MediTest
15 Aug 2019
Author
asarvar2
Title

Discontinued CAP after 4 months. Restarting it after a Gap of 2 months

Body

Hi All, 

Hope you all are doing fine. 

I was on CAP , 100 mg Doxy twice a day and 250 mg Az, Mon, Wed, Fri.

I continued with the protocol for four months. During these four months I also took 3 full pulses of Metro.

While I started feeling better after fourth month, however my liver function test report at the end of the fourth month was slightly affected.

Therefore I left the CAP for a duration of two months.

Comments

After a gap of two months, I am starting  CAP again.  Hope it will work, since I am still having tightness  in my chest and forehead. 

Also I was thinking  of taking Az 500 mg Monday and Friday  in place  of Az 250 mg Monday,  Thursday  and Friday... This will take Az monthly intake to 4000 mg from 3000 mg.

Any suggestions..?

Hello, I am having CPN for the last five years at least. Discovered it only last year. Was on CAP for four months then due to liver issues, stopped CAP for two months. Now again started CAP. This time very slowly. 

For past several years I was having severe migraine, acid reflux, sleeplessness, depression, loose stools, tightness of chest and heart. anxiety, panic attacks etc, severe pain in eyes. 

After continuing the CAP for four months, acid reflux gone, migraine has come down significantly, pain in eyes has almost gone. loose stools have also improved. However tightness of left side of the chest and heart still continues and it very irritating in fact I think that it now pains more. 

It was just by chance I found that I had CPN. I had gone to the lab for testing of the other version of this bacteria. It was just matter for chance that the lab receptionist filled my test form for CPN in place of the other version. Now that's what  I call luck. 

By the way,

what should one be on the look out for with liver and kidney function tests and complete blood count? 

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Neena, I never bothered with having my liver tested, because what would I have done if the levels were slightly raised? Unless there was something drastically wrong I wouldn't have wanted to stop the abx reasoning that this was my only chance of a cure from MS, and I could feel that I was getting better, being able to use my arms and legs again getting my intelligence back and so on.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Dear Sarah

i suppose you are right. If liver not functioning properly signs of nausea etc not feeling hungry would be there. But Sonal has been taking so many other meds for years earlier -- still takes a few like back often, reduced now and something for depression , also reduced dosage now - that we felt better to keep check on liver kidney and blood.

she started her third pulse yesterday and was feeling very tired, more than her first two.

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Not sure about the larger dose of azithromycin but less frequently: it might make the levels too erratic. Why not try roxithromycin instead, 250 mg every day? It is much easier to take.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thank you for the reply. I would switch to roxi 250 mg daily once my current stock of AZ finishes. 

I also wanted to know that since I had discontinued  CAP after 4 months and then again started CAP after gap of 2 months. Should I start with pluse of Metro 5 days straightaway or one day pluse. Or wait for four months while continuing  doxy and AZ/ Roxi and then after 4 months start with Metro pulses..?

I feel better after starting  CAP however I have tightness in my left side around heart and lung. I also continue  to have tightness  around my forehead. However the pain in my eyes has gone now, stools have become slightly better and pain in head  has gone. Acid reflux too has gone away. But this tightness  around  heart continues  to worry and irritate  me. 

Hello, I am having CPN for the last five years at least. Discovered it only last year. Was on CAP for four months then due to liver issues, stopped CAP for two months. Now again started CAP. This time very slowly. 

For past several years I was having severe migraine, acid reflux, sleeplessness, depression, loose stools, tightness of chest and heart. anxiety, panic attacks etc, severe pain in eyes. 

After continuing the CAP for four months, acid reflux gone, migraine has come down significantly, pain in eyes has almost gone. loose stools have also improved. However tightness of left side of the chest and heart still continues and it very irritating in fact I think that it now pains more. 

It was just by chance I found that I had CPN. I had gone to the lab for testing of the other version of this bacteria. It was just matter for chance that the lab receptionist filled my test form for CPN in place of the other version. Now that's what  I call luck. 

Hi kiki

havent heard from you lately unless I missed some posts. How are things your end. Kids still on vacation? In india the summer vacation ends first week July.

sonal is carrying on -- only two 5- day pulses with metro under the belt. A long way to go before one can be certain that needs are working. We learnt about the protocol when Sonal already in very bad shape. Hoping she will improve.

xxx

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Neena

Yes I've been quite for sure. Kids still got til beg of Sept off here so busy bees. Bit of drama at home with my eldests carers leaving me bit stranded so exhausted. Not really helping my own situ much. I thought to be a bit more in background til I had something good to report rather than bring folks down with my non improvements to be fair. It's not helping anyone really.

I still plod along...Pulse 7 this week.

Kiki💖

Hey Lizzie

Im only doing pulse 7 now as partner home all week then away for work abroad and Im stuck with non reliable carers to help with my eldest so thought best do it now tho short break from last pulse. Kids back to school 5th Sept so pray for my patience haha!!

Kiki

Good to hear from u Kiki

well yes holidays can be taxing for mums. Just carry on with Abx. Others have said it takes sometimes up to a year to show improvements which may be oh so so very small in the beginning, almost unnoticeable.

its early days for Sonal -- down two pulses -- so nothing much to report, except that she does seem to have more energy than before. But even before Abx started there were always worse days and better days. So difficult to tell whether mess working. We all wish there was a way to tell, then the wait would become more bearable.

Take care xxx

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hello one and all,

I just now became a cpnhelp member in the last 5 minutes. After seeing the video of Dr. Wheldon and Sarah about 3 weeks ago, I have been reading the website's posts and comments most everyday and I am excited to begin this new chapter in my journey to regain my health!

ChristopherJ

I am a retired guitar repair/restorer after 35 years. I live in Colorado and am wanting to now restore my health!

Hi Christopher

yes you will soon find your are so very welcome here. This site has some lovely people who bond without ever having met! All fellow travellers in the journey towards better health.

It offers so very many insights as you go along the protocol since so many people who have been there before contribute to your expectation as to what to expect as far as the healing process is concerned. And what not to expect too soon, for it seems, patience is of the essence.

take care

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hello Christopher, this is Sarah, who is not only a fine-artist but used to work with a violin restorers up north.

I hope that this new chapter of your life will be as productive as you wish!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thank you Sarah and Kiki,

You are the first two people to welcome me to this remarkable website. I've read and learned so much in the last couple of weeks. I have started many of the main supplements (NAC etc.) and am in the process of trying to acquire the ABX's.

Christopher

I am a retired guitar repair/restorer after 35 years. I live in Colorado and am wanting to now restore my health!

Hello Sarah,

You are very much the very talented artist! I have enjoyed viewing your art online. I hope that in the months to come that I will be able to once again enjoy my career passion of working on vintage guitars. Since I just recently landed in a motorized wheelchair (2 weeks now) and live alone, I know I have a long way to go!

Thanks, Sarah

P.S Are you familiar with the pretty well known artist William Mathews. He is a friend and former client of mine. He also has a long association with old guitars!

 

I am a retired guitar repair/restorer after 35 years. I live in Colorado and am wanting to now restore my health!

Ah, I thought it was you!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Kiki lizzie

how has the seventh pulse gone for you? Not too bad I hope. Sonal will soon be doing her third. Fingers crossed for all. Xxx

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Neena!

Pulse 7 came and went easy. Still no great update for me but I plod along. Too much stress and drama on my homefront re carers etc so to be fair a pulse was a piece of cake compared to dealings with some folks!

I shall win this battle is my mantra( quietly whispered everytime others heap me with rubbish stress elements- and none of them will be thanked for partaking in my healing that's for sure😁)

Kiki

Hi Kiki, 

it seems every pulse goes differently for each one. Sonal started her third yesterday and was feeling very fatigued stressed out and depressed. Worse than her first two. So I told her judging from what others have experienced, for some third fourth fifth pulses worse than first two.

i am glad this pulse was not so bad for you. Changes may happen so small so slowly that you may not be even noticing. Do you feel you have more energy? I think Sonal seems to have more energy although so very difficult to say for each day can be different for MS patients.

will keep in touch. Lots of love to you. 

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Neena

Yes I most deffinately became extra tired and needed naps like I never normally do for a fair few pulses. It's all acumulated meds effects too. Maybe Im better prepared, knowing how to arrange all around pulsing now or simple not getting as fatigued but pulse 7 was deffo a lot easier in that respect.

Onwards and forwards hey!💖

Kiki

Maybe Kiki your body needs the extra rest to heal itself. MS is destructive of the nerves healing must be a very stressful affair for the body and it takes time. The improvements may be so tiny and so slow that you may not even know you have improved. I think Sonal has more energy and looks more lively now though physically no improvement .

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.