Submitted by Sarah on Sat, 2019-11-30 11:38

I don't now whether to laugh or cry, but feel more inclined to laugh: yesterday we received an appointment to attend a needs assessment with our local CPN, or community psychiatric nurse as I have just discovered!

It turns out, when I talked to her on the phone, saying that we had no need of help and had no intention of going to the appointment, that one of her main worries was that I hadn't seen my GP for about twelve years. Well, this is true, but I had been working on the assumption that you only go to see your GP if you are unwell, so I hadn't. Since the waiting room is normally full of snot nosed children, I might have caught something.

This CPN also didn't know that David was a medical doctor, the appointment was for both of us since he was down as my care giver.

Well, I will send her a link to the Catalyst programme, my website and David's MS treatment site. I will also forward it to my new GP, the former one having retired.


Blog comments


I'm glad you're able to laugh.

Laurel and Hardy go to Northanger Abbey!

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

I do believe in preventive medicine.

So glad for you all on this site for so many years.

My husband is a paediatrician.

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

great story Sarah about your new GP and appointment for David as your care taker, which he was a life giver!


I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

I have copied this from a reply to Lizzie on another thread, but this adds it to my blog:

 "I neither want nor need to see either a psychiatrist, psychiatric nurse or an occupational health person and I won't. If people can't be persuaded that I have been cured from an 'incurable disease' then let them think as they want, but please leave me alone.

My husband found Chuck Stratton in the nick of time: I had probably had the disease for about twenty five years when I was diagnosed with SPMS and by that time I was tumbling down the mountain very fast."

Occupational therapist? Hmm...……............…......

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.