MediTest
21 Sep 2019
Author
tuftyone
Title

Should I take a break?

Body

Hi, I’ve been doing the antibiotics for about six weeks now and every day I’m getting physically worse. I guess this must be die off but today I can barely stand sometimes. Should I take a break temporarily??

thanks

Comments

Tufty, only you can decide: what protocol are you taking to start with? The more times you stop and restart the longer it will take you to get through it, but on the other hand you do need to function.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

You’re right sarah, I need to get through this. I’m not looking forward to starting the metro though!

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

You have my sympathy.  This is not always easy.  You have not mentioned activated charcoal - very, very important.  

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

It has been so long that I don't remember.  It was years.  I took abx for about thirteen years and charcoal every day beginning the time we learned about it here.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hi Rica

you mentioned taking abx for 13 years in your response to tuftyone. For 13 years? or was that a mistake? I mean a mistake in what you wrote. Also I notice the antibiotics you took including Rifampicin and others different from the Wheldon protocol. And were you taking more than three different antibiotics? Did you pulse or were you taking flagyl every day.

 

All these questions because Sonal in bad sh ape like you may have been. Her EDSS score must be 8 or worse.

Take care. Always good to read your posts.

Neena

\

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Thank you 🙂

I’ve been using chlorella and bentonite clay as binders and started charcoal yesterday. I think it’ll make a big difference 

i think living alone is making things harder to be honest

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

Dear Tuftyone

Sonal and our entire family also dreaded metro not knowing what it would bring. But thankfully for Sonal it has not been too bad except for sometimes extreme exhaustion .

so don't worry too much. And as Sarah has been saying you have the option of doing just a day or two of the first pulse and see how it goes. That's what we had thought with Sonal's first pulse but she was able to do full five days without much of an issue.

of course she lives with her family and you have to manage yourself all alone. So it will be much more difficult for you. But on the other hand you can simply sleep it off if exhausted by metro.

take care

 

 

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Well, don't start it until you feel really ready: there is no timetable! Remember that the only trial had to stop because too many people dropped out, the reason being that they were taking metronidazole from the start.

Also remember that you can build up your doses: just one tablet can count as a first dose, but on the other hand you might find that you are worrying without reason.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Tufty,

i’ve had a couple of breaks now and, both times, i’ve struggled like mad, then the lightbulb moment and I’ve rejoined the protocol!

but Sarah is absolutely correct, only you can tell! Sometimes I wish  I was on my own, because, sometimes, my physical failings make me embarrassed, which is silly, but I know that doing this on your own must be astonishingly hard!  So all I can say is congratulations!  You are brave and strong. Good luck.

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Dear tuftyone

let me tell you that Sonal also got worse initially. I remember distinctly my son - Sonal's husband Amit - tell me mamma the worse is already here and I don't know if at all better times will come.

of course Sonal persevered with the protocol without a break . Even now she has good days and not so good days but I feel that on the whole she is better. Certainly the rapid deterioration that took place in the one year before protocol started has been halted.

your living on you own makes things very difficult. But feeling worse may not last too long, if Sonal's experience is anything to go by. 

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

I jumped right in with the Wheldon Protocol and experienced significant illness from the die-off.  I also happened to be regularly traveling for work at the time, so I ended up "touring the nation's emergency rooms".  Charcoal helped, but it was the "bile acid sequestrants" - in my case Welchol - that helped me "turn the corner" and made a world of difference.  Depending on where you are, maybe you can ask your doctor about one of them.

CAP for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazole + INH completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

i did start taking activated charcoal last week and although my disability didn’t change, I became very ‘regular’ which felt amazing (I’m usually quite constipated). My rosacea almost disappeared and the whites of my eyes were white!

that didn’t last unfortunately. I guess the charcoal binds to the toxins but you have to eliminate them otherwise they just sit in your bowel

i read that ochre is a much better binder. Anyone tried that?

I’m not sure whelcol is available in the UK but I’ll try to see my gp next week and I’ll ask him 

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.