MediTest
21 Apr 2019
Author
tuftyone
Title

Restarting abx

Body

hello if I was going to restart abx to take in conjunction with herbs, shall i begin the whole protocol again? 

Thanks

Comments

Hi everyone, I've been away for a few days. What a brilliant series of posts. Tufty - good on you. The thing I am seeing here is that people who are writing -- Sarah, Boadicea and MacKintosh - have actually been where we are and have had success. 

Personally, I have been taking the abx for 4 and a bit months. I've taken 2 pulses and am about to start a third on Monday coming. 
For me, the results have been tremendous. I have clarity and concentration for the first time in ages. I didn't realise it was an issue before, but: about 3 years ago I walked away from a successful executive search practice I had built up. I had lost all enthusiasm and it was just too hard to even think about getting it going again. I floundered around doing temp jobs and maternity cover, that sort of thing, since then. I said I've been away a few days. In fact, I've restarted my business and it's flying. I'm re-invigorated and have found my verve. (Mojo, Sarah!)

My walking had deteriorated badly in the six months before I started the course and it's getting slightly better. That's really the only thing that remains from all the little problems that had been building up. I can't walk miles, but I can wander slowly for a few. 

Sarah -- how is your walking now? Is it your only remaining problem? How immobile were you before you began the course? I'm wondering if I might get some specialist physio to help me? I think of all those stroke survivors who make amazing recoveries with the aid of good physio treatment.

Final thing, Tufty -- all my drugs have come from sources in India. That's where they are all made these days. 

Bye everyone. Oh -- does anyone know some good consultant Colorectal surgeons who might be open to opportunities in Christchurch NZ? Put them in touch with me!

Best wishes.

Lizzie

Elizabeth Anne

Hi Lizzie

wonderful to be able to return to your old job/ profession. Good thing is you feel well enough and strong. Keep it up. Every improvement in every CAP patient is a big big encouragement to everyone else who has started the protocol but is yet to see any recovery from the disease.

It seems such a long battle.

Rica Katman seems to have greatly improved her walking ability after MS got her down pretty badly. My daughter-in-law Sonal also has a huge walking disability -- cannot walk around the house anymore, does a little with a walker. But she is only one month into the protocol and cannot wait for two and half so that she could do a pulse.

 

Take care all

Neena

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Lizzie, what excellent news that you now feel well enough to restart your business!  You are about at the time when I was able to make a drawing or painting look like something to keep working on!  Before that I would just bin everything.

As for your walking it will slowly get better, even without physio, but you might be able to speed it up.  I have become a great believer in high dose biotin for this.  It is not an instant fix but even my right side muscles are much stronger than they were, meaning that I can walk in a straight line and go up and down stairs in a more dignified manner!

Apart from biotin, I find my elliptical trainer is invaluable, because it gently exercises everything, rather than making it look as though I am training  for a full marathon on cobbles.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks, Sarah. That’s very good advice. It’s so strange. Apart from terrible trouble remembering names and faces, I had no awareness of anything else being wrong. But now I can see it so clearly. Through a glass darkly...

I found a very good cheap supply of Biotin on EBay. Onwards!

xx

Elizabeth Anne

Hi KIki, I found this piece about the results of the first biotin for progressive MS trial in France: 

Twenty-three consecutive patients were treated with high doses of biotin ranging from 100 mg to 600 mg/day (median=300 mg/day divided in three doses) for 2 to 36 months (average of 9.2 months).  Fourteen patients suffered from Primary Progressive MS and 9 from Secondary Progressive MS. Five patient had visual problems, and 18 patients  had problems with disability related to spinal cord involvement. Assessment was of visual measures, walking distance, EDSS, TW25, muscle strength testing and videotaped clinical examination in a subset of patients; also  fatigue, swallowing difficulties, dysarthria, Uhthoff׳s phenomenon and urinary dysfunction.

21 out of 23 participants showed evidence of improved disability, 2 to 8 months after starting treatment. This was an open study – in other words both the people with MS and their doctors knew what treatment they were receiving; which can bias the results.

Possible modes of action of Biotin were suggested to be: activating the Krebs cycle in demyelinated axons to increase energy production, and assisting in synthesisng the long chain fatty acids that are needed to produce myelin.

I will add it soon to the research section, or my biotin blog.

Largely biotin is good for repairing the nervous system, and so works as a good aid to CAP.

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Fabulous news and help Sarah as always! Once I understand then I can move forth. I feel another online shopping coming on!! What would you say as regular dosage doing this protocal yourself? Also do you take it with other supplements or on own? With food or not?

Kiki💖

Those are the ones. You take up to thirty a day! They are very small and I take them in two goes.

You could buy loose powder and fill capsules or just sprinkle it on all your food or add it to a smoothie, it being water soluble. 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Congratulations on re-starting your dream/business!  It must feel so exciting to reengage with the world on your terms.

I'm right behind you in the Pulses.  I start my second full Pulse this coming Monday.

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

I really like reading comments like yours.  They are of enormous help in understanding and visualizing the scope of the protocol we are doing.  

I see this protocol as a literal battle between my Immune System and Cpn.... I think in terms of skirmishes, battles, tactics, strategies.... 

When I am in pain, like the last few weeks, I sit up and pay attention... and remain calm and continue on --I am actually cheered by the pain because I know, ....I know the antibiotics are doing what they are supposed to be doing.

.... And I'd rather some intermittent pain for a few years than increasing pain on a daily basis if I do nothing (or take the typical rheumatic drugs).

Again, thanks so much for writing and sharing your thoughts... I hope you do again!

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Just a thought...or two..

Just seen the news that the 26th(!!!!) Annual Race to Erase MS event has been held in Los Angeles.

All famous people whether sufferers or supporters decked out in fanciest haute couture strutting the red carpet a la the Oscars way. All there to find the CURE and ways to beat MS. Whether plasma treatments or chemo. Fundraising to do more research and find the golden goblet of a forever cure. 

In thought admirable. Yet another big event to find cure for a huge dis-ease. 

Do they even know of Cpn, this protocal and many positive outcomes? I'm naturally still in the midst of finding out how this will see me through and until then I shall keep process internally and observe. No sales person is ever convincing unless they personally know for sure how all works and have seen with own eyes how results pan out. Saying this as someone who for years sold myself as a product worldwide convincingly and made a career out of it. I always said that once I could do that I'd be able to sell anything to anyone as product items are so much easier to sell than a persons quality and personal work.

Long story short.. How on earth is the above event still being hailed and held for 26 YEARS!!!???

Why hasn't more effort been put into research for ways of positive outcomes found already and so put out there for information to access rather than more and more high tech medicated routes to be tested and pushed forth? Why still this train of thoughts of how relapses only can be spread apart further rather than focus on underlying cause?

EVERYTHING has an underlying reason/cause. Whether medical, in nature, in emotions and on and on. Nothing comes from nothing. All is a chain of events and feelings. WHY are we as humans so hung up on pure linear thinking and problem solving. Where's the (w)holistic thought processes gone?

Pardon my full on philosophical  rant but it just SO saddened me to see the sentence attached to this MS event. 26th ANNUAL!!!

I'm hoping I'm not doing this way forward for the next 26 years.

Kiki💖🙏

Kiki

How right you are about such events. What I fail to understand is if there are even a few recorded cases of cured MS or improved EDSS with the protocol why dont neurologists mention this to patients. This is nothing short of criminal to allow people to deteriorate and not be able to function without giving a simple enough treatment even a chance.

Neurologists have no right to deny information to their patients and let them make a choice.

How are you doing Kiki past the second pulse I presume?

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Neena

Im about to start 3rd pulse next week Thursday. Taking it all in stride and planning how to deal with better now knowing how vefy tired I get halfways through the pulse and how that tiredness lingers for a few days afterwards. The journey goes back and forth like waves. One moment or day I feel more energized and another moment/day Im feeling well tired again. Same as physically too. I have noticed that with drinking water lots more, more early nights so longer sleeps and eating better food more regularly I feel a lot better. It's all still very much questionmarks as to if Im improving so doubts creep up but I persist plodding along as thinking there isn't really another option. Patience is deffo my life lesson and Im learning it better and better now!

Kiki💖

Good for you Kiki I don't know why but the third pulse, that is, six months of treatment for most people on this site seems to mark a new chapter in the treatment with almost invisible improvements. So good luck in your journey.

my daughter in law Sonal is still almost two months away from even the first pulse and with a huge walking disability which confines her mostly to bed we are all impatient or rather waiting patiently for weeks to roll by.

By the way do you take Doxy and the Roxi or Axith together at one go for the day with or away from food? We are not sure for so far Sonal has been taking the antibiotics with food and maybe she should. Huge that.

take care

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Neena

I felt same waiting to start pulsing but its worth it as I felt completely fine doing the pulse and not sick at all. Just extra tired midway through. It also gets you used to the marathon this is!

I always have a small bowl of breakfast muesli with some blueberries in the morning, wash up then take doxy and roxy in one go with half a banana. 2 hrs later I take probiotic, B12, NAC and calcium/magnesium tabs.

Midday I pop another B12

After lunch I take the artillery of:

Omega 3, vit C, vit D3, B12, selenium, B complex, Turmeric capsules, Co Enzyme Q10 and I'll be adding Biotin to this now.

Last thing at night on an empty stomach I take activated charcoal before bedtime.

How I understand it the doxy and roxy gently nibble away at the Cpn and the pulsing of Tini ( this is what I take and with no bad side effects) is the actual "killer" of the bacteria ie Cpn. But waiting those 3 months before pulsing made it so much easier on my body so well worth it.

You learn as you go along. Ive slowly added more supplements as Ive understood their benefits. And also Sarah and people on this forum are super quick and helpful whenever you have a question or query! A wonderful supportive tribe surrounding us!

Kiki💖

Kiki, Lizzie, Sarah

Thanks for the info Kiki. I was thinking aloud to myself that suppose a few of the MS warriors who have succeeded to battling the disease on Wheldon Stratton protocol were to write a joint letter to The Guardian or The Times London newspaper it may be a good way to publicise this protocol.

 

The letter could point out the apathy of the neurology experts and the medical establishment while emphasising the right of patients to be given all options including the Abx treatment designed by Wheldon Stratton based on the amazing results.

 

Any takers for this idea? Sarah Rica Lizzie and some others could jointly sign

Neena .

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi Neena,

That could be a good idea. My improvements so far have been unseen ones (memory, lack of sore in mouth and knee) so I don't know how seriously I would be taken. But by all means, if a signature would help, I'm in. Definitely.
Good on you.

Best wishes,

Lizzie

Elizabeth Anne

Neena, that would be an excellent idea except that people still on the protocol need to safeguard their supply of abx.

At the moment, government authorities such as the ill-named 'NICE' think about antibiotics not as something that might make you better and long term antibiotics are 'streng verboten!' which might cause mrsa or something like.

After all, they still think of MS as an auto-immune disease and not something to be cured by getting rid of a pathogen!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah'Kiki'Lizzie

yes you are right. We should not do anything that might jeopardise supply of antibiotics or even bring down this so so useful site -- it is a lifeline for all struggling with the disease monster.

Yes this auto-immune tag is so awful for it describes your own system as having become cannibalistic and feeding on your brain or joints or guts.

Maybe the letter could refer to earlier research done by Dr Stratton and others and point out that neurologists and the medical establishment needs to give those options to people suffering -- especially those who are steadily going down and have got no help from the so-called disease modifying and pocket bankrupting drugs. So much publicity is instead given to experiments that shut down the immune system through dangerous chemotherapy and then reboot the system -- even causing death of patients.

By the way I dont know if you are aware that an Israeli pharma company has done trials with combined antibiotic protocol with good results for MS and other autoimmune diseases. I will see if I can post that link on the research section.

Neena

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Good for you, Kiki. It’s hard to know what we can do. If well-regarded people like Dr Wheldon and Dr Stratton can get no where despite the results. MRI scans, for crying out loud. 

And that brilliant Catalyst programme. 

I know what you mean. Fundraising for MS is worthy. People who mean well really try. And the pictures of ‘brave’ patients. But it never has had any breakthroughs...

Bye for now!

xx

Lizzie

Elizabeth Anne

This is Sonal, Neena’s daughter-in-law and I’m one month into the CPn protocol, in fact I haven’t yet started the pulse with the 3rd abx.  Roxy and doxy haven’t had any adverse effects, but there is no improvement either as of yet.  I realise it’s too early to expect that.  Still trying to find a rhythm to my various supplements, reading your experiences and regimens with them is very gratifying and an education.  I am trying to incorporate as much as I can from all your experiences.  Want to say thank you for sharing and being so honest. Till next time — Sonal 

Hi Sonal, 

The way I look at the pace of the recovery is that the CPn has been slowly eating away at us for ages, so the body needs to have time to repair as much as it can,  after the bug is gone. Would you agree, Sarah, Boadicia and everyone? The supplements will help the recovery while the drugs are killing off the bug. A two-pronged approach. Also, Jan sent some information a couple of weeks ago that showed that CPn is leeching our normal minerals and vitamins on-goingly. It made so much sense to me. Thus, as well as the physical damage the bug is doing, we are at the same time under supplied in nutrients -- the other reason for the supplements. 

I'm feeling the effects of the treatment; I hope you do too.
 

Best wishes,

Lizzie

 

Elizabeth Anne

Spot on Lizzie!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sonal

Kiki here. Don't worry- I'm still feeling the newbie trying to figure all out too! With intent and dedication comes results- may we all achieve best results on this journey!

Kiki💖

Hi Sonal! I think that at one month I would have said the same, that I had no adverse effects but no improvement either.

Thinking back though, I had both stopped the rapid decline downwards and was regaining my ability to think clearly, which was really the most important thing of all.  You might be the same!  

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Yes I agree... lucid thoughts, patience and more energy... all very important too...

soldier on all you!

sonal