27 Apr 2018
Author
BatGirl
Title

Vanderbilt abandons Vanderbilt Protocol?!?

Body

Visited the Vanderbilt MS Clinic recently, and discovered they have gone over to the "AMA dark side"... they no longer consider treating CPn with CAP as a treatment for MS!?! (ie - into the avonex, etc. crap)(AMA views this MS treatment as junk science, typically because they abuse antibiotics rather than understand them...

Comments

Batgirl, I would have thought that bacteriologist was the name since by and large in te UK they are referred to as microbiologists.  Try putting in 'medical bacteriologist.'  Mind you, I tried that here and just got a load of job vacancies!..................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Roger on the massive job opportunities results from search engines - weird, same happened here...

We find consultations, we learn tricks with which we deceive ourselves, but the essential thing - the way - we do not find. Listen to the river...

I guess the same thing happened with you because being a bacteriologist is not seen as a popular thing to do in the medical line.   Quite why I don't know.  Maybe David will tell you...............Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Rica, am I hearing you right?  Many congratulations if so! When talking to Glenn earlier it seemed like you were on the stuff forever: I must have read you wrong.........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

You read it right, Sarah.  In January I stopped all five abx after having taken - most of the  thirteen years - all five.  That is how long it took until I no longer got reaction twice a day.  I did continue for a few weeks after I was clear of reaction.  So far, still clear.  Still very, very happy NOT to regress!  Still do NAC 1200 twice a day - all newbies please note:  that is 2400 a day total.  And, of course, all the other suggested supplements,  which I have taken for years.Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Dear Rica and Sarah

so good to hear from you. Is it right that you took 5 antibiotics for 13 years? Did i get that right? Sonal has been taking two plus a third in five-day pulses as recommended by Dr Wheldon. I am wondering since hers is also we think PPMS, should she add a couple more antibiotics?

Sarah could David advise? Sonal has finished ten pulses now, all on time except the last one which was taken after six weeks instead of four because of shingles. Her fatigue issue is better, she has not worsened, but no improvement in mobility or her right arm, which because worse because of pain during shingles and not using it at all.

I wonder Rica why your symptoms are returning when you took antibiotics for 13 years! Is it because CPn had hiden deep inside your tissues and has re-surfaced? Any thoughts Sarah?

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Neena - I followed the abx protocol for over 8 years - and have started abx again after a two year break. For many of us it is not a quick or easy solution and improvement takes time. But it is definitely worthwhile. From what you say, Sonal seems to be tolerating the abx very well and is making good gradual improvement. It is great that she has had no worsening of symptoms and less fatigue - that is good progress in a relatively short time. Take care and stay safe, with all that is going on in the world.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17&01/20-)

Hi Boadicea,

In a way good to know there is still hope for Sonal. She will be completing a year on protocol early April and ten pulses are through, the last one just last week. She does feel better, and certainly no worse, but no tangible improvement in mobility. You see when she started -- and even today -- she needs help to get from bed or chair to the walker. Her right hand is also affected apart from her legs.

But may I ask how long into the protocol for you before tangible and definite motor improvement? you need not answer if you dont wish to go down a painful memory lane. And between the time you started the protocol and now how big was the improvement, especially mobility?

Here we are all dealing and coping with an almost complete lockdown -- eight days today and 18 days more to go! I suppose the same is everywhere, this corona has taken a huge toll in life liberty and global wealth. For the millions of marginalised in India, a huge price to pay.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

You know, Rica, that is something neither David nor I thought we would ever hear!  So well done: you did it!! I know everyone is different, but I stopped getting reactions at about nine months and you, thirteen years!   Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

After my sickness back in Aug.2017 (fever, loss of appetite - lost 7 pounds, coughing up goo, etc - suddenly fever broke and gained weight back) , I took myself back on CAP in Oct.2017 to fight this "sinus mastoid" the last MRI on Jan.2017 indicated (probably CPn infection, and probable vector for cerebral infection/scarring) using pills left over from a couple of years ago (kept in fridge whole time - and see my post regarding american fake expiration dates) until I could visit Vandy in Jan.2018 for when I got a new 'script for 6 months - with this, and help from a German Pharma to make-up the rest, I'll be able to finish a whole year of CAP. This time decided to do Doxy twice a day (100mg 2x daily) which lasted three months before I had to go back to once daily (for a month - to recover, then back to twice a day...). Seems my stomach was losing the ability to digest my meals! Doxy pickled my 'good bacteria', and the once a day lactobacillus was unable to keep up ~ began one Doxy a day and a lacto before every meal and FINALLY got back to normal. Also noticed the double-down Doxy REALLY made me VERY sensitive to the freakin' sun! Burnt the heck out of my left hand driving with sun shining on it for 30 minutes - second degree burns, big blisters- freaky. Wear gloves and socks outside now - and a wide brimmed hat. Next MRI Dec.2018.

We find consultations, we learn tricks with which we deceive ourselves, but the essential thing - the way - we do not find. Listen to the river...

This from Vanderbilt's MS Clinic (gone over to the dark side... no profit in curing MS... more money stretching out bogus 'treatment' [aka designer drugs like interferon (sic) that just prolongs neurological degradation] so you are a patient for 'life'... well until they drag it out as far as they can profit from it and you expire - or wise-up and abandon them!) ~ apparently they have completely abandoned CAP:

We no longer test Vitamin D due to the amount of patients whose insurance was not covering this and they were getting sizeable bills for it. We do have patients who request it while they're here, but Medicare does not cover Vitamin D for the standard deficiency code that we use to charge. You do have the option to sign an ABN stating you will take full responsibility for the cost if Medicare doesn't cover it if you truly want it drawn.

It terms of the other bloodwork, Dr. Sriram no longer recommends the cPn testing. I spoke with him about it today and he said "I no longer recommend it." So that's about all the explanation I can say to that one - he said he's happy to discuss further next time you are here.

SO, they are no longer interested in cPn - only in supporting the pharmaceutical medical industrial complex. Dr. Sriram has abandoned all hope... probably under pressure from the mega medical group he is contracted to, to promote the dubious designer drugs that support their business... as far as 'next time I am there' goes, well, there'll be no 'next time'... what's the use?

BTW - my local doctors (cancer doctor and primary care) tested me for Vitamin D, and TWICE medicare covered it... so what's with the bogus lie over testing vitamin D? Vitamin D is VERY important in managing MS!!!! Vandy tested for it in the past... bizarre!

In the end, cowards are those who follow the dark side.” – Yoda

 

We find consultations, we learn tricks with which we deceive ourselves, but the essential thing - the way - we do not find. Listen to the river...

Chuck Stratton from Vanderbilt is still a believer in CAP. He after all knows that many people have recovered from their MS by treating for chlamydia pneumoniae. His work keeps him tied up with research in his laboratory though.

Sriram not even testing now for vitamin D and his reasons astounds me even more.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.