MediTest
Submitted by hdwhit on Fri, 2019-10-04 01:21

The other day I had my initial appointment with my new neurologist. 

I had prepared a detailed history of my MS.  I also wanted to make sure she knew that I had done the "Wheldon Protocol" (and give her the opportunity to say, "Don't come back").  Her response - after glancing at it for just a few seconds - was, "I don't know what to make of this.

Really?

She had just conducted a physical examination and found no significant deficit.  She acknowledged this surprised her for a patient more than a dozen years in.  The records I had already provided provided confirmed I had initially presented with 1) Speech, 2) Gait, 3) Visual and 4) Motor control deficits. 

So, what happened to the missing deficits? 

I also provided copies of MRIs dating back to 2009 showing a sudden cessation of disease progression co-incident with the completion of the CAP.  Is assume that is treated as a chimera; a co-incidence in the data and thus best ignored. 

I took pains to point out the neurologist who made my diagnosis  delayed making any diagnosis for nearly a year so he could not only meet - but exceed - the McDonald criteria for diagnosing Relapsing-Remitting MS.

Confronted by the abundant clinical evidence and concensus of no less than four (4) other neurologists, my new neurologist rejected the weight of their knowledge and clinical experience to speculate they had all been wrong and I must actually have "Benign Multiple Sclerosis". 

Yeah, over the course of two years, I lost my ability to:

  • Walk,
  • Talk,
  • See color,
  • See my thumb at a distance,
  • Sign my name,
  • Swallow,
  • Control my bladder, and
  • (Briefly) control my bowels,

But despite all the exacerbations and periods of remission proven by MRIs and current absence of deficit, my new neurologist rejected it all in favor of recasting my diagnosis.

 

Blog comments

So, she doesn't know what to make of this?  Hmm.........……… Maybe she would like David to give her a lesson in neurology.

I have not seen a neurologist since 2004, the year after my diagnosis with SPMS, and I don't plan to see one ever again.  I have come to the conclusion over these last few years that neurologists are bad for anyone diagnosed with MS.

I suppose maybe that with your health insurance system you are stuck with it after your diagnosis though.  Here, after four years of no symptoms, you fall off someone's list and if something happened after that, you would have to re-register.

I still plan to send him a Christmas card showing a new print of my work this year though, just to rub it in!

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

D W

It’s a reprise of the Semmelweis problem. You can present evidence, true evidence, backed up with scientific studies, but it won’t be examined if it does not fit the prevailing myth. How history repeats itself! Autoimmunity has become a medical religion.

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

Yes it’s incredibly frustrating isn’t it. I was working with a naturopath recently and despite sending her all the information and the results of my positive test for CPN she still kept on referring to my condition  as ‘autoimmune’. I’m no longer using her, which is a shame because she was very knowledgable and could have really helped me

 

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.