MediTest
29 Aug 2019
Author
Sarah
Title

Here is some very good news...

Body

Here is some very good news, and though I can't prove it, I believe it.

Well over two years ago a Northern European girl wrote to me. She had MS and was reasonably newly diagnosed. I joined her to the site but she never posted. I thought she was one of the many people who decide not to do the protocol. I was wrong: two days ago I received the email saying that she had been following the protocol for the last two years and three months. She gave me the result of her latest head and neck scan.

Comments

There are no new lesions,  but more than that, all her neck lesions have vanished and her brain scan lesions have greatly reduced in size.

I am thinking that there might be many other people who have written to me who decided to take the protocol but never posted.  If so, I hope they at least followed the website and saw that it is rarely all just plain sailing, that they had the courage to keep on until the good times arrive.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Lizzie

I'm plodding on, pulse 8 in few weeks. Nothing to report as of yet but to be fair I've had nightmare of summer on own with kids, crap carers and now a new team to train up but still extra loads on me to carry for the better of my child but to my detriment. Kids back to school tomorrow Thursday so I'll get some rest and breathing space hopefully. I've really been in the trenches so far on top of MS itself so it's hard to notice much re myself.

All best tho as your journey sounds fab!

Kiki

Thanks Kiki, take some rest. A very good idea. 

The thing is, we can only just let it happen. If that makes sense. If we're taking the pills and supplements, that's about it. OR are there exercises?
I reckon my walking has gone from 2/10 to about 5/10. I'm going to Stamford this weekend with a horsey friend and I think I will take a stick. I think it would make me feel more secure. 

Lizzie xx

Elizabeth Anne

Hello there,

Just a quick update from how things have been. I’ve now completed seven months of the protocol, including six pulses. A new pulse starts tomorrow.

There are constant little improvements. My walking and balance are both getting better, as well as loads of other benefits. My skin and hair look better,  my hands and feet aren’t cold (but it’s summer...), etc etc  

Improvements sneak up on you, then you realise.  Yesterday, for example, I was walking with my husband along a path, when we both looked  up at a plane doing aerobatics.

The thing is, I was walking by myself with no support or assistance, when I suddenly realised I was looking up and walking at the same time. Usually I stop and hold something, then look. 

All good! 

Best to everybody xx

Lizzie 

Elizabeth Anne

Wow Lizzie,

i know exactly what you mean -- looking up and walking at the same time! I have arthritic knees and I always look at the pavement road when I walk for the slightest up down on the road can send me spiralling into a fall!

take care

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

by the way Sarah,

when should a patient on protocol get tested with an MRI again? Sonal had an MRI done just a couple of weeks before she started the protocol -- that was a coincident -- so when should she get tested again to know for certain that she may have begun to heal? Or is it better to wait till some real big improvements?

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Neena, I really can't say. I had to have my second mri at six months because the hospital was having all new equipment installed and the only way to really test how much I was improving was before the new stuff was installed.

I was so worried coming up to the second scan, wondering what it would show, but luckily I didn't need to be.  Not everyone will be like me though: I have always been a quick improver but most people are not.  I am talking about everything here, not just MS.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

thanks Sarah I know I am thinking way too ahead. One should wait for some definite improvements before the next MRI for Sonal. Perhaps one year from the last one would be a good goal

thanks and take care

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.