MediTest
6 Jan 2019
Author
Kiki
Title

NEWBIE- advice and experiences please! Protol starting JAN 2019

Body

Hi all incl Sarah and David!
I'm new to here. Just recently weeks ago I was diagnosed with intermittant relapsing MS. Seemingly it all started in 2006 with optic neuritis then 2011 with lower limbs tingly,/ numbness. I have been started on daily Copaxen injectitions. But with a severely disabled child Im struggling both physically and mentally. Please help with advice as to how where, who, how much etc to get started on Wheldon Way of treatment. I believe in going in for the underlying cause rather than just band aid stuff.
Thank you!
Kiki Bojanic

Comments

What about the CNS Kiki? In the beginning, I managed to squeeze fortnightly b12 injections out of my GP. They had an initial effect but faded rather quickly, since they weren't methylcobalamin, like the tablets I take. Also, two of the three nurses couldn't inject without bruising me. So I decided to order some tablets and munch them every day, to keep up the levels, At first I would take up to five a day, now I take one or two.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Great! As long as Im not overdoing tab wise B12 of what I can take. Had no idea re maximum. 

Ps. Im a traitor vegan tho as Ive decided to still eat fish and prawns! Only really have it with family meals 1-2:times a week but figured Id keep it in my diet so Im not having to stuffing myself with beans non stop plus I like sushi too much haha.

Great! As long as Im not overdoing tab wise B12 of what I can take. Had no idea re maximum. 

Ps. Im a traitor vegan tho as Ive decided to still eat fish and prawns! Only really have it with family meals 1-2:times a week but figured Id keep it in my diet so Im not having to stuffing myself with beans non stop plus I like sushi too much haha.

D W

You can't overdose on B12. It's important to take enough. (Chuck Stratton has found that in Cpn disease abnormal antibodies are made which bind to B12; this stops the vitamin from getting into the CNS. A large intake of B12 is necessary to fill all the binding sites on these antibodies, allowing a good blood level of free vitamin.)

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

Yes, but you could take two or more if you wanted to, because you won't get any with a vegan diet!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Not if you can manage the vegan and raw food thing, but you will have to make sure that you get enough b12, which is very important.

The best way to find out is something is a crazy idea is to try it: you can always pull back!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Day 7 of treatment plan and day 2 of taking full daily dosage of Doxy meds in one go in the mornings, 2hrs later Probiotics and Magnesium/Calcium Complex followed by lunch and then Omega 3  vitamin E, C, D3, B Complex, B12, Turmeric and Selenium. Feel all good and no particular icky feel as I now know what to expect and how to prep.

I stopped the daily Copaxone injections just after New Year and even a day later I felt like I had more energy.

I'm sticking to my decision of vegan and raw food style I started prior to Xmas so to minimise inflammatory food intake plus up max nutrients and vitamins/minerals in my daily diet.

Feeling all gungho and thinking of pushing it a bit by introducing Roxy on Monday as 2 X half dosages like I did with the  Doxy.

Crazy idea or...

I should do that: the last thing you want is to be put off!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

So..day 6 and I took full daily Doxy meds in one go this morning. It worked fine. Felt it a bit icky for longer today so lets see what tomorrow is like . Maybe I'll hold out for adding the Roxy because of that another week possibly...

Kiki - you said above that you are taking half doses of doxy twice a day. Are you sure you mean that? If you are taking 100mg tablet twice a day, that would be full dose.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)

Glad to hear it! I didn't start taking the doxy all in one go for several months, I think, because I thought I had to take them as prescribed. One day I saw David taking them both together and upon querying him, he said that if you are taking really long term doses, you can do this.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah! Feeling good. Still only doing half dosages of Doxy twice a day though. Got the daily plan down to a T now. Will do full dose over weekend and if good will start adding half dosages of Roxy twice a day next week. Feel emotionally much better now Im in charge of my destiny and with a plan forwards!!

Kiki, if you feel yucky at the moment, it is probably a good sign and it won't last long, speaking from experience.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Best to I think.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Brill!!
You reckon to start with half dosages with Roxy too so as to get used to it? Feeling head achy today but poss from bad sleep position with neck last night.
K

You can start taking roxithromycin as soon as you feel up to it. Tomorrow if you like! I only started mine later because we were waiting to get it.

As for the full dose of doxycycline in one go, try it at the weekend, when you have your husband home to take care of the children if it makes you feel sick.

It might seem like I am rushing you, but it is only what I think you can manage having talked to you!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Day 2 going alright! Thought occured- when is a good time to consider taking full dose Doxy in one go per day and when is it a good idea to start taking the Roxy daily?
K

Excellent!!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Well...had a bowl of loaded muesli just before first tab. Waited few mins for that to settle then had half a banana with tab( no supplements). Felt bit in tummy within half hour. But did school run and mini shop in Tesco. Now home 1 hr later and fine so taking supplements now as wasn't sure to take them earlier if I felt sicky. All good!!!

Of course!!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Last question before tomorrows start,
Is it ok to take the B complex , B 12 , vitamin D3 and Omega 3 together WITH the first 100mg of Doxy in the morning after brekkie??

Best of luck, Kiki. My advice would be to go slowly. Wait until you are tolerating one thing before adding another. We always say it’s a marathon, not a sprint.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)

Kiki, you will probably find, certainly by the time you are pulsing tinidazole or metronidazole, that you lose your appetite a bit! You will only feel sick by taking doxycycline without eating anything. You must eat something with that because it is very corrosive on your oesophagus, so stay upright until your stomach acid gets to work on it!

Maybe other people are different but it was only that which affected me. Oh, and later on metronidazole made me feel weepy!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks Sarah!
So is it ok if I keep stuffing my face with breads/ bisquits after meds to maybe help the sicky feel? What I did spending ages being sick from pregnancies! Talking 20 weeks with both!
When does sicky feel subside with taking meds in your experience?

Kiki, just start with one of the antibiotics for a few days and get used to the fact that doxycycline might make you feel a bit nauseous. Maybe it would be better for you to take it in your few quieter moments, but you'll get used to it.  I did and I had only taken two shortcourses of abx, one at the age of six and one at twenty six, but as soon as I felt something happening I was determined to get through!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.