16 Jul 2018
Author
tuftyone
Title

A glimmer of hope?

Body

I've been taking the Abx for just over a month. I felt a bit rough in the beginning but haven't experienced any of the horrendous die-off i've read about. Last Thursday, I got up and felt a bit different and had a shower (easily getting in and out of the bath without falling on to the floor! I walked around my flat without tripping and without my crutch. I left the flat and without thinking left the crutch behind. I walked from my car to the cashpoint and back almost completely normally! This only lasted for half a day and now I'm back to 'normal'.

Comments

katman

16 Jul 2018 09:09 am

Ups and downs will come, but stay with it and us! No downs for me for several years now - only still slowly improving.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

JaneK

16 Jul 2018 03:48 pm

Tuftyone,
Dance, sing, clap! You’ve tasted where the CAP will take you! There will be disappointing moments ahead, but short lived, and not forever. CONGRATULATIONS, you’ve begun the best journey ever!
Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

MacKintosh

16 Jul 2018 10:33 pm

Yes, it'll disappear for awhile, but it'll come back. More and more often. Thanks for posting your good news!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

tuftyone

6 Aug 2018 01:05 pm

Well my brilliant morning seems to have been my body playing a cruel joke on me and now everything is way worse. My mobility is bad, my rosacea has flared badly and my fatigue is so bad I spend most the day lying in bed ? Has anyone experienced things like this before they got better? Thank you

Ps I’ve started a new glutathione supplement which has only made things worse I think

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

katman

6 Aug 2018 03:57 pm

Just saw this! I KNOW what you are going through! Yes, there are some really bad times, so bad that you think you can't get through this.

TAKE your pills and know that this is what it takes from you. Eat lots of vegetables, when you have a checkup at the doctor get your Vit D checked, and keep taking your "stuff".

It may help you to read my blogs - I remember some very bad times.
Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

tuftyone

9 Aug 2018 03:04 am

Thank you, I think that I’m feeling stressed not knowing if it’s disease progression or die off. If I’d had a positive CPN diagnosis and obtained the abx conventionally through my gp I’d be much more positive!

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

Sarah

6 Aug 2018 04:20 pm

Tufty, I don't know which part of the country you are in, but the nearer you are to the south east, the hotter it will be. I often feel quite whacked at the moment, so don't think that the way you feel is definitely due to either the MS or he treatment. A lot of it will be though, but it won't last. One morning you will wake up and feel so much better, almost without realising it.

If I were you I would stop taking gluthathione, because of thione being the organosulfur analog of ketone. If you can't take NAC, I would guess the same applies here.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

tuftyone

7 Aug 2018 09:02 pm

I’m probably as far south as you can get but I live by the sea so the sea breeze makes it more bearable. It’s the humidity that kills me though and today my mobility, rosacea and fatigue were probably the worst I’ve experienced. I’ve stopped all supplements and abx temporarily to see how I feel

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

Sarah

8 Aug 2018 06:58 am

Good idea, but don't stop the probiotics, for your gut's sake: you will regret that! A good probiotic to take is this one:

https://www.amazon.co.uk/Jarrow-Saccharomyces-Boulardii-Billion-Capsule…

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

tuftyone

14 Aug 2018 07:17 am

Thanks Sarah thats actually the one I normally take as I have histamine problems and can’t use other strains

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

katman

9 Aug 2018 10:02 am

As always, you have my sympathy. And I empathize with you. However, when I got worse, I always still took everything and never seriously considered stopping anything - abx or supplements. And eventually I was happy to see that "I couldn't do that last month or year". Over and over something in some category had returned, sometimes tiny and sometimes large.

None of this is easy- we all know that. But I will forever say that it was so worth it. I will do anything I can for you to help you through these very hard times. Please let me know.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

tuftyone

14 Aug 2018 07:21 am

Thank you for your support. I think the one thing that’s bothering me is that I don’t know if I definitely have CPN and just assuming that I do. I may be taking antibiotics for no reason at all ?. I said I’d give it three months though.

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

Sarah

14 Aug 2018 10:29 am

Tufty, let me tell you this: I wasn't tested for Cpn until at least a couple of weeks after actually starting to take the antibiotics. When the results came back, they showed only 1:64, which is minimal and had it been left up to my GP I never would have been treated. This is the trouble with intracellular pathogens: they are good at hiding. This is also why such a long term of treatment is needed. It is also why it is such a good idea to keep a record of improvements: one of David's patients came to see him after about nine months of treatment, declaring that it was worth the try but he hadn't seen much difference. However, when he had his first appointment, he had difficulty walking from his car and into David's office. This time he had walked from home, about a mile and a half away, through the centre of town, where he had bought himself some new shoes.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

katman

14 Aug 2018 10:09 am

Neither did I know - all I knew was that I had MS and my sister had found David Wheldon's site. My wonderful doctor prescribed them all for me all those years and I took them and all the supplements. My deterioration was pretty dramatic at times but that turned out to be part of my recovery.

Another BIG surprise was my total cure of my cold-like sinus problem that I had had for decades. (I think since age ten.) It is a daily pleasure not to have that!

It is my suspicion that if someone starts the abx soon enough, he/she may have full recovery from the problems, but that is a long time in the future. We are the fortunate ones who have the opportunity to do this now.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

tuftyone

14 Aug 2018 10:50 am

Thanks for the encouragement I guess I just need to be more committed and believe in the protocol ... and also look for clues... I quite often cough up tiny bits of mucus... that’s a good thing right?

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

16 Jul 2018
tuftyone