MediTest
19 Jul 2019
Author
sonalpaulvyas
Title

First pulse completed! 5 days!

Body

yes the first pulse with Metro is over. I took a lot of care through it with rest, food and pampering by family too! No adverse effects of a sizeable nature really... just a haze like feeling, some nausea(not much)and general lethargy.The reason I can say this now is, I feel the difference in my mood now, 3 days after the metro pulse. There is a certain lifting of shadows now, upbeatness in mood. I am grateful for this change of course..its probably more emotional than physical, but very important for me!

Comments

Good to take it easy and so nice to have family support!

Glad you are feeling positive effects...

G, G, G... lots of Gs today :-)

 

Cheers,

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Hi Kiki

How are you? hope your mood has lifted. Sonal has completed her first pulse of 5 days with metro. Some queasiness but nothing serious. Of course she took care to rest, her mother helped out with the children, and she took activated charcoal to mop up the debris. she coped fine.

Fingers crossed for the next and the next and the next. You have more or less crossed the half-way mark through the protocol. It can only be better from here  so carry on doggedly. One year will pass before we all know it.

I am inspired by Lizzie and the older story of Rica katman is simply amazing. Sonal needs a miracle like what happened with Rica for her mobility is severely limited.

Neena

 

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Neena

A super well done to Sonal!

Yes Im about to start pulse nr 6 shortly though I must say I've been feeling worse and weaker in my condition pulse by pulse myself and no happy results physically like Lizzie as of yet. I acknowledge too that my own family circumstances are weighting heavy on me and not allowing me much respite or time on own to heal so maybe that's a factor.

Worryingly too is this very possible outcome of no longer being able to purchase and receive protocol meds online as I've done so far. Leaving me feeling a bit bleaker. Because it's not just the initial 1 year plus of treament but also the recommended years following of intermittant meds treatments as part of the protocol.

I plough on and fingers crossed results come my way and provisions of meds can continue!

Thank you Neena for looking out for me- it means a lot.

Kiki💖

Hi Kiki,

Look, remember, before last weekend I was worried that my walking had been getting worse, not better. Now it is better than it was. Still a long way to go, but I am wolfing down Biotin and Vit D2, as well as all the others. I am mobile between about 9am and 4pm, then the dreaded leg-drag returns.
I hope it will improve over time. I know I've said this before, but we've had that vicious little bug, CPn, eating away at us for decades. 

In terms of drugs. If you have friends who travel to India or Mexico, they might help. You can walk into a pharmacy and just say what you want. Neena has been terrific here, as was my lovely, former, next-door neighbour. I don't know yet what it's going to be like in Spain where I am moving, but I hope the doctors are better than here (and the rest of the world). If it is better, Kiki, I'll post you some. You live in Sweden? If it's not better in Spain, I have an American/Mexican friend who just this weekend contacted me to ask about CPN for a friend of hers. It's about time I visited her again. Also, I will be travelling to NZ in a few months, and I can fly many different routes, stopping in SA, for example. There are options we can try.

Take heart. 
xx Lizzie

Elizabeth Anne

💖💖Lizzie

I still plough on tho doubts gain momentum throughout this journey so not giving up! I'm actually up in Derbyshire- Sweden is my home country. And yes- there is always a way and Im sure all will unravel as to how it best be somewhere down the line! Lived in Spain myself for few years and tho things were far more relaxed than Sweden and North Europe Im not sure it still is so. Try to find a way of getting loads of your meds with you once going than counting on GP down there purely.

Thanks a mil for showing me your willingness to help your fellow "Protocoller" 😁💖

Take care Lizzie

Kiki

Dear Dear Kiki

I wonder where you live. Is it in the UK or somewhere else? I have a niece who lives in London and comes here frequently who can carry the meds for you. Unless of course customs seize them from her. You can then pick the meds from her house or she can post them , if that is still safe and she does not have to make a declaration what she is posting.

The extreme thing to do would be for you to come to India, stay with me, pick up your meds for a year and go back. But yes, so far Sonal does not have that problem. I can understand this must be extremely worrying for all those on the protocol and about to run out of antibiotics. When were you diagnosed? If early stages then you will improve. Maybe some people take longer to heal. Lizzie may be one of the lucky ones who improved fast.Good for her

Why are not some doctors scientists chemists joining a debate on this issue?

How are you? Try to keep your spirits up, which is difficult. I worry all the time about if and when  Sonal will get better, if at all and so on. Her movements are so very restricted even inside the house. And going out anywhere by herself is well nigh impossible. But her children are growing up -- 14 years and 8 years.

Take care

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Neena, the trouble is that most medical doctors will think that this is a wonderful thing that the government has done, stopping people from harming themselves by ordering inappropriate antibiotics.

In one sense, I can't disagree with them, because only a tiny amount will be for this treatment for chronic C pn, and most people have no idea as to how to dose themselves.  Even worse, most people will stop the medication as soon as they feel better, even if they should have carried on for a certain number of days: one of the causes of resistance, but by no means the biggest one.

The biggest one is the use of antibiotics for farm animals to make them grow bigger and more quickly.  I have only bought organic meat for about twenty years and if I couldn't find any, I ate vegetarian.

Anyway, I will not let Kiki fall by the wayside and luckily she seems to have acquired enough tini to last a lifetime somehow or other!  This all started only two or three weeks ago and it won't get any better in this country until The National Institute for Clinical Excellence (NICE) starts living up to it's name and acronym.

   

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah and all

you are absolutely correct. But who will explain to the medical fraternity which seems to be mostly tied to the Pharma industry. I don't think Britain would change things for the better whether it keaves EU or not. One will have to improvise and organise carriers to help those on the Wheldon protocol till better sense prevails.

I was thinking maybe it's time to put together a list of some 10 or 12 people who have been cured with details and see if BBC is interested. A friend used to edit for BBC and she knows a few people here in London I could ask her to ask somebody there and find out if they are interested. 

How can this treatment for MS Lyme and. Host of other supposedly incurable medical problems come out into the major stream. That is a problem.nHow about enlisting some MPs? Write to them and find out if they are interested. After all, this treatment could be made available through national health at a fraction of the cost the government spends otherwise.

excuse me for rambling. But do let me know if I can help in any way.

Sonal finished a 5 day pulse with nomad or event. Her next should be early August. Take care

Neena

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Beautiful soul Neena!

I thank you from depth of heart! It's truly lovely to feel cared for and having your offer of help! You never know...I might need to call upon your aid. Im in Manchester UK ( in countryside) and a London journey is nothing for sure! Like I said to Sarah...in months all might look different- both me and meds situation. We may even leave EU and end up with different rulings re online meds and all. Fingers crossed in all events and I will deffo keep yous in the loop well in advance. Currently Im stashed up for a good while.

Kiki💖💖🙏

Neena and Sarah and Jan and Boadicea (sp?), we are all fighting the fight. Sarah, if you hadn't persisted with CPN Help, I would be no-where. I would be declining fast like I was. I feel the bug is under control and the healing has started. I will continue with the antibiotics for at  the full year, then go to intermittent. I am taking very good multi vitamins as well as extra Vit D, Vit K, Biotin and Evening Primrose oil. 

Neena very generously  helped me get a 6-month supply from India of the abx I need,  in case when I get to Spain it's difficult. My former neighbour also had found me a 6-month supply. This means I'm all right until end of January 2020. 

I don't know how much better I will get, but the improvement so far has been more than I could have believed. Apart from being a bossy interrupter again (!!), I can also do mental arithmetic (if we're travelling at 50 miles per hour, how long will it take us to get to the town 12 miles away?) and I restarted a reading project: the Bible from start to finish (we never did RE at school so I'm ignorant) as I can concentrate for a decent period. I can read music once more. The list goes on. Plus, my formerly defunct business is resurrected and trotting along happily.
My walking is noticeably better - for a good chunk of the day, it's normal. I haven't pushed it, no need to.

So. Onwards with the supplements and the antibiotics, and I start the next pulse on Sunday. Alles gut, alles gut.

 

 

Elizabeth Anne

Hey Lizzie!

I am very glad Neena is helping you get the meds.   I am hoping to get enough to get further down the healing road.

I really enjoy reading about all the improvements happening in your life.... especially the improved concentration and walking.

I am right behind you on the next Pulse start date.

Cheers.

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Dear kiki

the magic of healing will and must happen for you. Just a few months down the line. I am also impatient for the first glimmers of hope for Sonal. 

No my offer is what anyone would have done. I mean it. You can come or your husband or a friend. Pick up the stuff for a year and go back. When things will get tougher in India I can't say. But hopefully not before those currently on the protocol would be through.

you take care of yourself and your child. Xx

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Kiki, don't think that things will change about this is we end up leaving the EU: the government has wanted this for years, ironically to stop people harming themselves.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.