MediTest
15 Jan 2019
Author
ElizabethAnne
Title

My renaissance, starting January 2019

Body

I ordered a 3-month supply of the Wheldon Protocol from India, via my Indian neighbour. 

It arrived today (£35 for Doxycycline, Azythromycin and Metronidazole) and I've taken the first 100mg of Doxycyline. It is extremely exciting. I told a friend about this and it turns out her sister had a 3-month prescription of Doxy for a skin condition, and her mysterious aching muscles got better as well.

Onwards!

Comments

Lizzie, this can be slightly difficult to ascertain. Obviously you don't stop if you show no signs of improvement, but I found that once they start, they carried on with me, even after I had finished. I took one year full-time and three intermittent.

I still can't run and feel it safer to use trekking poles for walking, but I keep fit with my ellipse.

I have always been able to touch my toes but my plantar reflex was rather erratic for years so I never listened to peoples' advice to go to a chiropodist, for fear of knocking them out! 

If you have weak mails, find my piece about high dose biotin. Nerve cells started out in the womb as ectoderm, like hair, nails and skin, so if your nails become super-strong, think what might be happening in your brain! 

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

By the way Lizzie, I might not yet have remastered my running expertise, but Mackintosh, lucky thing, can run up and down her stairs. This just goes to show how people can be different.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah,

Thanks. I'll get some Biotin this weekend. I currently take a pretty good multi vitamin supplement - have done for a long time. I've had foot drop for about 10 or 11 years, when I think about it. To start with I could walk about 4 miles before it came on. It was like that for a while then deteriorated massively when I used a body spray that I reacted badly to. I never recovered fully from that, and  I could only walk about 2 miles then drag that blessed foot.
And of course it started getting a lot worse 5 or 6 months ago.  I've had a couple of brief recoveries, then back it's gone. 

I would love to be able to run down stairs. I live in a converted shoe factory (Northampton, after all!) on the second floor, up concrete steps. We bought here before the latest degradation...

Bye!

Lizzie xx

 

Elizabeth Anne

But don't make the mistake which a lot of people do, which is to take the number of pills recommended on the container.

You need to take more than twenty a day: well, they are only tiny.  Or you can buy biotin loose and pack it yourself: I can't be bothered!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah,

Just read your note. I started on Saturday with 4000 mcg a day. The tablets I got from Holland and Barrett each are 1000. 

I've just looked online. There are tablets availalble at 10,000 mcg. I'll order some of those with the aim of 20,000 mcg /day/ What do you think? 

Thanks,

Lizzie

Elizabeth Anne

Lizzie, if you want to try high dose biotin without packing your own capsule, you will go for 10,000 mcg ones. I have taken up to thirty of them, but now 15-20.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

How about trying Oxford Vitality, where you can buy packs of 500 a time. No excess packaging and no extra supplements sneaked in to the pills, for 27.99 if you get them from Amazon.

Or the cheapest way is to  uy loose biotin and fill capsules with it. Supaguy does that! 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi!

I've been taking High Dose Biotin for about 2 years. 

A couple of comments:

I have something called Partial Biotinidase Deficiency, so I need extra Biotin.  

I spent quite a lot of time titrating up to my current daily dose (100 mg./day... this is in 1 capsule)... and please note that is MILLIgrams, not MICROgrams).  I get a significant increase in energy when taking Biotin.  

 

I use two sources: 

--a company called MetaBiome:  https://www.metabiome.com/

and 

--a company called Bulk Supplements:  https://www.bulksupplements.com

(Caution:  Bulk Supplements sells two forms of Biotin--one is "1%" which is cheaper, but has a lot of fillers.  I stick with the "Pure Biotin" which is significantly more expensive, but no fillers.

 

Also, I've run into problems when doing bloodwork.  I must have a "washout" period before having blood taken ... at least four days.  Otherwise, the results are skewed:  https://labtestsonline.org/news/fda-warns-biotin-may-affect-some-lab-te…

 

Cheers,

Jan

 

56 y.o. with possible dual diagnoses that I am working to confirm this year:
Ankylosing Spondylitis and Scleroderma
Serendipitous discovery that Doxycycline relieved pain/stiffness/soreness during a trip to Africa
Have started Doxy + Roxi; waiting full 3 months to pulse Tini.
Have most of supportive supplements in place for many years including NAC.

Hi Jan, it is true that high dose biotin increases your energy! It is also true that if Lizzie could be bothered to buy the powder and put it into capsules she would find it a better price. Well, once the machine for weighing the amount is accounted for!

I hope David doesn't notice your post or he might be wanting me to take even more!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah, Jan, 

WOW. You are all amazing. I'd write more but I have to go to a meeting, been offline for a few days and look at what I miss. Damn!

I will be back!
Thank you

Lizzie
ps I will certainly weigh the biotin powder -- where do I find it? xx

Elizabeth Anne

Lizzie, I found some pure biotin without any additives or filler from Belle Chemicals on Amazon. The thing is, I don't know whether it is a good price or not: £76.99 for 113g.

I can't remember if Jan is Australian or American!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hey Sarah!

I spend too much time reading on PubMed and https://Europepmc.org.

This whole discussion of Biotin had me searching/thinking:

Have a look at this article:

Uptake of Biotin by Chlamydia Spp. through the Use of a Bacterial Transporter (BioY) and a Host-Cell Transporter (SMVT)

 

For my own situation (with Partial Biotinidase Deficiency) and having a long-term C. pneumoniae infection, I think any small amounts of Biotin (MICROgrams: typical dosages in multi-vitamins and in single pill doses) was just enough Biotin to feed the C. pneumoniae-infected cells in my body with barely enough to keep me functioning (I had very poor energy levels my whole life ---and jacked myself up with a lot of caffeine).  

When I discovered my P.B.D. via genetic testing, I started upping my Biotin doses --and probably feeding my C.pneumoniae infection... so I would feel better, more energetic for a while (Biotin being a limiting factor in my general metabolism), and then I would feel slightly worse (less energy).    

So, now that I have started the C.A.P., I am starting to kill the C.pneumoniae-infected cells ... in a few months (after pulsing the Tinidazole for a while)... I should be feeling a bigger energy surge.  That is:  fewer C.pneumoniae-infected cells stealing my Biotin (and other essential vitamins/nutrients) and more healthy cells just doing their thing.... giving me good energy.

Hope this all makes some sense.

 

Cheers,

Jan

 

56 y.o. with possible dual diagnoses that I am working to confirm this year:
Ankylosing Spondylitis and Scleroderma
Serendipitous discovery that Doxycycline relieved pain/stiffness/soreness during a trip to Africa
Have started Doxy + Roxi; waiting full 3 months to pulse Tini.
Have most of supportive supplements in place for many years including NAC.

Jan, this is very interesting: we must talk more about it, but now I must go do some work!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

56 y.o. with possible dual diagnoses that I am working to confirm this year:
Ankylosing Spondylitis and Scleroderma
Serendipitous discovery that Doxycycline relieved pain/stiffness/soreness during a trip to Africa
Have started Doxy + Roxi; waiting full 3 months to pulse Tini.
Have most of supportive supplements in place for many years including NAC.

I live in New Delhi, India. Where are you Elizabeth? I could try send you medicines you need. Do let me know. Sarah can give you my email address. 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Neena, I removed you email for security reasons but have sent it to Lizzie!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi all!

First of all, I am an American... living in the beautiful Sonoran desert (my mom is Welsh---emigrated from UK in the 60s)....

Secondly, the Belle Chemical prices for bulk biotin compare favorably with the prices at Bulk Supplements (not including any shipping/taxes).

https://www.bellechemical.com/store/biotin-vitamin-b7

https://www.bulksupplements.com/pure-biotin-vitamin-b7.html

 

You can purchase these products via their specific websites or via Amazon (either US or UK) sites.

 

Cheers,

Jan

 

56 y.o. with possible dual diagnoses that I am working to confirm this year:
Ankylosing Spondylitis and Scleroderma
Serendipitous discovery that Doxycycline relieved pain/stiffness/soreness during a trip to Africa
Have started Doxy + Roxi; waiting full 3 months to pulse Tini.
Have most of supportive supplements in place for many years including NAC.

Hi Jan, Sarah, Kiki etc.

I learn so much here. 
After I was diagnosed, I figured I just had a low absorption rate of minerals and vitamins, etc, as when I took supplements I felt better.

Now I learn through you that it was because CPN was leaching off me all the time. I thought the illness was caused by the lack of absorption not the other way around. Amazing. Jan,Kiki, we're about at the same stage I think -- all longing to catch Sarah.

Thanks for the advice on where to get bulk Biotin - a new friend, along with Vit D, Evening Primrose Oil, and the rest.

Bye!

Lizzie

 

Elizabeth Anne

Good morning everybody!

I'm starting Pulse 2 (Metronidazole) today. It's 3 days early, but with Easter holidays coming up I thought I might get it done en avance. Last time, I did 5 days with no ill effects, so here's hoping this one will be fine as well.

I continue to feel well with a lot more energy and concentration than before. I'm remembering names and faces from years ago. It's such a relief. I'm also getting back to normal with languages -- I (used to) speak French and German and a bit of Spanish and Japanese. Anything I had learned in the last 20 years was gone; I forgot it all. But now I'm remembering it again. It's wonderful.  

Also, I went walking in the weekend with my husband, and he said he noticed an improvement in my stamina. I walk a bit, then rest, then walk, then rest etc. On both days I went further with fewer rests. I didn't notice it, but he did, which is hugely encouraging.

So! It's working. Thank you everyone for this. You've all been fabulous. 

xx

Lizzie

Elizabeth Anne

If the people closest to you notice an improvement, it is real!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Dear Lizzie

good to hear you can feel the improvement! That is so encouraging for all of us struggling with disease.

keep it up and tell us when the second pulse is over. Best wishes

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

To be really honest I've not paid too much attention! Due to my intense caring for others Im always last on list so just plodding along doing protocol but not noticing too many changes. If anything Im still expecting little things over longer periods to accumulate and become bigger more noticeable changes that I even notice!

Kiki

Hey Lizzie--

Really happy you are improving... It must feel wonderful to have things you thought were forgotten come back.  Nice to be able to walk further and further too. 

Happy Easter!

Jan

 

56 y.o. with possible dual diagnoses that I am working to confirm this year:
Ankylosing Spondylitis and Scleroderma
Serendipitous discovery that Doxycycline relieved pain/stiffness/soreness during a trip to Africa
Have started Doxy + Roxi; waiting full 3 months to pulse Tini.
Have most of supportive supplements in place for many years including NAC.

When starting abx -- Sonal is just in her second week -- how much biotin should she be taking? any ideas? or should she get herself tested? Any particular blood test?

Best wishes for Easter.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.