MediTest
15 Jan 2019
Author
ElizabethAnne
Title

My renaissance, starting January 2019

Body

I ordered a 3-month supply of the Wheldon Protocol from India, via my Indian neighbour. 

It arrived today (£35 for Doxycycline, Azythromycin and Metronidazole) and I've taken the first 100mg of Doxycyline. It is extremely exciting. I told a friend about this and it turns out her sister had a 3-month prescription of Doxy for a skin condition, and her mysterious aching muscles got better as well.

Onwards!

Comments

I've got it: the mojo of our revitalised immune system is stopping our hair turning grey!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Elizabeth - please don’t panic if symptoms start to get worse again when you start pulses. It can become a bit of an up and down battle for some of us - constant two steps forward, one step back. Worth it in the end though.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)

Thanks, Boadicea. I'll certainly bear that in mind. These comments are a bit mixed up again; I hope this comes as an answer to your kind comment. 

Tell me, how are you doing? I was just reading your self-description. I can't see your total progress, unless I'm doing this wrong? Sarah is such a beacon of hope to us all. I hope  will be like she is.

Cheers,
Elizabeth

Elizabeth Anne

Elizabeth, one more thing I will add re: pulsing:

I did a full five day, full dose pulse, the very first time I started it.  That first pulse passed without difficulty, but then after a few weeks the bursts of pain started and the third pulse had me in tears, leaning against the aga.

On the plus side, when this pain passed, it never returned!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah, 

Thanks. That sounds pretty devastating. 
How many pulses did you do? Also, how do we know when it's finished, when do we stop? It doesn't say.

On the Wheldon Protocol I printed out it says one pulse dose every 3 to 4 weeks, then increase to 5, gradually, yet you say you started with 5?
Perhaps the protocol was amended because of your reaction? 

This is the toxins released by the killing of the CPn, correct?

You're being so helpful.

Thanks again.

best wishes,

Elizabeth

 

 

Elizabeth Anne

Well, the protocol was amended, but not because of my reaction, but of people coming later, who had so much difficulty in building up at all.  At this point I will add that metronidazole is generally speaking, the harder of these two imidazoles to take.

How many pulses did I take?  Well, after a year, I started on intermittent therapy, after having done nine or ten pulses, I think, then about another nine spread over three years.

Then I just stopped, and that was it!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Never had any problem with metro - seems it was the easiest of all the ABx's... (damn Doxy was the worst - always - stomach upset if not hydrated enough, the freakin' sunburn stuff, etc.)

Been thru two ABx stints (first one was for 18 months, and then after two year recovery, the last one was for 9 months)  and the only thing I noticed was each time during the first few seven day pulses every four weeks, the stuff coming out of my bowel movements were just plain disgusting looking (slime, lumps of white stuff everywhere, long stringy junk, etc.). Never any pain or other side effects...

We find consultations, we learn tricks with which we deceive ourselves, but the essential thing - the way - we do not find. Listen to the river...

Thanks for the information, Sarah and BatGirl. I know I've got some time to go. Sarah, for future reference (2020 ha ha ha), is there information anywhere about what the intermittent treatment is? 

BatGirl, we're all so different, eh? I find Doxy so easy I now take Azythromycin at the same time with no ill effects. However if I take multi-vitamins on an empty stomach I get really queasy... I get travel sick even on a train if I'm facing the wrong way...

Bye!  Best wishes,

Elizabeth

Elizabeth Anne

Hi Everyone,

It's now 2 months since I started Doxycycline and Azithromycin. I've had no ill effects and plenty of good effects.
I have more energy and sleep well.  Many little things that were wrong with me -- sore knee, shoulder etc -- have gone away. My drop foot seemed to get a lot better but has relapsed, so walking is a struggle.

I take multi-vitamins and minerals and pro biotics. In due course I will get the healing and recovery supplements as well, but not just yet. It's expensive.

Sarah, Batgirl and others, thanks.
Two friends of mine who have bad MS now know about CPN as well. They're thinking it through. You guys deserve MBEs.

Best wishes,

Lizzie

 

Elizabeth Anne

Ah now, the people who deserve the MBEs are the people who developed the protocols, but I think Stratton should actually be given an OBE or whatever the American equivalent might be!

Now, where was I two months in?  The first thing that happened was I got my seemingly much admired speaking voice back.  I was also starting on the path of being able to draw and paint again, after having been told that I would never be able to again.

I definitely got more energy and started to sleep better, but soreness I have never suffered from: David did though, and his vanished pretty promptly, even quicker than his high blood pressure and sticky blood, two more things which I never suffered from.

Lizzie, it might be worth trying to get a few more friends look into this.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah and everyone else who's well informed!

I've been taking Doxy and Azith for more than 2 months, and it's been fine, except my walking is not reliable at all. Everything else is superb.
The advice is not to start taking the Flagyl pulse until 3 months with Doxy are up. 
I'm nearly there and I would dearly love to get rid of CPn and start to heal. If I were to start a little earlier, 2 weeks, okay, 3 weeks, would it be too great a risk? 
Spring's almost here and I would so love to start thinking about long walks again. Even if it's not an immediate healing process it would do wonders for my positivity. Thing is, I'm looking out the window knowing I have to walk a mere 800 metres to the shop, and I'm putting it off as I know it will be hard.

Best wishes,

lizzie

Elizabeth Anne

Lizzie, though I somehow doubt that you will be able to charge about the countryside again quite that speedily, I agree with you about positivity, and knowing that you have had no trouble so far, I doubt if three weeks would be too great a risk. After all, I did a full five day pulse straight off and you do know that if you feel as though you have had enough after say, two or three days, you can just stop and call it your first pulse, which might be better than plugging on regardless.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Best of luck to both of you but please go gently at first!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

ElizabethAnne, I started both doxy and azith on 06 October and began my first flagyl pulse some seven weeks later. Though I did have a bit of 'what have I done' after popping the first flagyl into my mouth right after Thanksgiving dinner, It all went remarkably well.

This was before we knew to start more gently, so feel free to take your time about working up to a 'full' five day pulse. The effects are cumulative and you might find yourself laid low by bacterial die-off if you push through a full pulse the first time out. Stop the pulse if you don't think you can do it. No shame in that. Next time, you do a little more, until you work up to full pulses each month. Trust your body and be mindful of what it's telling you to do (or NOT do).

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi MacKintosh,

Thanks very much for your helpful thoughts on this. I've now completed an initial 5 day pulse, and it seems to have gone well. No sickness or headaches.

I am quite aware that I might get hit with some rotten symptoms at any time, but I'm braced for that!

Best wishes,

Lizzie

Elizabeth Anne

Hi there,

I started on Saturday 23rd March, and so far so good. I've felt nothing except it was a bit hard to get to sleep last night. 
Apart from that, truly, I feel fine. Mackintosh, you say the effect builds up? I'll stop if it feels bad. 
Sarah, I think you said you had some pretty awful symptoms. Was this during the pulse?

My family back in NZ are on alert in case I get ill, but nothing to date!

Kiki, it's been fine. The only thing I have to try to remember is to take the pro-biotic before sleep, and to take the midday drugs dose with me to the office. I regularly fail. 
I'm really concentrating on how I feel just in case something is lurking there. 

Thanks for all your comments.

Bye for now,

Lizzie

Elizabeth Anne

Fab to hear Lizzie!

It's all most likely a journey of ups and downs we're undertaking but so pleased to hear you're coping well! Are you on Tini or Metro for pulsing by the way? I'm keen to get going but have a few already planned family activities I'm committed to so will go ahead with all by 5th April myself when calmer around me.

Kiki

How have you been doing? I've been okay, though a bit cross that my walking went back to what is was before I started. Silly, isn't it. I mean, I read all that Sarah and everyone else said, that you're not necessarily going to heal until after the pulsing, but...

Now I am back to my normal state of mind, i.e. positive, especially since I saw that ABC program on Youtube.
bye!

Elizabeth Anne

I'm to do Tini myself so I thought to ask. Yes physically it's all gone weaker and less reliable for me too. Frustrating but I've already written off this year with intention of myself being under construction for a new 2020 to be fair knowing it's a long road. I'm hoping to see some changes for the better come summer time. Having to learn to take time and pace myself in order to function is deffo a new thing to me. But hey...life's all about learning and re learning! All best for the rest of pulsing Lizzie💖

Hi Kiki, 

I've still have no effects from the drugs. I'm braced for the worst, but it might be a couple of pulses away, if I'm like Sarah.
I've been working as normal; I don't feel it has slowed me down. Isn't it wonderful? I still can't quite believe that this knowledge has been around for donkeys, and I only just found out about it.

Funnily enough, my friends who are medically trained were sceptical at first - then they saw the results on me of the Doxy - while those with no medical backgrounds were all for it straight away. 

Our future is bright!

xx Lizzie

Elizabeth Anne

Lizzie, you said, 'Sarah, I think you said you had some pretty awful symptoms. Was this during the pulse?'

My awful symptoms came in two parts: the first was in the first week or so of treatment when I was just taking doxycycline: a real Herxheimer reaction.

Then I started to experience the really bad reactions whilst pulsing, but not until my third pulse.  It was bone grinding pain which moved around from my right hand fingertips to my backbone.  I had never experienced anything like it, before or since, but luckily it would ease off in the evening, but return band on seven o'clock in the morning!

It left my arm weaker again for a week or so, and I was worried about this, but  no, this really was saying goodbye to the dreaded Chl pneumoniae.  My arm soon regained strength and never lost it again.  My drawing and painting is now as good as ever, the only thing that is lacking is my writing, which is awful.  I really must spend some time each day on just writing by hand.  I said that over a year ago though, but never did!

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks, Sarah. I'm on day 5 of the first pulse with no reactions so your comments are very welcome as a warning of things that might come. Potentially. Thing is, of course I want to get better as fast as possible (amazing how fast I have adapted to the new reality after years of thinking that the future could only go in a downwards direction), but, as a self-employed person who gets no sick pay, I have to make sure I'm prepared for the tough times to come.

I love reading your posts, Sarah. I seems I am close physically to the the state you were in when you started the treatment, so I can expect a similar trajectory. So. If you were hit during the 3rd pulse, that would be... June for me. I'll make sure the support services (husband) are prepared.

Bye for now, and many thanks as always,

Lizzie

Elizabeth Anne

Lizzie, a warning yes, but by no means a certainty: it is quite possible that you will just run smoothly through until one day you realise that your MS is a thing of the past.

My third pulse was my big turnover:  My right arm had been nearly paralysed before I started the protocol.  I had felt changes before the third pulse, which made me keep going, but then, once I has started the pulse, the excruciating but moveable pain started.  I think it lasted ten or twelve days but I have never had it since.

I have only heard of one other person going through the same thing with the treatment: a young male, but not one with MS. Worse for him, his pain wasn't confined just to one limb!

I think that you never know just how the recovery is going to take you.  For instance, can you bend forward and cut your toenails easily?  I couldn't for years before starting the treatment but about three years ago I realised this was no longer a problem.  One moment I was thinking that I could always go to a chiropodist, except that I might kick out and knock her unconscious, the next moment I didn't need to, because I could do it myself and do, even though using high-dose biotin makes my nails grow much quicker!

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah

Just a quick prep question whilst talking about pulsing- so 5 day pulse is followed by 3 weeks normal meds intake and then pulse again or? About 1 pulse a calender month?

Kiki

Whatever suits you best, Kiki: that's what pulsing is all about!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Kiki, the one calendar month gives you enough time to reco'er before the next pulse l, but if you feel you can do a longer pulse, do so, but still leave about three weeks before the next pulse.

I never did longer than five days but I still chucked MS quite quickly.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah, Kiki and everyone,

I've now finished that first five-day pulse, and it fine. 
I'm now going to schedule one course a month, so a three week break, then into it again. 

Sarah, I know this is really getting ahead of things, but when and how do you know the job is done, that all's dead and gone?

Funny what you said about your nails; my fingernails have become soft and weak. I've had to cut them all short. I can reach my toes, though if you see me walking it looks like I'm on a ship in rough seas. 

Oh, and my Indian neighbour is moving abroad; I might need to find another source for the medication, Sarah (hint hint!).

Cheerio,
Lizzie

Elizabeth Anne