7 Jul 2018
I'm lost folks. I live in Maine and it impossible to find any doctor who is even slightly open to chronic/persistent CPN infection. Even the doctor who uncovered my CPN infection in 2008 (Lahey Clinic in MA) said it can't be the problem, since I took the usual short course of antibiotics. I'll go anywhere and do anything to find medical assistance. I did the full protocol years ago and got much better. Recently it started all over again, with respiratory symptoms that won't go away feeling sick all over, brain fog. My primary care doc wants to treat this like allergies or asthma. I know the difference between having allergies and having something infectious. Last time around I went from specialist to specialist and nobody had even heard of CPN being anything other than a minor, short-term illness. Self-treatment is a very scary, difficult, expensive process. I just don't feel like I have any choice. I have tried educating doctors with materials from this site. Everyone is afraid to get in trouble for prescribing even one long-term antibiotic, much less 3 or 4. I know that site is generally a positive place. Sorry to not be positive about my situation.