping to take care of my mother-in-law this week, so I hope the mild fatigue I get during pulses happens later in the week.  

My allergies are horrible right now... and can't take many antihistamines ... mostly I stick to Nettle capsules (stinging nettle)... and they work pretty well.  I just have to dose more frequently.

I am seeing continued improvement in the reduction of excess collagen.  And my psoriasis seems to be healing more rapidly.   I have recently re-started my experiment with L-Agmatine (google it) and remarkably, it seems to be accelerating this whole healing process.  (Note: agmatine is not to be confused with arginine.)    

Take care.  I am watching India ... seems like they are on track to control coronavirus by minimizing movement/travel.  

Jan.

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Jan, so good to hear your psoriasis on the way to complete cure. Yes I do know that Ibuprofen thins blood and is also contraindicated in dengue or chickenguniya. For this reason at one time it was taken off Indian markets.

Yes the virus here has been controlled but at huge huge unspeakable cost to daily wager migrant labourer and the most vulnerable. No proper planning by government to reach them bare essentials and make sure they have the money. Here a huge number of ordinary workers will not earn a penny during this lockdown and this will take them back by years.

Each country has its share of horror stories as well as stories of great care and compassion. So do we. In the US the government seems to have completely mishandled. Let us see when this scourge ends.

Keep well What are you allergic to? Have you tried to zero in on that by cutting some foods to see what happens or some testing

Take care

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Neena!

I have allergy symptoms from dust/pollen ... not too many foods that I know of.   So I just wait for the desert heat to burn off the pollen, limit going outside without a dust mask.  Take a shower each day before bed to wash off all the dust... run an air filter in bedroom.

Yea.... I am NOT impressed with the way our govt. is handling the COVID19 outbreak..... the federal govt.'s response to COVID19 is killing a lot of people.   Many state govts. are doing the heavy lifting.  I swear a lot and limit reading/watching the news to once a day.  

Stay safe,

Jan

 

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

I finished my 15th Pulse yesterday, Friday, April 3rd, 2020.  This was a five-day pulse with Tinidazole. Overall, a fairly easy pulse with only some very mild fatigue on Thursday.

Pain issues this week:  I had a fall (slipping on wet floor); landed on hip and twisted my leg.   There was some soreness with that, but seems largely healed now. Now, the C.A.P.-healing pain… for about three weeks now I’ve noticed increasing pain above and below right knee, and this is exactly where there is large amounts of excess collagen (you could think of it as the collagen “cascading down my thighs and over my knees”)... but all this excess collagen IS receding/depleting/pulling out and away from muscles and tendons.  This hurts. Movement is very good at alleviating the pain, and I have been using my rebounder (mini-trampoline) and rower liberally throughout each day. As the collagen recedes there is a lot of cellular debris from it breaking down. And this cellular debris is carted away by the lymphatic system. These days, my lymphatic system is chronically overloaded with this healing. I have found that rebounding is not sufficient to move the lymph fluid quickly out of my system (it’s too thick/clogged with all the debris).  So, I use a lot of herbal tinctures to thin the lymphatic fluid and help excrete it more quickly. These two things (rebounding + lymphatic tinctures) help reduce the pain remarkably well.  

It has taken me a long time to understand the importance of the lymphatic system in healing, but these days I heartily respect its role in my health.  For me, the CAP is not wholly effective without doing a parallel protocol with my lymph system.

 

Updates:

Scleroderma:  Continued (almost accelerating) improvement.  My body seems to be catching up with all the excess collage:  dismantling/excreting it. Excellent news.

Ankylosing Spondylitis:  No pain since last pulse except for after the fall I took.

Psoriasis (on elbows only):  Still improving.  The thick, scaley cells are definitely diminishing.  The circumference of the the affected areas is diminishing.  All good.

 

Final notes:   I am using daily Agmatine Sulfate.  And am researching how it helps with pain and how it affects skin.

 

Thanks for reading,

Jan

 

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Dear Jan,

yet another pulse under the belt. Congrats. But sorry to hear about your fall. Lucky you didn't break a bone for that would have been simply awful. Ever since i fractured my leg badly -- clean break above the ankle -- 30 years ago, i am very careful walking, annoyingly so, for someone walking along my side.

So be very very careful.

Neena

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

I felt really lucky I didn't have anything more than some bruises/stiffness.  

 

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Hi Jan,

That sounds positive. Good work. You are so stoic.

Ouch! I sympathise with your falling over. My right wrist and hand are still recovering from my last bout. I did get it X-rayed and nothing was broken.
On a more  positive note - I don't have to watch my feet all the time, and I can look up without holding on to something. I can look around when walking. This used to have me tripping over regularly. Last weekend we went for a long walk and the plan was for me to catch a bus home at the end. My husband carried on alone. There was no bus, so after a fruitless 30 min wait, I had to walk the return, alone.
It was fine. I was a bit slow, but it was absolutely fine. In total about 4.5 miles.
The weather has been fabulous, so we'll do the same again this Easter weekend, each day. 

 

Best wishes,
Lizzie

 

Elizabeth Anne

4.5 miles is huge .... I am not doing any walking except in the garden and around the yard.  I console myself with my rebounder and rower, but they are not the same (or as emotionally uplifting) as a good ramble out on the wash.  

Weather here is beautiful too, but the pollen count is so high, my nose gets stuffed.... and I get a bit wheezy.

Cheers and elbow bumps,

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

I use a walking stick for the longer walks. It’s good and bad; it slows me down when I’m starting out and feeling strong, then it’s a great support. And other people are really nice when they see me. I always get friendly smiles and often get supportive comments. And people always move to give me space 👍. British people are so kind and polite, instinctively. It’s lovely. 
 

 

Elizabeth Anne

Hi Lizzie

That was a long walk -- 4.5 miles is an achievement. You must be happy. It also shows what a long way you have come from where you were two years ago. Great. Great. Carry on you are an inspiration.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Neena, Lizzie, Jan, Kiki, Mackintosh, Sarah and everyone else! It sounds like everybody is doing pretty well considering what has infected the world.

Like Jan & Lizzie, I just completed a pulse last Friday. My 7th. So happy to hear of your continued improvements Jan and very impressive with those long walks Lizzie. Wow, great stuff!

Neena, my best wishes to you and Sonal for new progress toward mobility. It would be wonderful to put a 'For Sale' sign on both of our wheelchairs!

Anyway, stay safe to everyone and your loved ones!

Be well,

Christopher

 

I am a retired guitar repair/restorer after 35 years. I live in Colorado and am wanting to now restore my health!

Hi Chris, Jan and all,

If only wishes were horses Chris, one could have put the wheelchairs walkers etc on sale! But how are you doing? it seems just the other day that you started your first pulse. And yes, Sonal has 10 under her belt, but no improvement in mobility. But she does have good spirits, better stamina and generally looks good. She and my son Amit are busy since children at home and are doing online school work. Life has become topsy turvy but in a way easier -- nowhere to go except think of grocery shopping and meals!

Thankfully so far meds are available here. But Sonal is experiencing difficulty with some supplements which she used to order on Amazon. They are not delivering. I wonder whether Amazon is working 100 per cent in the UK US and other countries.

Well are you feeling even a tiny bit better Chris after these seven pulses? Best wishes and take care all.

Neena

i

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Neena, I have found out that although Amazon are still delivering everything, they are giving priority to essential items like food, so other things can take much longer.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Dear Sarah

thanks for your post. In India lockdown has been extended and here Amazon is very late at delivering even essential items because of some bureaucratic goof up. We hope things will be better on home delivery front after May 3, but some red zones have been marked out where delivery may still not be possible. But she is taking some of the vitamin supplements, perhaps not all. The problem should be resolved shortly. Thanks. Take care.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Congrats on your 7th pulse!

What are you doing to keep moving?  My husband and daughter are sharing my rebounder so I've had to buy extra bungees to keep it in good shape.

Cheers,

Jan

 

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Hi Neena, Jan, Lizzie, Kiki...

Neena, I have been managing to get through the day without the need to take afternoon naps which I believe helps me to sleep better and longer! Muscle cramps and spasticity in both legs are still my biggest problem at night. Long time right foot drop has also led to a very sore hip.

Jan, about the only exercise I can safely do is to pull up from my wheelchair and support myself between the end of my bed frame (on the left) and the chest of drawers (on my right) then do about 30-40 short motion knee bends. I know...'baby steps'. I only have enough abx for 6 more complete pulses then...???

Hopefully, for all of us, the world will soon get back to a level of normalcy.

Be well,

Christopher

 

I am a retired guitar repair/restorer after 35 years. I live in Colorado and am wanting to now restore my health!

Hi  Christopher,

 I get bad cramp as well. When it’s in my feet - the muscles on top of the arch (? How on earth ?) it’s bad. 
I take good potassium  supplements and I have by my bed potassium spray. 
If I get cramp during the night despite the supplements, I use the spray and it gets rid of the cramp after a few minutes. I find it ironic ( and horrid!) of CPN to cause me cramp in my useless foot-drop right leg.  😠 

Another thing:
My parents tell me I must be highly vulnerable to Covid19 because my immune system is so compromised. They still understand that MS is caused by auto-immune problems. 
I don’t think so, but I can be corrected!  I take lots of supplements and feel quite resistant  to bugs and viruses. I haven’t had a bad cold for 20 years, since I started the supplements regime. 
I don’t know enough about CPn to know if it does weaken our immune systems? 
any thoughts from anyone?

Best wishes,

Lizzie xx
 

Elizabeth Anne

It seems like your energy is improving --as you don't need the naps as frequently.  Good stuff.

I am sorry about your muscle cramping/spasticity..... I have some intermittent problems with these.  I take quite a lot of magnesium (to bowel tolerance) and potassium.   

These are the products I use (and I try to take them far away from the antibiotics as there is some research that antibiotics can interfere with magnesium absorption)....

--Emergen-C ElectroMix Electrolytes (available on US Amazon, but can't find it on UK Amazon).  I take one of these at mid-day, and I take Source Naturals Magnesium Malate (right before bed).  The magnesium malate provides about 1,250 mg. of magnesium (also available on Amazon).  

There are many types of magnesium and I've tried a lot of them, but the above products I have stuck with for many years.  One other product that I take occasionally called Natural Vitality Natural Calm Anti-Stress Drink mix.  It is magnesium citrate.  I don't take it regularly as it tends to cause loose stools more than anything.   The second type of magnesium that I take occasionally is Double Wood supplements Magnesium L-Threonate (available on Amazon).  I really like this supplement, but cost is factor, and right now I am doing ok with the two I mentioned above.  Maybe after the Cpn, I might re-start.

As for getting more Abx, I have made some orders in the last few days---the online store is just warning me that the shipping times are up to a month and half now.   So, I am "getting in the que."  If your sources are drying up, PM Sarah to see if she knows of alternative sites.

Keep going.  You are doing great.

Cheers,

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Hi Chris

That sounds like progress if you don't need an afternoon nap. Sonal too is hardly able to do any exercise. She used to get a yoga teacher home thrice a qweek, but because of lockdown that has stopped for now.

Abx for 6 more pulses is great, by then the corona should be gone, hopefully. And you should be able to get more antibiotics.

The problem for Sonal here is getting the supplements for Amazon has hardly been delivering here. Many of those supplements were being imported here from Uk or the US, and stocks even with Amazon have run out, it seems It will be months before things get back to normal. Meantime, hope for the best and keep as cheerful as you can.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Lizzie and Christopher, I haven't had'a cold since starting the treatment and what I thought was my first bout of flu at the start of the year was more likely to have been covid 19 though I recovered within a week or so. I don't think I have a compromised immune system even when I had severe MS.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks for that, Sarah. Was Covid very bad? I got the flu once, aged 8 or 9, and I can remember how I’ll was. Nearly 50 years ago, heck. 
I did assume that all the good supplements I take would help. A friend who takes large doses of vit C,thinks she’s too had Covid. She took a week to get over it. 
 

Best wishes, Lizzie 

Elizabeth Anne

Actually, we neither of us realised what it was until recently so no, it wasn't really bad. At first I thought that it was my first attack of flu but David had flu before and knew that was different. A dry cough and a temperature which lasted a few days. 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Oh Sarah

i didnt know you and David recently had the flu or Covid or whatever. Soglad  it was mild  and resolved itself.

With the new testing in Delhi and Boston and a large number tested positive for Corona although they were completely asymptomatic! So who knows how many of us have been infected (and cured) already.

Sonal now fully recovered from the shingles attack and has since done one pulse. Coping well with the children having to do online classes. Keep well.

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Neena, this was a few months ago and it didn't last long. Several people at our local supermarket also went down with it a friend and his daughter from up North and Glenn and his partner from this site. I guess none of us went to see a doctor so I expect more people will have had covid 19 than appears.

I'm glad that Sonal is coping with the children being at home. Being surrounded by a girls school and Bedford School being not far away at all, it seems unusually quiet here.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Dear Sarah and Chris, Kiki, Lizzie, Jan and all,

Sonal finished her 11th pulse two days ago and was very very tired and glad when it was over. Feeling better now. With this lockdown her yoga teacher and massage lady have not been able to come. So I assume she is not getting enough exercise.

Plus kids being home and making sure they do their online work is extra work for her and Amit (my son), who fortunately is also working from home and therefore a big help.

She has now finished a full year on the protocol, never missing a single pulse and taking all supplements. But she does not get enough exercise.

I am hoping that the next year starting now will make some even if a very tiny bit of improvement in mobility.

We are all counting days to the end of the lockdown not yet in sight in India although some states have only a handful of corona cases and those should open somewhat. Lockdown, poverty, hunger, fear, huge number of migrant workers in big cities who travel thousands of kilometres to work has added to the problem of controlling this monster virus.

 

I am glad your flu like symptoms were very mild, otherwise most of us fall into the vulnerable age group. I certainly do. It should be over by end June at most but maybe our habits will have to change for ever.

Keep well.

Neena

 

 

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.