MediTest
26 Jan 2019
Author
willingtocope
Title

How do I stop ABx?

Body

I've been doing the protocol for a couple of years now, and I don't appear to be getting any worse.  I'm in a power chair full time, but I'm certain that's from lack of exercise rather than disease progression.  I was working full time from home, so I sat at my computer 10-12 hours a day and just never got up.  I'm retired now and working with a physical trainer and I'm slowly getting my strength back.

So. my question is...how do I stop taking antibiotics?  All at once?  Cut back on the dosage?  Any suggestions?

Comments

Hello Willingtocope, long time no see!

When I stopped, I just stopped straight off, so no worries there. However, you mean that consider carrying on with one doxycycline as an immunomodulator, or taking high dose biotin which I still take and atill get great benefits from in walking upstairs and so on.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hello Sarah!  Yep...its been a while.  Loaded a new browser and misplaced my book of usernames/passwords.  Just found it last week.

I'll take your advice about doxy. 

As for biotin, interesting development. I started high dose biotin in July 2017. I noticed no real changes in symptoms...until... March 31, 2018, I opened a new bottle. Around April 3th, I began to experience an elevated heart rate. This happened sporadically and returned to normal if I reclined in my power chair or laid down in bed. On April 6, my rate reached 180bpm...my PA suggested I go to the ER. They monitored me for 10 hrs and saw no problems, but put a "halter heart monitor" on me and sent me home.

April 7th I awoke and when I tried to get out of bed, rate shot up again. PA sent me to the ER again. They admitted me to the hospital, wired me with a complete monitor, sent me for a CT scan, and on Monday April 9, a chemical stress test. My heart rate was normal the whole time. Tests showed nothing abnormal.

I was sent home Monday night. Tuesday, heart rate increased again midday. Hmmmm....of course the hospital was NOT giving me biotin but I took my normal pile of pills Monday night and Tuesday morning.

I did some online research and found that biotin will sometimes cause "heart palpitations". I stopped biotin. No problems since.

So...either the bottle I opened in late March was "extra strength" or perhaps even contaminated.

Since I saw no perceivable improvement from biotin, I stopped taking it.

 

The original gorrilla.

Willingtocope - have you been taking the abx full time or have you already moved to intermittent?  I did intermittent before stopping completely.

I thought you did intermittent, Sarah, before stopping completely.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)

I've been taking Doxy and Roxi full time, but I have't done Metro in months.  I stopped NAC a couple of weeks ago.  I've developed a cough...lots of mucus...and occasional sneezing.  My PA suggested Mucinex...no help...so she suggested an inhaler using Acetyl Cistene (sp?) in a 20% solution which, according to the data sheet, is used to break up congestion by concentrating mucus. 

I passed on the inhaler, but I'm wondering if  NAC may be related to the cough.  It does seem to be getting better.

The original gorrilla.

Hi!

😊

I don't think we've ever spoken before, so hello.

😉

My position is not too dissimilar too dissimilar to yours as I too am in a wheelchair.

 

I am surprised to read that you do not take NAC (n-acetylcysteine). This is used commonly in decongestants and for people with COPD to thin phlegm. It is used in this protocol to kill the elementary bodies of chlamydia pneumoniae. It is my understanding that you should never stop taking NAC. For anybody that doesn't know, it is not an antibiotic and is liver protective.

😊

G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

I stopped gradually, rather than stopping all in one go - as per this on Dr David Wheldon's website:

 

"The eventual aim is to give all three agents intermittently so that there is some respite from antibiotics. This, the final leg of treatment, may entail a 14 day course of doxycycline and roxithromycin, with a five day course of metronidazole in the middle. This course is givenonce a month. After several months the intervals between the antibiotics may be cautiously extended."

 

So I was taking abx for 2 weeks a month, but I only ever managed a couple of days of metronidazole or tinidazole in the middle. I still take NAC every day and I really do feel that makes a difference.

 

Hoping for success for you as you stop.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)

Bo, I did the same, but I took the question to mean 'is it safe to stop all at once?' because a lot of people have asked that.

Eventually though, I decided just to stop, and went straight from taking three abx one day, to just NAC, which I still take most days to keep me clear of phlegm, which it does and also kills any cpn elementary bodies which might be lurking!.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Willingtocope, I used to cough all winter, but it all stopped after doing the cpn protocol. Now I rarely cough and when I seem to be going down with a cold, it vanishes almost overnight.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

 As for NAC - we (husband an I)  take it EVERY day and I take it twice a day.  We plan to take it always.   I stopped abx after years (my blogs are probably still here), but only when I had NO reaction at all.  Then I just stopped.  I think I never missed a dose.  If there are ANY bugs left, they WILL come back.  This was not easy but it is so, so worth it.

Rica

 

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Roger on twice a day, and never stop - NAC is also very well known for helping with lung function! (...and liver function), so those with breathing issues and lung disease get this additional benefit ;-)

One should take at least a year or so between ABx stints, to let the body 'recover', before beginning any new ABx stints. During that time the vitamin/supplement part of CAP should be adhered to diligently. Typically, after a  few stints, and unless Cpn symptoms reoccur - one may just continue the NAC, ALC, etc. vitamin/supplement part  of CAP and no longer need any more ABx stints... and still avoid relapses.

We find consultations, we learn tricks with which we deceive ourselves, but the essential thing - the way - we do not find. Listen to the river...

I had to stop ABX simply because I was seeing the cardiologist, I’m now being monitored for menopause side effects and (this shocked me) very quiet and understated seizures, the very interesting symptoms of which have been around all my life, and I mean all!, but I still struggle with NAC, which causes dreadful, ongoing lethargy for me, but I’d love to take it! I worry about stopping ABX, but would feel so much more relaxed if I could take this wonder supplement!

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Oh Jane, so the 'quiet and understated seizures' are causing you to fall?

Maybe if you can't take abx at the moment, you could take high dose biotin, because that should help you build up strength in your walking.  Who knows: this might even make you ore able to tolerate NAC.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Jane, I asked David if there was any reason for you stopping abx whilst under the care of a cardiologist and he said not that he could think of.

I think that you should restart because it is your main chance of turning MS around. 

My MS started with a few small seizures and they have remained sporadically with me since, but the last one I had was nearly ten years ago.

Also, and this is very noticeable, your writing is becoming much more fluent and typo free! 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah,

thank you, so much, for noticing the improvement, which I know is there, but my husband can’t see improvment, at all, I think because he sees me being so very tired, but,  if it weren’t for my guide dog and walking stick, i don’t think  disability is evident.

And, yes I fall.  

Knowing you, also, had small seizures makes me feel better about my own. I mostly have continued wioth Biotin, knowing it is good for myelin repair.  But, i think i should restart ABX now! Thank you Sarah!

jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Jane, seeing this makes me feel so happy:I will sleep well tonight.

As for your husband, the best place to see improvements is from a distance. I will email you tomorrow. 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.