MediTest
15 Jan 2019
Author
ElizabethAnne
Title

My renaissance, starting January 2019

Body

I ordered a 3-month supply of the Wheldon Protocol from India, via my Indian neighbour. 

It arrived today (£35 for Doxycycline, Azythromycin and Metronidazole) and I've taken the first 100mg of Doxycyline. It is extremely exciting. I told a friend about this and it turns out her sister had a 3-month prescription of Doxy for a skin condition, and her mysterious aching muscles got better as well.

Onwards!

Comments

Neena, my suggestion is that Sonal starts at maybe half the full dose, then moves up from there, or maybe more, because whenever she writes to me, she is doing much better than I at first thought!

You can find the full dose in my biotin blog!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Everyone,

Pulse two is over, and it seems to have passed by without incident like the first. I'm aware that die-off symptoms might strike after the pulse has ended, so painkillers are to hand!

One thing I have noticed is that my walking improvement has not been as good as I thought it was; I need to take it more gently.

My logic was that if I was getting better, I just needed to push myself a bit harder and the improvements would accelerate. Wrong!
This is not like training for a marathon. (Which I have never done, BTW)
We went for a long walk on Friday and then one yesterday. Even though for me it's stroll, rest, stroll, rest, stroll, rest, I cover about 3+ miles.
I stumbled along badly. It's too much all together. So today, even though it's still glorious weather, I'm taking the day off walking (hobbling) and will take a book to read.
I've had CPn gnawing away at me for at least 25 years. It's going to take time to get rid of it, then to get better. I'm 3 months and 2 weeks in and all is well, and all shall be well. 

Bye!

xx

Lizzie

 

 

 

 

Elizabeth Anne

Lizzie, you are much like me with the 25 years gnawing away, having gone down with relapsing remitting MS almost as soon as I had got my MA. I met and married David about twelve years after that and progressive MS set in after no more than ten years.

However, I was able to move onto intermittent therapy after just a year!
Sarah xx

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Go easy on it: I'm lucky because I can get it through my big studio windows!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Of course Lizzie all the luck you can snatch! In six months more the protocol will be more or less over for you. Hurrah! Another battle against MS won!

neena

 

 

 

 

 

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hi there,

Last day of pulse # 3, and I feel really good. I'm getting up early because of the head-hunting I'm doing across timezones, and have energy all day. It's terrific. I am my old self. 

Looking forward to the cider and wine tomorrow!

How are you Kiki? Rocking along?

Bye,
Lizzie xx

Elizabeth Anne

Hi Lizzie!

Only day 3 here so still weekend to go. I usually get extra tired by now plus 2 days afterwards so by mid/end of next week I'll know more. Just got some biotin delivered today so will start taking them post pulse.

It was deffo a more quiet , internal day kind of day. Minimum chores and more self caring whilst battle is raging away!

Kiki💖

Hi Lizzie

A bit decked this weekend but to be fair I still managed to do more than usual during previous pulses albeit plenty mini rests in between! Day 5 yesterday Sunday so reckon residue tiredness for next few days but I'm planning all around that anyways. You soon get into a management schedule of self. Starting biotin today too so hoping to feel more positive advancements. I'm deffo feeling a happier person and stronger in mind! Already pencilled in the next 2 pulses in the diary- that's how keen I am haha

Kiki💖

Good on you, Kiki. I was doing the same myself  -- I finished on Friday and immediately starting working out the next lot. When I look back on the three I've done, it's been pretty good, but, I have been sleeping a lot. I just read out your note to my husband, and he said "Just like you." with the bit about the mental energy.
It's such a relief, Kiki! 

Now, if I can start really improving the walking...

 

Elizabeth Anne

Lizzy, before you move, you must make sure that you have a friendly GP, who will prescribe you all that you need. Showing him/her the Catalyst film should help.

Up until now, buying abx in Spain has been comparatively easy, but things seem to be changing.  To start with, buying from online pharmacies has suddenly become well-nigh impossible on this side of the Atlantic, so Spain's pharmacies now might be similar.

I can't even get propranolol for a nervous disposition now without a prescription, so I will have to try to make myself less inclined to nerves.  I am damned if I am going to make an appointment with whoever my GP is now, when I haven't seen her since 2008.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I have been waiting 3 weeks for an order from the online pharmacy that you had suggested to me.  When I write them on their support page, they do not reply back.  I have tried to call them many times in the past 2 days and the call is terminated after the first ring.  It appears that they are avoiding customers that have paid for the product but not received it.  Maybe they have closed up shop and absconded with customers' money.

Scott, it appears that in the UK and other European countries, a big pull has been made over the last week to stop people from buying from online pharmacies.

Someone on this site ordered from the same place as you two or three weeks ago, and received her order earlier this week.  However, the site now seems to have vanished from the internet.  I don't know whether you got in too late but she got in just in time, or whether you will still receive what you ordered.

Someone in America has been told that she will receive her order from another company in a few days.  She will let me know when she does, because the USA does not seem to be affected at the moment.

Having said this, The Powers That Be have been trying to shut down online pharmacies for years and years, for the benefit of us all.

Please don't blame me.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I do not blame you.  There is a big irony here in Sweden.  The doctors refuse to prescribe antibiotics, but they have no problem prescribing SSRIs (Zoloft, Prozac, Paxil, etc) as if they were dime-store candy.  Most recent figures by the medical community indicate that 20% of the Swedish population is taking these SSRI antidepressants.  The doctors do not seem to be at all worried about Serotonin Syndrome and addiction.

You could probably have a laugh with David about that, because when he was in training, a GP he was working with didn't understand why a certain patient kept coming back for more Valium, when the company that supplied it guaranteed that it was not addictive!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah 

Re pharmacy - any ideas of poss reapperance of company again as been the case in the past? Or even other reliable sources? It's naturally worrying event as a few of us now on here are newbies to protocol and requiering meds for few more years to come in intermittant and current full time treatment plans.

Kiki 💖

 

This crackdown on antibiotics could be part of a larger "anti-science" trend in the EU.  My 12-year old son just finished 6th grade here in Sweden.  During his 32 hours at school each week, only 1 hour was devoted to science, 2 hours to math, 2 hours to "equality training", 7 hours to gym class, 8 hours to extracurricular (music, cooking, knitting, arts & crafts, etc), and the remainder to Swedish and English.  2 out of 3 universities that offered master's programs in nuclear physics programs have shut down, but 40% of the electricity is generated from nuclear power!  So, when it comes to the EU, logic is not part of the decision-making process in matters of science and medicine.

Scott, how much of that is due to Sweden and how much to the EU? Whichever way it is stupid. Seven hours a week to gym? As for "equality training!!!"

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Within the EU, Sweden is definitely the most extreme in their views (especially in regard to antibiotics).  However, the EU (Brussels) has taken an anti-science stance on many issues while placing extreme emphasis on diversity and equality.

Kiki, what normally happens is the pharmacy reopens under another name, and I think this one has already, because the name of one of my friends from up north was on my ordering list.

All well and good, except the European Powers That Be are stopping people from ordering from such places.  A new MS patient from Connecticut managed to order her first three months from them and it should be arriving any day now.

I keep thinking that this is all a bad dream and I will soon wake up from it, but the only thing I can think off at the moment is private GPs willing to write prescriptions, or friends in the States willing to send stuff to you.

Or maybe, and this is something that I have hoped since that tiny majority voted for us to leave the EU would never actually come about, if we do leave, we will once again be able to order things.  At least some good would come out of us having to leave.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

The http://5-order.com site finally replied to my inquiry about the status of the order and provided a postal tracking number.  It indicates that Swedish Customs received the package 2 weeks ago (July 3!) and returned it to the sender, stating that there was insufficient information.  They should have refunded me when they get the package back but they did not!  I will try to call them again today, but they were not answering their phone yesterday.

I should also mention that I asked them for status last week as well.  They replied that I should get it this week, even though the package had already been returned to them!  So, their support site is neither truthful nor reliable.

Dear Scott

I also previously had parcel returned as insufficiant adress on label. Mind you my adress is fairly long too so doesnt always work fab with online spaces for adress details. Parcel got held up in Post Office distribution office/hub and when I started chasing it with emails to pharmacy they did their utmost to let my know track history. In the end I called the UK  post office hub. Providing my details they then told me it was held in my local post office and had been so for a while and just to go down there with ID and collect!

Which I did but also wondered how long it would have been kept there had I not chased it and  with no info for me to collect it!! Another time parcel didnt show up but after email again with pharmacy they resent the order free of charge which timely came to me at the same time as the first original order so wham I ended up with double the order! 

Being a Swede myself with a retired Post office clerk of a mum I would rather say that the Swedish Post has gone down in excellent service they used to provide and should have informed you of package received. People have always misjudged costings of stamps etc but the receiver could always pay towards the missing amount in order to release parcels before.

Kiki

Dear Kiki

I am skeptical in my case.  If they had re-sent the package to me, then why didn't they provide a new tracking number rather than the old tracking number.  Also, 2 weeks has passed since Swedish Customs rejected it and they did not bother to inform me (the opposite actually - they told me that it was still in transit).  Nevertheless, I will go to the post office tomorrow and inquire about it with the tracking number that I was given.

It is not just Swedish Post that has gone down in service.  I saw 8 doctors in the past few months (5 of these were in the ER).  They all deny that Cpn can exist as a chronic infection.  They all deny the existence of 3 life phases of Cpn, including the cryptic form.  They all said that a 10-day treatment of doxycycline eradicates Cpn.  It was like they had all been pre-programmed to tell me the same thing.  I told them that they are basically calling these peer-reviewed medical and scientific journals as fraudulent.  Even the head doctor at the Infectious Disease Unit at USÖ made these statements.  In one instance, one doctor told me that a test for Addisons had been done (and that it was normal) and then 2 days later another doctor told that the test had not be run because the assay reagents were not available.  Clearly, one of them is lying.  I check my online journal and there is no record of the test being requested.  When I was in the hospital, the nurse came in one morning and told me that my primary physician had requested a blood sample for testing.  They took 4 tubes.  A couple days later, I asked my doctor what test had been run.  He said that he had no record of any blood drawn for testing and had not requested anything.  I feel like I am trapped in the Imaginarium of Doctor Parnassus here in this country.

D W

Nothing about modern medicine surprises me.

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]