MediTest
Submitted by Canadaontariouser on Mon, 2018-07-09 22:49
Good day everybody, I thought I needed to provide some update on my progress. Last time I wrote in my blog I was desperately searching for a doctor to help with the protocol. I have since found one and these are the findings: From the exams performed it was found that I am suffering from the following diseases: -Chronic Fatigue Syndrome, Environmental Hypersensitivity Syndrome likely related to MSIDS (multiple system infectious disease syndrome); -Laboratory confirmed chronic Lyme (Borreliosis), Bartonella, Rickettsial infection and Babesiosis; -Environmental toxicity is suspected with potential chemicals; -Chronic pelvic infections (yeast/mycoplasma/enterococcus) likely related to long term immune suppression from Lyme. In April 2018 I was prescribed the following antibiotic therapy which is ongoing: Hydroxychloroquine 200mg, Azithromycin 250mg, minocycline 50mg, rifampin 150mg BID and after a month Metronidazole 500mg, 3X/day as a pulse for 2 days a week. In addition I have been prescribed natural supplements including but not limited to: Herbal tinctures, biofilm busters, grapefruit seed extract for yeast, probiotics, digestive enzymes, vitamins B12, vitamin B-complex, vitamin D and NAC. I was tolerating the treatment quite well until introduction of the metronidazole which caused a lot of GI symptoms (nausea, headache, dizziness), therefore the dosage had to be reduced to 250mg. After that I’ve been able to tolerate the symptoms a little better. I am at about 3 months into the treatment. I can’t say that I am better because that’s a big word, however what I can say is that I’ve had small improvements of my symptoms complemented by flare ups, which never went into full blown mode. If I can express the way I feel is that I am going up and down in waves, sometimes better sometimes worse, but until now, never into full blown symptomatic episodes and never debilitating. This is already a small victory for me. I am not on this site too often, but I am immensely grateful for the compassion and support of its members. I hope to be more active in the future.

Blog comments

Canadaontariouser! Do not worry... it took me approx a year to feel as to post... I am trying to see it with perspective now, and waw... what a year! (And I suspected my bacterial load was low...) O.o I made something out of what I read and realizing the most of us had the same 'basic questions' and 'desperations'. Take the best out of it and make your own planning and followings of how you feel... it might be useful to you, most of all... + Tools&Tips I : What + ---> 1. What are all these pills and medication? + Tools&Tips II : Where + ---> 2. Where do I get these pills and medication? + Tools&Tips III : When + ---> 3. When to start? / 4. When to take all these pills? + Tools&Tips IV : How + ---> 5. How to start? It really took me a year under Wheldon/Stratton Protocol to swallow what was really happening... After a year I can say... I start feeling ready to restart again. :)

Gisel·la

(ONGOING PROTOCOL: 1 full year Protocol with 6 full Metro pulses)

MS Diagnosed: 21.IX.2016

 

Ow... the links do not work. Canadaontariouser, if you write Tools&Tips in the searcher bar of this website (on the up-right corner), you will find it straight ahead! :)

Gisel·la

(ONGOING PROTOCOL: 1 full year Protocol with 6 full Metro pulses)

MS Diagnosed: 21.IX.2016

 

Thank you for the encouragement and the tips. I am definitely going to check it out:)
- Long time sufferer of Chronic Fatigue Syndrome since late 1980's - -Recent exams confirmed: -Chronic Fatigue Syndrome, Environmental Hypersensitivity Syndrome likely related to MSIDS (multiple system infectious disease syndrome); -Laboratory confirmed chronic Lyme (Borreliosis), Bartonella, Rickettsial infection and Babesiosis; -Environmental toxicity is suspected with potential chemicals; -Chronic pelvic infections (yeast/mycoplasma/enterococcus) likely related to long term immune suppression from Lyme. I am on long term antibiotic therapy and supplements since April 2018.

You're describing how we all recovered. Congratulations! It's been described as a rollercoaster ride, and also as 'two steps forward, one step back'. Recovery is not a straight-line thing with this disease or its treatment. As for your issues with metronidazole, they are happening because metronidazole is the medicine that outright KILLS the disease, as opposed to the others, which mostly hold it in abeyance. You're going to feel worse on metro and that's a GOOD thing, because you know it's doing its job. Drink more water at those times, to flush the crud it's killing straight out of your body. Congratulations; you're getting better.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thank you for these clarifications. Then this means I'm on the right track:)
- Long time sufferer of Chronic Fatigue Syndrome since late 1980's - -Recent exams confirmed: -Chronic Fatigue Syndrome, Environmental Hypersensitivity Syndrome likely related to MSIDS (multiple system infectious disease syndrome); -Laboratory confirmed chronic Lyme (Borreliosis), Bartonella, Rickettsial infection and Babesiosis; -Environmental toxicity is suspected with potential chemicals; -Chronic pelvic infections (yeast/mycoplasma/enterococcus) likely related to long term immune suppression from Lyme. I am on long term antibiotic therapy and supplements since April 2018.