MediTest
Body
I had to stop taking the CAP until I’d seen the cardiologist, who diagnosed, as my neurologist did several years ago, autonomic disorder. I will ask my GP to refer me elsewhere, hopefully Liverpool, near my neurologist, at the Walton Centre. Anyhow at least half of MSers have this dysfunction, which I seem to have had all my life (i don’t sweat, nor do I have much body hair etc.

Comments

Interesting Jane: I never used to sweat and had absolutely no underarm hair and not much elsewhere, apart from masses on my head! Since CAP, I have started to sweat a little bit and also grow a bit of hair on my legs.
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.
D W

C pneumoniae, being neurotropic, can certainly infect and disrupt the autonomic nervous system.

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

I realise I, probably, was born with this disorder but it only became an issue after an adult dose of chicken pox, so interesting that Sarah has similar symptoms. From my standpoint, one of total ignorance, i wonder if autonomic neuropathy is the starting point for MS, rather than vice versa! Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Jane, unlike you, my only two autonomic disorders were not sweating and having very little body hair. I was never particularly bothered by either of these, living so far from the tropics. Thinking back to my early teenage years, I did sweat somewhat then and I did have some fine hair on my legs because I remember using sandpaper to remove it.  This was very effective: By my twenties, the hair stopped growing, and I remember thinking at the time whether using sandpaper had stopped the growth!  Now it seems to be growing again and I am just hoping that my underarm hair keeps away.

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Oh Sarah!I used that sandpaper too, because teenage insecurity told me to! I didn’t sweat, but spent a fortune on roll-on antiperspirant, that made me itch I sang classically, although, in rock bands, until I wS 23, when my voice disappeared! autonomic dysdunction? The consultant disappeared my tonsils, and a load of Dad’s cash, but didn’t return my voice. My adenoids, tonsils and appendix went at ages 3, 13 and 23. All part of my immune system, this must have impacted on MS development! Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

What a picture we must have painted Jane: you up in North Wales and me down in Bristol, sandpapering away at our nearly non existent leg hair: Then, with me, rubbing in baby lotion to stop the soreness!
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I wish i’d thought about baby lotion! I just spent my evening’s with gritted teeth!

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro